Pls.... keep my drs and me in ur prayers as I'm trying 2 get a diagn of RSD spreading into my left foot/ankle. as much as i hate 2 say it, the monster IS spreading - i just need 2 get my PM dr 2 write it officially 4 W.C.! as most of u know, i broke my left wrist at work april 08. when cast came off, had developed RSD. has spread up left arm/shoulder. and has appeared in my left foot - now i'm walking w/cane! my PM dr. needs 2 understand! pls say a prayer ........ my appt w/him is tomorrow! thks 2 all of my RSD friends! Comments welcomed!

Hi Nancy
please read James5:13-20
God is always with you, and as for what will happen,,,please read lamentations 3:37
God will work all this out,, and while your in his word, dont forget to read proverbs 3:5-6
I will Lift you ,, and everyone up tonite,,,God is good,,Be strong,,what i do before i walk into the dr office or while im sitting in the exam room waiting on him to come in,,thats a really nice time to pray and talk to to the Lord,,,,he is my all and all,,lets us know,what happenes,,holler at me anytime,,,,,your brother in Christ Jesus our Lord,,,,,,,,,,,bobber

Dear Nancy,
When you see your doc tomorrow, I hope he has good news for you that it isn't RSD....
If it is, my heart goes out to you, because RSD in the lower limbs, presents challenges with mobility, and you already have a preview of what those are, as you are wallking with a cane..

Nancy, I hope your doc is able to accurately and compassionately give you a correct diagnosis..if it is RSD, then W.C. needs to have that diagnosis added to your claim.
You'll be in my thoughts tomorrow and whatever the outcome is, we'll be here to listen and understand.
Hope4thebest

Hi Nancy,

You'll be in my thoughts. Please let us know what the dotor says.

Courgage

You are in my thoughts too and I hope the doctor apt goes well and gives you some direction.

Dear Nancy,

My RSD started in my shoulder and spread upwards through my neck to my head after a series of trigger point injections last summer. I was diagnosed in June of 2008. I suffer from horrific head pain. My shoulder and arm still hurt a lot too.

Then last winter I had a terrible time with my feet, but it was intermittent. I walked on them ALL THE TIME. They hurt terribly, and would go numb (and it was also very cold up here in southern NE), but I continued to walk about 5 miles every day. Finally, in the spring, the spread of the RSD was confirmed in my right leg, but my feet and ankles continue to function OK. They do still hurt at times, though, especially when I first get up in the morning and at night when I'm tired. And at times my right leg is very swollen and changes color, it also has bad varicose veins which it really never had before. They were there, but not at all like they are now. Right now my leg is killing me and I plan on taking some meds soon and then napping. I have had 3 Lidocaine infusions since July which helped my leg a lot, and a lumbar block.

I don't at all want to give you false hope. But intensive therapy is used to rehabilitate some RSDers. And that is what I was thinking last year when I walked and walked and walked on my painful, numb feet. I still have the bad, ugly leg, but I haven't lost my mobility yet. It is likely to my advantage that my original injury was to my shoulder, not my foot, so that I didn't have to learn to walk on my surgical site where the RSD started - I can't even imagine how painful that would be.

Good luck to you, and try to keep moving... Sandy

I pray for everyone on this board every day. Even though I don't know some of you and I know there are people "lurking" and trying to figure this crazy disorder out, I pray for you. This board always makes me warm and fuzzy and whole.....You are certainly in my prayers!

I'll be thinking about you and keeping you in my prayers, Nancy! I know how hard it is when this monster spreads. Mine started in my left leg and then spread to my right arm after another injury and to the left arm at the beginning of this year. Thankfully, after ruling out everything else, my Doctor has always realised that it was RSD as it was so obvious but unfortunately, no treatments have really helped so far for me.

I hope you can get your Dr to see sense and get the help and treatment you need!

Please keep us posted!

Thks 2 all of u 4 such encouragement! OK, saw my PM dr...

discussed getting ganglion block 4 my arm. i just hate having that needle so close 2 my c. artery! especially, if relief is just temporary....

what really got me is NOT that he doesn't think my foot has developed RSD but that it's not RSD because "that's so uncommon"!! i tried 2 discuss research of spreading, etc. BUT all of that is so rare!! i just wanted 2 tell him he's clueless and 2 go read!! AHHHH

but i'll try 2 get a grip & calm down! i do have all of you

Dear Nancy -

Forgive me, but I just got off the boat, so to speak. Do you have any choice as to whom you see as a doctor? Can your attorney advise you in this regard?

I ask because much may turn on a prompt and proper diagnosis (legally for sure and perhaps medically as well) and yet it doesn't sound like you'll be going anywhere soon with this guy. Oh, and as to the "rarity" of spread, see, "The Natural History of Complex Regional Pain Syndrome," Schwartzman RJ, Erwin KL, Alexander GM, Clin J Pain 2009; 25:2 73-280, full text at http://www.rsds.org/2/library/articl...lexanderGM.pdf at p. 275 (at least 92% of respondants, among people who had had CRPS for at least one year, reported some form of spread, with 35% reporting pain having spread through their entire body). Not that the guy was even open to reading what was in front of his face, figuratively or literally.

God's speed to you,
Mike