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NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Spinal Cord stimulator vs Pain Pump (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/102897-spinal-cord-stimulator-vs-pain-pump.html)

CZZ74 09-14-2009 12:09 PM
Thank you smilelin
 
Quote:
Originally Posted by daniella (Post 566047)
Now these are just things I have been told through the doctors and things I have read etc. Everyone is different. When I was at Cleveland Clinic the pain pump was suggested as one of the last options to try. Now the scs I was suppsed to try but since I had 2 procedures that increased my pain my doctor felt the scs may as well or may not work if the pain has been there too long and it is in my brain too much. I think more doctors for RSD do the scs then the pump since many are not big on narcotic meds that I have seen and how many have said in the long run it makes one more sensitive to pain and needing more. Now I am not saying people who take narcotics here are wrong because at this point I have no clue and one has to get through the day in the best possible way for the best quality they can get. Just through the many doctors I have seen.
I am sorry for all you are going through and I know how hard these choices are.
thank you Daniella for sharing this information from the cleveland clinic. I know this is the case with dr. schwartzman he does not belieive in them at all especially once you have full body pain. I appreciate your input. cz

Dew58 09-14-2009 12:54 PM
http://i26.tinypic.com/2ur5n4h.jpg, for the knowledge that everyone shared in this post.:grouphug:

daniella 09-14-2009 01:01 PM
Hey no problem.I just reread this and I was told by my doctor before the scs was ruled out that the tens would not work for me since I can't even allow a finger touch on me. May I ask what part of FL you are in? I am back in Palm Beach county that is why I was asking. Hang in there and I understand too how this condition isolates us. I wish there were more concrete answers and direction.

angelrsd 09-14-2009 07:47 PM
i think you are both right the pump and scs should be usesd as a last resort option i think that some get these way to early when other things can be tried . i had already had rsd almost 6 years and this is when i had pump put in after i became very allergic to morphine. i dont think that it is right for everyone. i am one of those that has done everything besides Ketamine. because im not a candidate and im just not willing to risk my life for it. IMO
carrie

keep smilin 09-14-2009 08:29 PM
Hi cz...
 
Quote:
Originally Posted by CZZ74 (Post 565960)
I dont even know what to say, yeah i would be mad to say the least. I dont know if it would apply at all but the tens machine aggravates my condition, is the theory at all based on the same theory? sorry if this is a naive question/ I am so so sorry for all of your disappointments with this, sincerely cz

Not a naive question at all!! I believe you are right in thinking the tens unit is based on the same theory as the SCS...I guess my hardest time was beng so happy after had the temp. unit in thinking it was a positive and then having to wait so long only to wake up and not have the benefit of the SCS, permanent implant.. Thank you for your kind note and for your sympathy with this ordeal... I wish you a restful evening and send gentle hug.:hug:

hannah1234 09-15-2009 12:01 AM
I have a SCS and the trial actually worked less than the permanant. For me, I have huge family support and my doctor actually changes out medicines seasonally. For instance more in winter than summer or visa versa. My SCS covers abou 40-50 percent of pain. Which is HUGE when you look at the full scale of 100%. It is a HUGE lifestyle change as I am young and was once an athlete. I have mine in my neck which is harder because it goes all the way down your back instead of just the lumbar spine. Everything worked out wonderfully and I decided to put it in. I never considered a pain pump, as my PM doctor told me the SCS was a option over more medications. I have had mine in for only 3 months, but those 3 months have been great over the incision sx pain from the implant. :)

CZZ74 09-16-2009 06:59 AM
Im glad your back.:)
 
Quote:
Originally Posted by daniella (Post 566131)
Hey no problem.I just reread this and I was told by my doctor before the scs was ruled out that the tens would not work for me since I can't even allow a finger touch on me. May I ask what part of FL you are in? I am back in Palm Beach county that is why I was asking. Hang in there and I understand too how this condition isolates us. I wish there were more concrete answers and direction.
Daniella Im not doing very well today and on my way to doctor but so happy you are back i am in orlando. I will be in palm beach from dec to april. Ill pm you toinight ok. thaks again for saying hi, cz

CZZ74 09-16-2009 07:01 AM
Hannah so happy for you
 
Quote:
Originally Posted by hannah1234 (Post 566412)
I have a SCS and the trial actually worked less than the permanant. For me, I have huge family support and my doctor actually changes out medicines seasonally. For instance more in winter than summer or visa versa. My SCS covers abou 40-50 percent of pain. Which is HUGE when you look at the full scale of 100%. It is a HUGE lifestyle change as I am young and was once an athlete. I have mine in my neck which is harder because it goes all the way down your back instead of just the lumbar spine. Everything worked out wonderfully and I decided to put it in. I never considered a pain pump, as my PM doctor told me the SCS was a option over more medications. I have had mine in for only 3 months, but those 3 months have been great over the incision sx pain from the implant. :)
Hannah, Im so happy for you that you are getting some help. Also so sorry about your atheletic career, sorry about spelling today. I too have cervical and thoracic not lumbar, I know what you mean. thank you for sharing. God bless, cz

CZZ74 09-16-2009 07:03 AM
Dew
 
Quote:
Originally Posted by Dew58 (Post 566128)
http://i26.tinypic.com/2ur5n4h.jpg, for the knowledge that everyone shared in this post.:grouphug:
Dew, Just wanted to thank you for all your kindness and cheer, cz

daniella 09-16-2009 09:21 AM
Quote:
Originally Posted by CZZ74 (Post 566967)
Daniella Im not doing very well today and on my way to doctor but so happy you are back i am in orlando. I will be in palm beach from dec to april. Ill pm you toinight ok. thaks again for saying hi, cz
]

Hi I am sorry that you are feeling bad. I would love to meet you oneday when your near. Please take care and hang in there.


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