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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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09-18-2006, 12:31 PM | #1 | |||
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So great to see so many familiar friends. How I have missed you guys. Things have been crappy for a while and I am counting on the forums to bring me outta the dumps. I now have neuropathy in both feet and legs as well as diabetes, RSD throughout my body. Walk with a cane. I can't sleep at all anymore because of severe myclonic jerks (does anyone else suffer from these?) I feel like Raven from the Exorcist! Thrashing and so forth when I'm in bed. I'm on so many drugs now I hardly eat because the pills fill me up. Literally a handuful of pills three times a day with a glass of water and I'm good to go. Pretty sad when all you want for your birthday is a "HoverAround"! Hey lets all buy one and meet at the Grand Canyon! I have now applied for SSDI and pretty much lost my job which has broken my heart. But I could be so much worse off. So we will all stick together and get through each day! As always!!! CHIN UP!!
Mark P.S. Welcome all new folks to our dreaded world! |
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09-20-2006, 08:24 AM | #2 | ||
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Mark, Mark, Mark.... how I have missed you and your "chin ups"! LOL.... but anyway, I wanted to tell you how sorry I am that you have had some more problems and about your job! I don't know how you continued working as long as you did with all you went through with the SCS and the taxi accident and all! I just want to say hi for now... I am going to write a nice long post later about how I've been doing and what I've been going through so I won't bore you with the details right now! Just know that I am so glad to see you here and hope that we'll hear from you whenever you can! Miss you!
(((((HUGS)))) Kari |
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