Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 09-13-2009, 08:02 AM #1
CZZ74 CZZ74 is offline
Member
 
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
CZZ74 CZZ74 is offline
Member
 
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
Default Spinal Cord stimulator vs Pain Pump

Hi,
My motivation for looking back into these options is the isolation of not being able to drive and the ensuing depression that accompaines the isolation. I live about 50 miles from my family, doesnt sound far but I only see one family member on a regular basis, my husband travels about 90% of the time.I am by all definitions , a shut in.

In any event. my body rejected the port a cath dr. S put in for my infusions.This was in year two. I had ketamine insusion for almost 4 yesrs. I dont know how many of us have been told our RSD is extremely opportunistic, but i have been.

The rejection of the port was a serious one and almost immediate. severe alloydina, edema, infection etc.

It had to be removed within a month on an emergency basis up at hahnemann hospital.
30,000 dollars to put in , 30k to take out. wow is right.

Following that,( I have cold rsd) I had picc lines put in and taken out constantly as it is near impossible to get an IV line in me. Again they had to keep coming out due to the RSD and severe alloydina and further complications.

Now I'm in my 6th year, I'm having alot of GI problems upper and lower, so I am looking at options again.

I've read alot about SCS on neurotalk, and its success. But not much about pain pumps. I have been told over and over I am not a canidate to scs for the above reasons as well as because i am full body.

Im wondering if anyone has the pain pump. I dont know how I would make it through hte surgery but with the help of my pain mangagement doctor it might be possible.

Could anyone share their experiences with a pain pump. what type you have etc.

Also, if you have scs, why did you select that over the pain pump or vs versa. thank you so much,

I appreciate any input anyone could share, cz sorry this is so long! I really do try to edit my posts and make them shorter!!!
CZZ74 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (09-14-2009), Djhasty (01-07-2013)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Spinal Cord Stimulator nancy-h Chronic Pain 30 08-08-2013 12:40 PM
Spinal cord stimulator Louis Spinal Disorders & Back Pain 7 03-05-2010 06:42 PM
Spinal Cord Stimulator Leesa3500 Chronic Pain 2 12-12-2007 02:10 PM
Spinal Cord Stimulator susanhd Chronic Pain 2 03-28-2007 03:35 AM
Spinal cord stimulator TerriM Reflex Sympathetic Dystrophy (RSD and CRPS) 2 10-30-2006 11:00 AM


All times are GMT -5. The time now is 10:42 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.