hi,
I've had 2 scs and I'm ready to go to the pump. if you pm me I'll give you the site of people who have or are getting the pump. There is so much info. about it.
The pump gives you much more freedom and seems to be harder to jar out of position. I would never have the scs again. it also caused my rsd to spread.

I'll be looking for your pm.

Hugs
Mary

just from what I have read, I would go with the pump too....

Love
Deb

i hated the scs it made me spread and the perm didn't cover the pain the way the trial did. not to mention the added hip and back pains from it and being shocked.

i know someone who has the pain pump and they love it.

Hi Mary, thanks, Ive read alot about the pumps, but want to talk with those that have used it or are considering I am sending you a pm now thank you so much. cz

hey cz.

we have talked alot about it. and i couldnt do any of the things that i do with it. i have had mine since 04. and now am able to work part time. participate in the activities i do with the kids. and just be up and around. and feel like im an actual person again. having the pump doesnt stop the flairs and on a person to person basis it can lower your pain greatly. im happy with it. and would do it all over again.

im like you and have cold rsd.. no veins left have piccs all the time. so i understand where you are coming from.

pm me and we can talk more

carrie

Carrie, thanks so much, Ill pm. I go back and forth- forgive me forgetting- I take very high doses of morphine and I have absolutely no memory left. thank you agian. i am sending pm.cz

Now these are just things I have been told through the doctors and things I have read etc. Everyone is different. When I was at Cleveland Clinic the pain pump was suggested as one of the last options to try. Now the scs I was suppsed to try but since I had 2 procedures that increased my pain my doctor felt the scs may as well or may not work if the pain has been there too long and it is in my brain too much. I think more doctors for RSD do the scs then the pump since many are not big on narcotic meds that I have seen and how many have said in the long run it makes one more sensitive to pain and needing more. Now I am not saying people who take narcotics here are wrong because at this point I have no clue and one has to get through the day in the best possible way for the best quality they can get. Just through the many doctors I have seen.
I am sorry for all you are going through and I know how hard these choices are.

thank you Daniella for sharing this information from the cleveland clinic. I know this is the case with dr. schwartzman he does not belieive in them at all especially once you have full body pain. I appreciate your input. cz

, for the knowledge that everyone shared in this post.

Hey no problem.I just reread this and I was told by my doctor before the scs was ruled out that the tens would not work for me since I can't even allow a finger touch on me. May I ask what part of FL you are in? I am back in Palm Beach county that is why I was asking. Hang in there and I understand too how this condition isolates us. I wish there were more concrete answers and direction.