Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-18-2009, 01:37 AM #20
hope4thebest hope4thebest is offline
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Join Date: Jan 2009
Posts: 305
15 yr Member
hope4thebest hope4thebest is offline
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Join Date: Jan 2009
Posts: 305
15 yr Member
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Hi Dennis,
Yes, the irony would be *Larry David-ish* if your letter circulated amongst the doctors, and there you were with an unrelated medical need! Write the letter anyway, though, and keep it just to fuel your search for competent RSD care.

Better yet, if at all possible, can you pay another $10 co-pay and go back to him with a binder in hand full of supporting documentation, articles, research reports ( print out some or all of fmichael's links and include them!)
to educate him that your condition cannot be simply dismissed with his inadequate diagnosis (diplomatically, of course..)

His saving grace is that he did suggest meditation, but he went no further than that.. By the way, I just completed a MBSR class, that has helped me immeasurably and will continue to help in years to come!!

I am trying to curtail any high expectations, but I FINALLY have an appointment with a neurologist at UCSF Medical Center at Mount Zion Pain Management Center at the end of the month. (Dr. Rowbotham)

(The only neurologist I have seen in the past told me that "CRPS doesn't spread, that's why it's called regional......." duh...
I never returned for my follow-up appointment..)

I am *reluctantly* allowing myself to hope for miracles with Dr. Rowbotham's findings, or maybe just some new and innovative ingredients in any future lumbar blocks...or a suggested lidocain infusion...or bier block to the foot..something, anything..

My previous and 'assigned' pain management doc wasn't even an anesthesiolgist, and I fear that I have lost valuable time.. such as 1 to 2 years!!!)
I researched the net and found Dr. Rowbotham's name on my own..

All this said, Dennis, I hope you find a doctor-partner who you can respect and who will partake in your treatment with respect for you as well..sometimes it seems that searching for the ideal doctor is like Don Quixote chasing windmills..

I hope your apointment with Dr. Luc Jasmin brings you new beginnings and intelligent insight...... (I was born in Montreal, too!!)

I won't give up...has anyone sought out a shaman??
Hope4thebest
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