Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-22-2009, 08:58 AM #71
Sambouka74 Sambouka74 is offline
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Sambouka74 Sambouka74 is offline
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Default 2nd opinions

Definitely question things that don't add up. If it seems like your doctor isn't listening, get copies of all your records and get a new primary doctor. Or find a new specialist. Most insurances don't even question it when you try out a new doctor. They know it's to be expected. I went through 3 primary doctors in 2 years trying to find the right one. And now I have one that I absoulutely trust and one that helps and cares! Good luck!
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"Thanks for this!" says:
tiredofpain07 (10-23-2009)

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Old 10-25-2009, 09:45 PM #72
tiredofpain07 tiredofpain07 is offline
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Hi everyone,
Had a bone scan done on friday to see why my ribs are hurting so bad & found out---even though the dr doing the scan isnt supposed to say anything to you---that I have atleast one cracked rib, maybe 2. If Im not in enough pain with the crps---now I have the ribs to deal with.
Finished the ramp today---I didnt do much, hubby did most of the work--I just cut the boards---which didnt help the ribs any at all but atleast I did something. Am going to hurt no matter what I do, so I figured atleast doing something would make the hurt worthwhile---or that was my thinking at the time anyway. Sure am paying for it now though.
Hope that ya'll had a good day & good weather. Although it started out at 31.1 this morning---it warmed up to over 70 today.
Hope to hear from you soon.
Janet
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Old 10-27-2009, 08:05 PM #73
tiredofpain07 tiredofpain07 is offline
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Hi everyone,
Got the diagnosis late yesterday afternoon that I definitely have fractured ribs. My pcp called in a patch for them but its so expensive that I cant afford it so I called today to see if she can call in something else. Pharmacy hasnt called yet so I probably wont know anything until tomorrow. It just hurts so bad to breath & coughing is a definite no-no. It makes me want to scream.
Its rained today so the pain is intense anyway & the ribs dont make it any better at all.
The weatherman says that its not suppose to rain tomorrow so I sure hope that he's right---but the rain is going to be back on from thursday on. YUCK!! I really hate the rain as Im sure we all do.
Hope that ya'll had a good "dry" day & hope to hear from you soon.
Janet
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Old 11-06-2009, 06:28 PM #74
tiredofpain07 tiredofpain07 is offline
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Hi everyone,
Sorry that Ive not posted in a couple of days but I have been hurting really bad & I got the Reclast stuff that is supposed to help my osteoparis (sp) but all it did was make me sicker than a dog. All I did yesterday was throw up all day into the night & I dont remember anything that happened at all. I called the doctor that gave me the Reclast & they told me that they have never had anyone get this sick from it---but then again everyone else that gets this is up walking around also. Im glad that the reclast is only once a year because now I really dont think that I want it again---not after what it did to me yesterday.
I couldnt keep anything down at all. Hubby said it was like I wasnt even here---he was really worried about me.
Saw the PM doc on the second & he increased my perocet to 3 a day because of having fractured ribs, but said that it would only be for this month. I guess that it doesnt matter that they been fractured since September. Oh well will cross that bridge when I get to it. Am still trying to get another PM doctor but havent heard anything yet.
Hope that ya'll are having good weather & good days---as good as they can be, anyway. Hope to hear from ya'll soon.
Janet
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Old 11-11-2009, 05:55 PM #75
tiredofpain07 tiredofpain07 is offline
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Thumbs up finally

Hi everyone,
I got some really good news today. Im going to be getting private duty care. I really cant believe that I got it & I didnt have to fight to get it---which really surprised me because Ive had to fight for everything since this happened.
I will have a cna come in for 4 hours a day, 5 days a week & they will help me do the things that Im unable to do myself. I cant tell you what that means for me. I will still have the nurse come in once a week. I still cant believe that finally people are beginging to realize that Im not just faking this & they are going to help me.
Now if only the PM doctor would do the same, it would be really great. I dont see how they think that by adding just one more perocet a day is going to help me. 2 doesnt even touch the pain for the leg but one is supposed to help my ribs.
Hope that you all are having good weather---it rained here all day yesterday, so you can just imagine how badly Ive been hurting.
Hope to hear from you soon.
Janet
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