Home Menu

Site Navigation



Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
NeuroTalk Support Groups > > >

Spinal Cord stimulator vs Pain Pump

Reply
Page 2 of 3 1 2 3
 
Thread Tools Display Modes
Old 09-14-2009, 12:09 PM #11
CZZ74 CZZ74 is offline
Member
  
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
CZZ74 CZZ74 is offline
Member
 
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
Default Thank you smilelin
Quote:
Originally Posted by daniella View Post
Now these are just things I have been told through the doctors and things I have read etc. Everyone is different. When I was at Cleveland Clinic the pain pump was suggested as one of the last options to try. Now the scs I was suppsed to try but since I had 2 procedures that increased my pain my doctor felt the scs may as well or may not work if the pain has been there too long and it is in my brain too much. I think more doctors for RSD do the scs then the pump since many are not big on narcotic meds that I have seen and how many have said in the long run it makes one more sensitive to pain and needing more. Now I am not saying people who take narcotics here are wrong because at this point I have no clue and one has to get through the day in the best possible way for the best quality they can get. Just through the many doctors I have seen.
I am sorry for all you are going through and I know how hard these choices are.
thank you Daniella for sharing this information from the cleveland clinic. I know this is the case with dr. schwartzman he does not belieive in them at all especially once you have full body pain. I appreciate your input. cz
CZZ74 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (09-14-2009)

advertisement
Old 09-14-2009, 12:54 PM #12
Dew58's Avatar
Dew58 Dew58 is offline
Member
  
Join Date: Jul 2008
Location: Oklahoma
Posts: 498
15 yr Member
Dew58 Dew58 is offline
Member
Dew58's Avatar
 
Join Date: Jul 2008
Location: Oklahoma
Posts: 498
15 yr Member
Thumbs up
, for the knowledge that everyone shared in this post.
__________________

.


A Positive Attitude Will Assist Me Toward An Active Life, Once Again
.

WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
Dew58 is offline   Reply With QuoteReply With Quote
Old 09-14-2009, 01:01 PM #13
daniella daniella is offline
Magnate
  
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
Default
Hey no problem.I just reread this and I was told by my doctor before the scs was ruled out that the tens would not work for me since I can't even allow a finger touch on me. May I ask what part of FL you are in? I am back in Palm Beach county that is why I was asking. Hang in there and I understand too how this condition isolates us. I wish there were more concrete answers and direction.
daniella is offline   Reply With QuoteReply With Quote
Old 09-14-2009, 07:47 PM #14
angelrsd's Avatar
angelrsd angelrsd is offline
Member
  
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
angelrsd angelrsd is offline
Member
angelrsd's Avatar
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
Default
i think you are both right the pump and scs should be usesd as a last resort option i think that some get these way to early when other things can be tried . i had already had rsd almost 6 years and this is when i had pump put in after i became very allergic to morphine. i dont think that it is right for everyone. i am one of those that has done everything besides Ketamine. because im not a candidate and im just not willing to risk my life for it. IMO
carrie
__________________
hope this finds all in less pain
.



rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


.
angelrsd is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
CZZ74 (09-16-2009)
Old 09-14-2009, 08:29 PM #15
keep smilin keep smilin is offline
Member
  
Join Date: Aug 2009
Posts: 851
10 yr Member
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
10 yr Member
Ooo Hi cz...
Quote:
Originally Posted by CZZ74 View Post
I dont even know what to say, yeah i would be mad to say the least. I dont know if it would apply at all but the tens machine aggravates my condition, is the theory at all based on the same theory? sorry if this is a naive question/ I am so so sorry for all of your disappointments with this, sincerely cz

Not a naive question at all!! I believe you are right in thinking the tens unit is based on the same theory as the SCS...I guess my hardest time was beng so happy after had the temp. unit in thinking it was a positive and then having to wait so long only to wake up and not have the benefit of the SCS, permanent implant.. Thank you for your kind note and for your sympathy with this ordeal... I wish you a restful evening and send gentle hug.
keep smilin is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
CZZ74 (09-16-2009)
Old 09-15-2009, 12:01 AM #16
hannah1234 hannah1234 is offline
Member
  
Join Date: Jul 2009
Location: Los Angeles, California
Posts: 280
10 yr Member
hannah1234 hannah1234 is offline
Member
 
Join Date: Jul 2009
Location: Los Angeles, California
Posts: 280
10 yr Member
Default
I have a SCS and the trial actually worked less than the permanant. For me, I have huge family support and my doctor actually changes out medicines seasonally. For instance more in winter than summer or visa versa. My SCS covers abou 40-50 percent of pain. Which is HUGE when you look at the full scale of 100%. It is a HUGE lifestyle change as I am young and was once an athlete. I have mine in my neck which is harder because it goes all the way down your back instead of just the lumbar spine. Everything worked out wonderfully and I decided to put it in. I never considered a pain pump, as my PM doctor told me the SCS was a option over more medications. I have had mine in for only 3 months, but those 3 months have been great over the incision sx pain from the implant.
hannah1234 is offline   Reply With QuoteReply With Quote
Old 09-16-2009, 06:59 AM #17
CZZ74 CZZ74 is offline
Member
  
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
CZZ74 CZZ74 is offline
Member
 
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
Default Im glad your back.:)
Quote:
Originally Posted by daniella View Post
Hey no problem.I just reread this and I was told by my doctor before the scs was ruled out that the tens would not work for me since I can't even allow a finger touch on me. May I ask what part of FL you are in? I am back in Palm Beach county that is why I was asking. Hang in there and I understand too how this condition isolates us. I wish there were more concrete answers and direction.
Daniella Im not doing very well today and on my way to doctor but so happy you are back i am in orlando. I will be in palm beach from dec to april. Ill pm you toinight ok. thaks again for saying hi, cz
CZZ74 is offline   Reply With QuoteReply With Quote
Old 09-16-2009, 07:01 AM #18
CZZ74 CZZ74 is offline
Member
  
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
CZZ74 CZZ74 is offline
Member
 
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
Default Hannah so happy for you
Quote:
Originally Posted by hannah1234 View Post
I have a SCS and the trial actually worked less than the permanant. For me, I have huge family support and my doctor actually changes out medicines seasonally. For instance more in winter than summer or visa versa. My SCS covers abou 40-50 percent of pain. Which is HUGE when you look at the full scale of 100%. It is a HUGE lifestyle change as I am young and was once an athlete. I have mine in my neck which is harder because it goes all the way down your back instead of just the lumbar spine. Everything worked out wonderfully and I decided to put it in. I never considered a pain pump, as my PM doctor told me the SCS was a option over more medications. I have had mine in for only 3 months, but those 3 months have been great over the incision sx pain from the implant.
Hannah, Im so happy for you that you are getting some help. Also so sorry about your atheletic career, sorry about spelling today. I too have cervical and thoracic not lumbar, I know what you mean. thank you for sharing. God bless, cz
CZZ74 is offline   Reply With QuoteReply With Quote
Old 09-16-2009, 07:03 AM #19
CZZ74 CZZ74 is offline
Member
  
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
CZZ74 CZZ74 is offline
Member
 
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
Default Dew
Quote:
Originally Posted by Dew58 View Post
, for the knowledge that everyone shared in this post.
Dew, Just wanted to thank you for all your kindness and cheer, cz
CZZ74 is offline   Reply With QuoteReply With Quote
Old 09-16-2009, 09:21 AM #20
daniella daniella is offline
Magnate
  
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
Default
Quote:
Originally Posted by CZZ74 View Post
Daniella Im not doing very well today and on my way to doctor but so happy you are back i am in orlando. I will be in palm beach from dec to april. Ill pm you toinight ok. thaks again for saying hi, cz
]

Hi I am sorry that you are feeling bad. I would love to meet you oneday when your near. Please take care and hang in there.
daniella is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
CZZ74 (09-21-2009)
Reply
Page 2 of 3 1 2 3

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Spinal Cord Stimulator nancy-h Chronic Pain 30 08-08-2013 12:40 PM
Spinal cord stimulator Louis Spinal Disorders & Back Pain 7 03-05-2010 06:42 PM
Spinal Cord Stimulator Leesa3500 Chronic Pain 2 12-12-2007 02:10 PM
Spinal Cord Stimulator susanhd Chronic Pain 2 03-28-2007 03:35 AM
Spinal cord stimulator TerriM Reflex Sympathetic Dystrophy (RSD and CRPS) 2 10-30-2006 11:00 AM


All times are GMT -5. The time now is 07:58 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home