Hi and welcome, Denise,

Yeah, we've had a very few people on this and the previous board who have had a remission; thing is, once people have gone into remission they aren't usually here to tell us about it (fair enough, if you can just get on with life, good on you!) but sometimes they do. Maybe someone will pop in; and sometimes, like Lisashea, they found it was a pinched nerve instead, or something mechanical (and so fixable) all along... seems it can happen, just doesn't very often.

Hope we can help you some, thanks for sharing your story with us,
all the best

So you do have pain when the barometer changes??!! I live in Palm Springs and have been thinking about moving to Colorado where I have some family who can help me. Maybe a cold climate isn't a good idea!

But I have found that air conditioning causes me MUCH pain, but when I'm wearing a jacket in cold weather I'm OK.

How long does it take you to recover from a "barometer change"?

[QUOTE=dreambeliever128;55877]Through lots of work I am in remission in my arms and hands. The only time I see the RSD flare up is when the barometer changes and then no meds on earth helps with the pain.

Hi Ada!

Thank you for the "welcome"! You all sound so encouraging. I really appreciate this group!

I guess I didn't get my response to you correctly yesterday. I live in Palm Springs area & due to "work comp finance fiascos" I've been trying to get moved to Colorado where I have a sister. But she has Fibromyalgia & she's having SEVERE problems due to the weather...in particular...the barometric pressure (at least that's what she thinks it is).

Until I saw your note I didn't know RSD may be affected by it. Hmmmm. I'll have to think about this move!

I'm sorry about your fingers spasming. My hand curled up one time after I had to move to a new place, then had no one to help with my dishes, etc, so I think I over did it. But I kept doing gentle exercises to straighten them out, and eventually it stopped. I hope that's all you have to do.

Have a great weekend!

Denise

Hi,
Just wanted to drop in and say that I do know of people in total remission( me and 2 others who used to come to the braintalk forum). I had pinched nerves in my ankle and once my chiropractor made some adjustments to my bones and I did 2 yrs of intense rehab, I am back at work fulltime and feel incredible.( to me, incredible means no rsd pain or symptoms)

The other people I mentioned got better using HBOT. One was a dancer. I think her name was DancerJen. She was young, in her 20's, and I think was from California. She used to drop in now and then.

Then there was a gentleman who did HBOT in Florida twice. I met him in person a few years ago and he was back at work and functioning very well.

As for remission for short peroids of time, what I can tell you is:
1. I got remissions with HBOT and accupuncture.
2. I know someone whose pain went away from a Laser therapy earlier this year. She had about 15 treatments and felt great for the first time in years. No pain. Then the sales rep took the machine out of her doctors office and disappeared! Her pain is back and her doctor is trying to buy a machine so she can use it again. I think it's called "cold laser".
3. I know another person who I did HBOT with that has had periodic remissions since 2002. It seems to be a rollercoaster ride for her but after 6 yrs of being diagnosed with RSD she is working partime and off of all meds.

I also have just recently been connecting with someone in Canada who had surgery to un-entrap some nerves in her ankle. Her RSD pain is now gone but she is just beginning the rehab process and it is very difficult. I found tons of studies on the internet that talk about nerve entrpament being the cause of rsd symtpoms so I know there are many, many people who experience what I did or the studies wouldn't be around.

So... there are people out there who have had remissions and total remissions. Maybe few and far between but if I can be one of them then SO CAN YOU!!!

My advice is to keep searching for the answers to your particular problem. We are all different so each of us may have there own individual solution to the same symptoms.

NEVER GIVE UP HOPE!!
Peace,
Lisa

My chiro uses a cold laser { also called low level laser or soft laser} for my TOS, CMP and C spine pain.

Denise-quote
[When I was injured at work it caused a RCT, stretched/torn ulnar nerve, severe sprain of my wrist (all on the right side), and a slight buldging disc in my neck which is causing neck pain and sometimes SEVERE headaches. No one diagnosed me for so long. Then, my left hand and arm began to hurt and turn colors also and I was told I developed CRPS II (and possibly TOS).]

Ahh - that's what i was wondering if you might have some TOS type of sx also - those could be what is flaring for you.
We have a TOS forum here too- you should visit it - quite a few have RSD & TOS -
but don't cross post in both forums due to limits of arm use.

What is TOS? I am confused!


And--- welcome here Denise!!

Vanessa,
TOS stands for Thoracic Outlet Syndrome. Just go down to the bottom and go to the area where you pulled up the RSD website and scroll down until you come to the Thoracic Outlet Syndrome site.

I am not a good explainer of TOS, I just live with it. I've always been one to say next to the RSD it's the second syndrome closest to hell.

It is nerve impingement in the thoracic area. I have had a rib removed on the right side to make room for the nerves to spread. There are 3 kinds of TOS and luckily I only have the neurological. There is definatly no cure. Surgery only sometimes helps. The surgery can also bring on RSD. That's how I ended up with the RSD.

There are a lot of good people over there and they will help you with any answers you might need on it.

Sorry I'm not much help but as I said I live with it but I can't explain any of it. LOL

Ada

Hi jo55!

Thanks for your note. I'm going to try to find out if work comp would pay for laser therapy.

Just wanted to explain I never had surgery for TOS. But when I broke a finger last summer (I don't have any insurance) my work comp doc tried to set it in his office (for free!!). He said I really needed surgery, but an operating room would cost $20K. It didn't "stay" and now my finger is crooked.

But I learned NEVER to do anything like that again! The flare it caused was horrific! So, unless I'm dying, I don't want my RCT repaired or any TOS surgery. Actually, if I have TOS, it's not that bad! It's just from spasms or something.

Denise

Hi Lisa!

Thanks for your encouragementand info! Even if I'm not in remission, I just appreciate feeling better....at least for a large part of the day. I'm going to try to look into that laser treatment. Sounds good.

I've been seeing a Chiro since almost day one of my injury, way before anyone told me about RSD. From what I've been reading the last couple of days I believe that is the reason I never developed the EXTREME sensitivity to touch that many RSD patients have. I have never been able to tolerate breezes, but clothing and touching doesn't bother me.

I just wrote Vanessa about Mannetech Glyconutrients. I really do believe they may have helped me come out of this latest flare so fast.

I'm so glad to hear you are doing so well. I would love to be able to work part time, but I rarely have a consistent night with being able to sleep due to the pain when I cut back on Lyrica. But when I take enough Lyrica to sleep my brain goes dead!! I get my words all mixed up and people look at me like I'm stoned!

Oh well! LOL

Have a good weekend,

Denise

[QUOTE=VWBeetle;55802]Remission ? Nope , not during the 4 years I have had RSD . I have never read about a total remission either but if so , sounds hopefull .

Hi VW,

Thanks for your note. I've just read a note from Lisa and she says she knows people who are doing great!

I think I was a little bit in denial about being "In remission". But I wasn't in 24 hour pain and wasn't even taking Lyrica...so it "felt like" a remission or something. But the pain still gets sooooo bad at night.

Hang in there! I appreciate all the encouragement!

Denise