Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-13-2009, 03:26 AM #1
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Lightbulb

The Dynatron STS is classed as an inferential therapy device:

http://docs.google.com/gview?a=v&q=c...Y8MnrZ7YwJ3y3w

Quote:
Dynatron STS and Dynatron STS Rx received 510(k) classifications in May 2001 under the
classification name Interferential Current Therapy Device.
The FDA has indicated Dynatron STS and Dynatron STS Rx for “providing symptomatic relief
of chronic intractable pain and/or management of post-traumatic or post-surgical pain.”3
No mention about "cure".

more here:
http://www.dynatronsys.com/html/faqs.htm#6

Inferential therapy is available at most physical therapy rehabs.
I had it done for a tendon injury.
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Old 10-13-2009, 11:51 AM #2
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Default Hi,

There isn't a cure for RSD no matter what the treatment. It can go into remission but I don't believe anyone is cured from it. There are a lot of things approved by the FDA but it doesn't mean they cure things.

Ocelyn, you were talking about Drs. checking out other Drs. to see which might be the best for us, I don't believe they would know who is the best no matter how long they talked to them. It's up to us to find that right Dr. that will do what we need done for us. From what I have seen on here, it's sure usually not the first one we see either.

I spent years on the TOS forum also. On BT and NT. Glad you are joining us.

Janet, I hope Carrie can help you. She seems to do pretty good with the pain pump and two little ones to chase after.

Ada
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"Thanks for this!" says:
tiredofpain07 (10-13-2009)
Old 10-13-2009, 06:43 PM #3
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Hi Ada,
I really hope that Carrie can help me too. I want a "real" doctor so bad that I can almost taste it. I did find another one just in case it doesn't work out with the one that Carrie is seeing. He is my first choice though, but hopefully the other one that I found will have the capability to listen to what I say. It would be such a switch from what I have now. I should find out whether or not Carrie was able to use her pull somewhere around the 5th of November---thats when she see's her doctor. Im going to try to have to one that I found lined up for shortly after that -----just in case. I see my PM doc on the 2nd of November. I just want to make sure that I have enough pain meds while I try to find myself a "real" doc. Thats going to be soooo nice. Something that Im definitely not used to. It shouldnt be that way---but it is. Unfortunately!!
The rain is getting ready to hit again so its not going to be a good couple of days around here. We dont like the rain around here. Hopefully we wont need to think about building an ark--the last bout of rain we had---it was definitely a thought. Hope that you arent going to get any of this rain. It just increases the pain level-----way up there, if you know what I mean.
Thanks again,
Janet
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Old 10-14-2009, 06:50 AM #4
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Hi all,
I know that this might sound a little strange, but thats me. Ive been told that Im not normal. I have a question & Im hoping that someone might know the answer. I was wondering if it was at all possible for the crps to go into the ribs. My ribs have been hurting now for a little over 2 months. I was in my manual wheelchair & the kitten thinking that the wheels were a play toy---so I leaned over to get her out & ever since then, my ribs have been really hurting. I cant take a deep breath & coughing hurts more than you know. My PCP took an x-ray & they arent broken or anything like that, but they still hurt.
I have an appointment with her on monday to see if she can order another test to see if anything shows up, I was just wondering if any of you might know whether or not its a possibility of it spreading to my ribs. Sure would appreciate any & all answers. Thanks.
Janet
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Old 10-22-2009, 08:33 AM #5
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Default Referrals

Quote:
Originally Posted by dreambeliever128 View Post
Ocelyn, you were talking about Drs. checking out other Drs. to see which might be the best for us, I don't believe they would know who is the best no matter how long they talked to them. It's up to us to find that right Dr. that will do what we need done for us. From what I have seen on here, it's sure usually not the first one we see either.
Yes, ultimately it is up to us to choose the right doctor. That is an art that can't be described. A good fit just happens sometimes.

But we sometimes need direction. After 23 years, I still have not found a Milwaukee-area doctor who really knows about RSD. I would appreciate help from the many doctors I have seen over the years.

I currently have an issue with my left foot that I do not think is RSD-caused, yet the RSD must be considered in any treatment options. I would like to know who I should see. I have not been able to get my doctors to make a suggestion.

Fortunately, I have a few ideas of my own, and I am going for a second opinion next Monday.

Mike
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Old 10-22-2009, 08:58 AM #6
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Default 2nd opinions

Definitely question things that don't add up. If it seems like your doctor isn't listening, get copies of all your records and get a new primary doctor. Or find a new specialist. Most insurances don't even question it when you try out a new doctor. They know it's to be expected. I went through 3 primary doctors in 2 years trying to find the right one. And now I have one that I absoulutely trust and one that helps and cares! Good luck!
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