Janet
Holler away,,everyone is wired differently,here,,you are welcomed,,ask anything that you want and have fun doing in life what ever you enjoy,,Im on board with you at being instores,,like walmart,,i just had a THR done,,i done need any shopping carts whacking me in the hip,,,,,,,ouch,,but i still need to get out of the house,,i enjoy working with my hands,auto mechanic,,but mostly i sub myself out as a machine man,,,more tedious,,i seemed to be attracted to it more,,more headaches,,but,,it keeps me moving,,i wish you and evryone here a painfree day,,,,,,,,,,,,,,much love with prayers ,,,bobber

You upset someone? No Way!
 

Dear TiredofPain,

Hon, you do not upset people. People just get busy or, like me, they retreat and stop posting when their depression, or their back pain [from the computer chair] gets too bad. We have monitors that keep out offensive posting here, so you don't have to worry about it. God Bless You, My Dear, and I hope I have not offended YOU! Caring About Your Feelings ~ billie

Youve not upset my feelings at all.
Hi Billie,
I know how easy it is to be depressed, especially when I hurt really bad---I just want to curl under the covers--as best I can & shut out the world. The computer is right beside my hospital bed or I wouldnt be able to be online at all. Hubby moved it over when I got my bed---which it is easier to post & stuff, so Im really glad that he did that for me. Hubby is from Texas---he grew up in Hitchcock---do you know where that is?? Im really glad that I didnt upset anyone, because this place is the only one that Ive found where people know the kind of pain that Im in constantly---I appreciate you saying that though---it really does mean alot to me. Well Billie, its a high pain day for me because of the rain so Im going to say good night to all & I really hope that someone had a pain free day--they are so far & in between for me. Hope to hear from you again. Sweet dreams to all. :)Thanks for caring about my feelings--that means alot. :hug:
Janet

IMHO You have the wrong PM doctor. U need a Doc that specializes in RSD, or at least one that knows more than yours seems. Your body naturally builds up a tolerance to opioids, so eventually it wont help as much, not to mention RSD is a permanent and progressive disease, so it basically gets worse as u have it longer (most of the time). As far as the Doc pressuring you or telling you that u HAVE to have the stimulator, u need to tell him to shove it. YOU are the ONLY person who makes the decision for that ,and DONT LET N E ONE TELL YOU WHAT TO DO! You can ask peoples opinions, but its up to u. Your Doc may just be looking for another quick pay day. My Doc says the stim is the next step for me, but from doing alot of research online and talkin to some people Id say just from my research, 80% of the people who have had it implanted have had to have it removed for 1 reason or another. So for me what may as well be a heart transplant with an 80% failure rate aint gonna cut it!

Hi Raging Inferno,
I KNOW I have the wrong PM doc & I KNOW that hes an IDIOT. I also KNOW that he sees me as a PAYDAY!! The only problem is that Im having a problem finding a good one that takes my insurance. I had a doc years ago for my rsd--he said that the SCS wouldnt work for either that or my back---but this doc is so full of you know what C--- that he thinks that hes going to get that 30,000. Im still looking for a new PM & WILL NEVER give up until I find one. Love your comments. My PM doc told me that he had over 80% success rate with the stimulator. Which if you read just one article on the internet then you know that hes LYING!!!! Even though theres no rain on radar its been raining here all morning so my pain level is pretty high but I really wanted to answer you. Thanks. Janet

Quote:
Originally Posted by rsdfree
Just an afterthought. Dr. Rhodes does testing that objectively indicates that you are in pain. Who else knows how to do that? You can't see pain. If your limb is not swollen or purple or black, and believe me, even that is not enough to convince some doctors that you have a problem, then most doctors have no way to determine if you are really hurting. Dr. Rhodes does. Not only can he test you for pain, but he can tell you through follow up testing if his treatments are reversing your nerve problem. This doctor is w-a-a-a-y ahead of his time. Or else everybody is way behind. Dr. Rhodes is one of those genius pioneers who is forging a trail for everybody else. One of these day he will be a household name.


Mrs. D,

I agree with what you are saying. Unfortunately, there is no real objective test for pain. For proof of that, go to the courthouse and see all of the people suing for accident injury. There is a whole law field built around them.

Some accident victims are truly in pain, and others are simply looking for that big paycheck. It is up to the jury to decide who is telling the truth. There are plaintiff’s attorneys, defense attorneys, private detectives, plaintiff’s doctors, defense doctors, and “experts” of all types. All of this to either prove or disprove that a victim is in pain.

PLEASE, everyone – don’t think I am saying anything against people who sue to get their just due following an accident. Those who are injured should be compensated. My point is that there is no 100% guaranteed test to show a person’s pain and how severe it is. If there were, such lawsuits would be easy to settle.

Our doctors (just like the justice system) have to rely on what we tell them. We can help ourselves the most by being honest about our pain and not exaggerating. An accurate description, including defining your personal 1 – to – 10 scale, will help the doctors to understand just how we feel.

Mike

We need a machine
 

My husband says they need a machine you could hook up to the doctor and they'd be able to feel exactly what we feel. He thinks they'd all drop dead from the pain. I agree. Why are they all so worried about addiction? I'd rather be a functioning addict then what I am with all this pain.

Yet they all roll their eyes thinking we're exaggerating or we're trying to get more meds or we're somehow playing them. I wake up in pain, I go to sleep in pain and I will probably die in pain.

And until the DEA and other idiots are taken out of the doctor/patient loop we'll continue to have problems convincing our doctors of the level of pain we have. Or until we have the machine........How many doctors would:winky::winky::winky: continue to tell you "You'll need to learn to live with it"

Here's a suggestion, that I think I've posted before, but I find it useful.. Unless I'm just feeling too badly to do it... And, my doctor understands that! I'm lucky, that I have a great doctor, who has known me since the early 90's.

Keep notes, (or your pain journal), a WP document, short and sweet.
You can edit it as you go,
but, you print it, and hand it to your doctor. It's saved on your computer, and Now, it's part of your doctors file!
Do that every visit if you can, and make note as to what has improved, what hasn't, what's new, etc.
This way, You'll be creating your trail of 'bread crumbs'.
(If you ever need to change doctors, you can reprint them, and give them to him/her).
Be sure you date them.

Your doc will have your own words (and records, with his) to refer to, whenever he needs to write a report, for instance.

This has helped me a few times, when I just felt so badly, seeing the doctor, I just wasn't up to talking much.

If you get a Dr. that's say, like mine a Neuro / Ph.D, they can tell by looking at you, how you respond, like that. (BTW, That's a good way to find a GOOD neuro! Check to see that's he's got some letters behind his name, in other words, he did some extra schooling).

Nobody should have to ask for meds, in todays world. But, if you're with a dr. that doesn't know you well, or, worse, doesn't know what he's doing, or about this disease, and is worried about his license....... it can and will be a problem.

Good Luck!

Pete

Dear Janet
I like the cattle prod idea,,,,,Their isle 14 in walmart for $27.50 Prod away,,,,,,God bless you janet ,,bobber

Yea,, you're right Bobber!

Walmart would be a more welcoming place if more of us had an 'iProd'!

Come to think of it, that would make places like public shows (music, etc.), things that we don't do any longer, more "accessible"....:winky:

pete

Hi Pete,
I agree with you that it would make things better if we could all have a "prod" with us---people might be a little more careful of where they are "walking"----if you know what I mean. Its pretty bad when the "employee's are the worst ones at doing it. I would think that they would atleast say that they are sorry---but nope--they just back up & go around. Atleast now the rain is gone & Im back to the "normal" pain that I have. Isnt it bad to say that Im back to the "normal" pain--if there is any such thing as this pain being "normal". Had a new home health agency come out to the house today & they are sending someone tomorrow to give me a bath---Im looking forward to it.
Well thats about all I know for now. Hope that you had a "pain free" day---or atleast as close as we can get to a pain free day. :hug:
Janet

Hello again everyone,
Just thought that I would post a quick note saying that Ive been doing some research on google to see if there are any other pain doctors around here that I might be able to see & there are alot of them----I just dont know if they take my insurance or not. I was going to have my nurse case manager look into them for me but its rained here all day long so I havent felt like talking on the phone but she is the first phone that Im going to make on monday.
Hopefully she will be able to find one that takes my insurance & is taking new patients----I just want to get away from the idiot that Im seeing now. I havent even seen him---I see his staff & they arent very helpful at all.
I hope that ya'll are having dry weather---its supposed to rain here until sunday afternoon. We were even under a tornado warning earlier but its passed---sure am glad of that. Hope that someone is having a pain free day or atleast as close as we can get to that. ;)
Thats about all I know for now, so I will end for now, but hope to hear from ya'll soon.
Janet :hug:

Evening everyone,
I know that this has nothing to do with what this topic is about & Im sorry about that. Its been a very very sad day here today. Our beloved Smokey died this morning & it just doesnt seem the same without him around. It just feels so empty here. He was the very best friend that a person could hope for or have. Its all I can do to be in the house now because it has the smell of death. Hubby steamed clean the carpet but the smell still isnt gone, its not as strong as it was this morning but it still lingers.
A friend of ours came over & helped dig the grave---which we really appreciated. Im not even sure why Im telling you all this---I just needed something to occupy my mind right now. I want to thank you for letting me say my piece, it really means alot to me.
I hope that someone is having good warm weather---I think that we're heading into winter----neither one of us wants it to be here yet. Here's hoping that there are better days ahead. Thanks again. I really dont have anyone else that I can talk to.
Janet

(The following was directed to me. I don't know how to make it appear ghosted so that readers know it is a quote. Sorry. My answer is below.)

__________________________________________________ ____________
His machine is FDA approved for the treatment of pain.

He has conducted some small studies, some that he funded himself. Those are described in the book. He has been published in medical journals:
1. Podiatry Today, November 2000, "RSDS, disgnosis and successful treatment" and
2. in the American Journal of Pain Management, 2002 Jan; 12(1):31-34, "Effects of Sympathetic Therapy on Chronic Pain in Peripheral Neuropathy Subjects."
In addition, he has spoken at many seminars.

Large scale, double-blind studies require a lot of money, and it usually goes to institutions, not to lone doctors with a non-profit organization to accept the funds. He does have grant writers looking for funds.

Patients usually arrive with a diagnosis from other doctors they have seen in their efforts to find out what is causing their pain. He bases his treatment claims on his small studies and on the thousands of patients he has treated for the last 17 years. He never says "cure." He says "remission."

* "electromagentic stimulation of the nervous system" or variations thereof can lead you to all types of info about the efficacy of this kind of treatment for various nerve conditions. There are all types of small scale studies that I found and one lengthy discussion released by a university in the form of journal article about using this type of treatment and the positive results. However, it apparently has not been followed up by those who did those small studies.

I hope this answers your questions.

(Below the line, I respond to the following comment.)

__________________________________________________ ______________

The tests check for circulation, the lack of which causes pain. You can almost instantly check this out yourself. Wrap a rubber band around your finger so it cuts off the blood supply, and your finger will turn purple and hurt. Lack of blood and oxygen cause pain.

Tests include:

--standing on a black thermopad that registers the warmth of the soles of your feet. If, after you step off, the pad is still black, your feet are too cold to have proper circulation. If the pad turns lighter colors, your feet registered circulation.

--taking the temperature of the pads of both thumbs and the bottom of both big toes. Research shows that the body's left and right plantar temperature should be within one degree of each other and should be in a specific range, just as the internal body temperature should be within a certain range. If the readings are off, you have a problem.

--testing your nerve conduction by placing electrodes on each toe of each foot, running a mild electrical charge through the electrodes, and noting the intensity of the frequency before you feel any tingling. High numbers mean your nerves are malfunctioning, which causes nerve pain.

--taking your blood pressure on each arm and each ankle to determine the difference in the readings. If your ankle readings are different from the expected difference between the arm and ankle, then you may have a blockage that makes your feet too cold. If not, then foot pain is most likely caused by nerve problems.

--taking x-rays of the feet to look for subchrondal cysts. These are cysts that result from lack of proper circulation that eats away at bone. Bone needs a good blood/oxygen supply to stay healthy. If you have these cysts in your feet, you have them in other places in your body.

These tests add up to a clear picture of whether you have chronic pain. When the body begins to heal, and that can take time, the above readings begin to change. Periodic retests indicate whether the treatment is working, sometimes even before the patient's subjective pain level drops. When it begins to drop, the above tests become even more normal.

Yes, the goal is to reach millions of people. There is something in the works that is a step in that direction. Everything takes time and research and development money. As I said before, grant writers are busy trying to find those funds.

Hi Janet,
 

I am so sorry to hear about your Smokey. Losing a pet is so hard on us. Bill's dog died about a year after he did. We had a hard time dealing with it. The kids had gotten him the dog so my Grandson's had a really hard time with it. Devin had Scooby's picture on his cellphone for a longtime. They are part of the family.

As far as the chair, I am so glad you got it. I do want to mention that when you go outside, make sure you have your phone or cellphone with you. My daughter takes care of a friend with MS and she went outside in her chair, got hung up in a big ditch and sat there for over 3 hours until Susan got there to find her. They don't always go where people might think they will.

As far as Drs. I have seen more then my share too. I donot like PM Drs. at all. I realize some people have good luck with them but I sure didn't and won't go to another one.

As far as my timezone. I think I am an hour behind Tennessee. I talk to Carrie and she told me that. Ky. is 2 hours ahead so I thought it was different that Tennessee is only 1.

It's cold here girl. We are breaking some records. It is suppose to warm up to the 60's here in the next few days though.

Don't give up on trying to get the help you need. You will finally find that right Dr.

I did want to say too about the SCS. Don't let a Dr. tell you that you have to have the SCS if you don't want it. Don't hold back on your pain level just to keep him from pushing it. I would just sit down with him and say, this is how it is, I don't want the SCS even though my pain is through the roof. There are other things out there that I am sure he hasn't tried yet. There are too many Drs. out there to have one push something on you that you don't want.

Ada

Hi Ada,
I really want to thank you for your kind words about my Smokey---it really means alot. My grandsons would lay their heads on him when they would come over. Its just like loosing a family member---he's been here so long that there isnt a time when he wasnt here. This is really hard.
He was sick for a couple of days, & he had arthritis really bad, but the strange thing is that he looked so peaceful when he went---like his suffering was over & he could run again. Im happy that hes not hurting anymore---& I know what Im going to say sounds selfish but I want him back. I hated to see him hurt, but he was our "baby" & it just doesnt seem right ---him not being here to eat with us---if you know what I mean.
It took me a long time to find a pcp that actually cared about you as a person, but I found one that is really great, I just wish that she was able to give me the meds that I need for the pain. I did find another doctor thats in Knoxville so hopefully they take my isurance & I can get away from the one that Im seeing now. I havent actually seen the "doc" ---its been his staff & I really dont think that they know what they are doing. I had to see their shrink about the SCS surgery & I showed him all the information that I had gathered & no matter how hard Ive tried to show it to the doc---he doesnt give me the time to do that. Ive even had it on the table & he just ignores it.
He doesnt want to hear about my pain---he wants that 30,000---thats all he wants to hear---thats why Im trying to see someone else.
Ky is one hour ahead of us---thats the eastern part--I dont know about the rest of Ky. Im in central time. Carrie is the one that is trying to get her doc to see me, so Im praying that shes able to do that. But if not---then Im going to see about the one in Knoxville. I just want a doc that is going to listen to me. I dont want the pain meds for the high---I just want a life where I dont hurt like this.
Ive only gone down my driveway with the chair but hubby normally goes with me---Ive only gone down twice by myself but there are people near by in case I get stuck.
Thanks again for your kind words---they mean so much.
Janet

Sienna...Listening vs NOT Educated
 

Physicians, no matter their education or lack of do not have patience for CRPS patients. Its easier for them to write an RX. Too bad they cannot be honest & say, "hey, let me research who would be the best pain management physician for your condition". It's maddening & undeserved.

The Dynatron STS is classed as an inferential therapy device:

http://docs.google.com/gview?a=v&q=c...Y8MnrZ7YwJ3y3w

No mention about "cure".

more here:
http://www.dynatronsys.com/html/faqs.htm#6

Inferential therapy is available at most physical therapy rehabs.
I had it done for a tendon injury.

Hi,
 

There isn't a cure for RSD no matter what the treatment. It can go into remission but I don't believe anyone is cured from it. There are a lot of things approved by the FDA but it doesn't mean they cure things.

Ocelyn, you were talking about Drs. checking out other Drs. to see which might be the best for us, I don't believe they would know who is the best no matter how long they talked to them. It's up to us to find that right Dr. that will do what we need done for us. From what I have seen on here, it's sure usually not the first one we see either.

I spent years on the TOS forum also. On BT and NT. Glad you are joining us.

Janet, I hope Carrie can help you. She seems to do pretty good with the pain pump and two little ones to chase after.

Ada

Hi Ada,
I really hope that Carrie can help me too. I want a "real" doctor so bad that I can almost taste it. I did find another one just in case it doesn't work out with the one that Carrie is seeing. He is my first choice though, but hopefully the other one that I found will have the capability to listen to what I say. It would be such a switch from what I have now. I should find out whether or not Carrie was able to use her pull somewhere around the 5th of November---thats when she see's her doctor. Im going to try to have to one that I found lined up for shortly after that -----just in case. I see my PM doc on the 2nd of November. I just want to make sure that I have enough pain meds while I try to find myself a "real" doc. Thats going to be soooo nice. ;) Something that Im definitely not used to. It shouldnt be that way---but it is. Unfortunately!!
The rain is getting ready to hit again so its not going to be a good couple of days around here. We dont like the rain around here. Hopefully we wont need to think about building an ark--the last bout of rain we had---it was definitely a thought. :) Hope that you arent going to get any of this rain. It just increases the pain level-----way up there, if you know what I mean.
Thanks again,
Janet

Hi all,
I know that this might sound a little strange, but thats me. Ive been told that Im not normal. ;) I have a question & Im hoping that someone might know the answer. I was wondering if it was at all possible for the crps to go into the ribs. My ribs have been hurting now for a little over 2 months. I was in my manual wheelchair & the kitten thinking that the wheels were a play toy---so I leaned over to get her out & ever since then, my ribs have been really hurting. I cant take a deep breath & coughing hurts more than you know. My PCP took an x-ray & they arent broken or anything like that, but they still hurt.
I have an appointment with her on monday to see if she can order another test to see if anything shows up, I was just wondering if any of you might know whether or not its a possibility of it spreading to my ribs. Sure would appreciate any & all answers. Thanks. ;)
Janet

Hi everyone,
Sorry that Ive not said anything for a couple of days but I had a really bad night on wednesday & all day thursday. I was up all night on wed. from the pain of having to ride in the car in the rain to hubbys appt. because I cant get my sister to leave her "tv" to come sit with me. I cant be left alone at all & she knows that---but tv is more important that I am. We've tried telling them to leave the mail in the box that I will be getting it--but that doesnt work. Brother in law still gets it---no matter how many times we tell him to LEAVE it for me. But then they think that taking a advil for this kind of pain really takes it away--no matter how many times we've told them otherwise.
I dont know what its going to take for them to stop getting out mail--asking them not to doesnt work, getting their mail---doesnt work. The day after I got my jazzy---we were on our way down to get the mail & was less than 2 feet away & he (b-i-l) still got it & handed it to me.
Ive been confined to the front porch for over 2 years---I dont know why they dont understand why I would want to get my own mail or why I want to even leave the house.
Sorry for rambling---its just been one of those days.
Believe it or not they are calling for snow flurries here for tomorrow morning & its already colder than it was this morning. Well I hope that ya'll are having good weather & are having good days. Hope to hear from you soon.
Janet
P.S. Hubby got a fire going in the fireplace. ;)

Hi Janet,
 

I have been told that I'm not normal also. I had a wonderful PA for the first 5 years of my medical issues and he told me that I would make a great College study.

As far as the ribs, I have pain in my right rib area. I have been told it was RSD and scar tissue from having my gall bladder removed and from having shingles years ago.

I don't think anyone gets the gist of how much pain we are in. I was just telling Diana that. I don't think the pain we deal with is explainable to the extent we need it to be somehow. If that makes any sense.

I hope that you start feeling better and that you get to see a good Dr. here soon to help you through this. It's sure not something we can seem to get through with Advil like your family is thinking.

Maybe you could let them read some of what we all write on here and it might help them understand.

Ada

Hi Ada,
Its good to know that Im not the only one that isnt "normal". lol lol Its good to be not normal, if you know what I mean. :)

I had my gall bladder out years ago also, all I know is that the ribs hurt & they arent getting any better. Its been over 2 months since they first started to hurt.

It helps that the rain has stopped---atleast for now. That definitely doesnt help the pain---as you well know. They said on the news last night ( I think) that out of the last 200 & some odd days that it has rained every other day & that there was only 5 days that we've not had any rain at all. YUCK!!! This is supposed to be the "driest" month for us, sure hope that it drys soon. :)

I hope that I get a good doctor soon too. I talked to my nurse case manager yesterday on the phone & told her that Carrie is trying to get me into her pain clinic, but I also gave her a name of another doctor that I found on the internet. Just as a "backup" & she said that she tried calling the doc but they are closed until monday.

I dont know if anything would get across to them how bad I hurt on a daily basis. Ive printed out different things that Ive found about pain & it doesnt register to them at all.
I truly thought that me telling them---not that they havent seen me this way for over 2 years that Ive not been able to do anything, that it would get through their heads that when I said that I wanted to get the mail that it would work. I mean who see you going to it & still gets your mail. He (b-i-l) said the other day that because it was "cold" that he didnt think that I wanted to go down there. Its like they are the "inspectors" of what we get. They even went as far as telling the "ups" drivers to deliver our packages to them---but I took care of that today. Im really trying to not to be difficult about the whole thing but it gets to a point that enough is enough. I really dont understand why they feel the need to see everything that we get. Maybe one day they will surprise me & leave the mail for us to get. Sure do hope so anyway.

Are you having warm weather? Like I said hubby has a fire going---its down right chilly here. BRRRRR!!!!

Hope to hear from you soon.
Janet

Hi everyone,
Just wanted to update you on one of the pain doctors that I was hoping to see. I found out today that he only deals with workers comp---so that definitely leaves me out.
I did find out that according to my nurse case manager there is another part of the insurance company ( I think) that will help me find a different PM doctor. She was sending them an email while we were on the phone this afternoon & she told me that they would be calling me back in anywhere from 24-48 hours. I told her to be sure to include the one that Im seeing now as someone that I dont want to see. Im really hoping that together we can find someone to treat me & who knows a little bit about what Ive got. Sure do hope so anyway. I will let you know when I hear something. Sure do hope that its good news for a change. I did find out today that I cant get a regular mattress for my hospital bed, so Im stuck on the spring one that I have until I can come up with the money to buy something on my own. Im still waiting for disability to do something. I dont know what they are waiting for to be honest with you because I checked their website & what I have is an automatic according to what they have on their site for me to get disability. I need that money badly.
Sure has been cold here--we were at 27.5 this morning & tomorrow is supposed to be close to that---but its supposed to warm up after about 10:00. Have a appointment with my PCP tomorrow afternoon---for my ribs. Well thats all I know for now. Hope that ya'll had a good day & hope to hear from you soon.
Janet

just an update
 

Hi everyone,
I saw my doctor yesterday & she ordered a bone scan for my ribs & its scheduled for friday. She also said that she was going to submit a request to my insurance company for the reclast injection for my osteroporis (sp). That way I wouldnt have to worry about taking any oral meds for it.
I hope to find out soon whether or not that can be done. Im really not looking forward to the bone scan---Ive had so many of them for the rsd years ago & for my newest bout with it. Its just hard to ride in the car & to get onto that small table that you have to be on. It will probably be late afternoon on friday before I will be back home again but if I find out anything I will let ya'll know.

Hope that ya'll had a good day & that it was good weather.
Hope to hear from you soon.
Janet

Referrals
 

Yes, ultimately it is up to us to choose the right doctor. That is an art that can't be described. A good fit just happens sometimes.

But we sometimes need direction. After 23 years, I still have not found a Milwaukee-area doctor who really knows about RSD. I would appreciate help from the many doctors I have seen over the years.

I currently have an issue with my left foot that I do not think is RSD-caused, yet the RSD must be considered in any treatment options. I would like to know who I should see. I have not been able to get my doctors to make a suggestion.

Fortunately, I have a few ideas of my own, and I am going for a second opinion next Monday.

Mike

2nd opinions
 

Definitely question things that don't add up. If it seems like your doctor isn't listening, get copies of all your records and get a new primary doctor. Or find a new specialist. Most insurances don't even question it when you try out a new doctor. They know it's to be expected. I went through 3 primary doctors in 2 years trying to find the right one. And now I have one that I absoulutely trust and one that helps and cares! Good luck!

Hi everyone,
Had a bone scan done on friday to see why my ribs are hurting so bad & found out---even though the dr doing the scan isnt supposed to say anything to you---that I have atleast one cracked rib, maybe 2. If Im not in enough pain with the crps---now I have the ribs to deal with.
Finished the ramp today---I didnt do much, hubby did most of the work--I just cut the boards---which didnt help the ribs any at all but atleast I did something. Am going to hurt no matter what I do, so I figured atleast doing something would make the hurt worthwhile---or that was my thinking at the time anyway. Sure am paying for it now though.
Hope that ya'll had a good day & good weather. Although it started out at 31.1 this morning---it warmed up to over 70 today.
Hope to hear from you soon.
Janet

Hi everyone,
Got the diagnosis late yesterday afternoon that I definitely have fractured ribs. My pcp called in a patch for them but its so expensive that I cant afford it so I called today to see if she can call in something else. Pharmacy hasnt called yet so I probably wont know anything until tomorrow. It just hurts so bad to breath & coughing is a definite no-no. It makes me want to scream.
Its rained today so the pain is intense anyway & the ribs dont make it any better at all.
The weatherman says that its not suppose to rain tomorrow so I sure hope that he's right---but the rain is going to be back on from thursday on. YUCK!! I really hate the rain as Im sure we all do.
Hope that ya'll had a good "dry" day & hope to hear from you soon.
Janet

Hi everyone,
Sorry that Ive not posted in a couple of days but I have been hurting really bad & I got the Reclast stuff that is supposed to help my osteoparis (sp) but all it did was make me sicker than a dog. All I did yesterday was throw up all day into the night & I dont remember anything that happened at all. I called the doctor that gave me the Reclast & they told me that they have never had anyone get this sick from it---but then again everyone else that gets this is up walking around also. Im glad that the reclast is only once a year because now I really dont think that I want it again---not after what it did to me yesterday.
I couldnt keep anything down at all. Hubby said it was like I wasnt even here---he was really worried about me.
Saw the PM doc on the second & he increased my perocet to 3 a day because of having fractured ribs, but said that it would only be for this month. I guess that it doesnt matter that they been fractured since September. Oh well will cross that bridge when I get to it. Am still trying to get another PM doctor but havent heard anything yet.
Hope that ya'll are having good weather & good days---as good as they can be, anyway. Hope to hear from ya'll soon.
Janet

finally
 

Hi everyone,
I got some really good news today. Im going to be getting private duty care. I really cant believe that I got it & I didnt have to fight to get it---which really surprised me because Ive had to fight for everything since this happened.
I will have a cna come in for 4 hours a day, 5 days a week & they will help me do the things that Im unable to do myself. I cant tell you what that means for me. I will still have the nurse come in once a week. I still cant believe that finally people are beginging to realize that Im not just faking this & they are going to help me.
Now if only the PM doctor would do the same, it would be really great. I dont see how they think that by adding just one more perocet a day is going to help me. 2 doesnt even touch the pain for the leg but one is supposed to help my ribs.
Hope that you all are having good weather---it rained here all day yesterday, so you can just imagine how badly Ive been hurting.
Hope to hear from you soon.
Janet