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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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10-02-2009, 03:20 PM | #1 | ||
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"Thanks for this!" says: | Mslday (10-02-2009) |
10-03-2009, 08:05 PM | #2 | |||
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Welcome to the forum, I'm sorry to hear you have RSD too. What are the side effects you experience from these two meds? MsL |
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10-03-2009, 11:34 PM | #3 | ||
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I'm on a combination of Neurontin and Elavil (Nortriptilylene's sister drug, for which i did try for a few weeks).
I've been on both for several years now, at varying dosages. Currently at 1200 mg of Neurontin and 40 mg of Elavil. I was off Elavil for about a month because I wondered if it was really helping or not-- and found out it definitely was. I think the combination is good for the allodynia (nerve pain) and stinging parts of RSD/CRPS, but doesn't do anything for the stabbing and throbbing. However, that was to be expected-- as both are geared towards Nerve pain. Side effect wise, I experience some fatigue and sleepiness from both the meds. I also experience some cognitive effects from the Neurontin; and when I was first started on Elavil, I gained about 7 lbs. L2L |
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10-08-2009, 02:43 PM | #4 | ||
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Hi Mslday,
The side effects for me include drowsiness, general fatigue, memory loss, dry mouth, unable to think of right words, memory loss mid-sentence, huge weight gain, and for some reason I write words jumbled up, not like dyslexia, but just total rubbish. I'm at university, so you can see how that becomes a problem! I do notice a change in my personality too. Why do I bother? Because, I can't bear the pain without these drugs. |
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"Thanks for this!" says: | Sandel (10-10-2009) |
10-10-2009, 11:55 PM | #5 | |||
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I was switched to trazadone insead of the amitriptilyne (thank goodness) and Topirimate (topomax) instead of the gabipentin (after I tried Lyrica), I had gained alot of weight on the ami but lost it again and my pain levels are the same now as with the Gab and Ami I think (was a while ago). Some of those med related symptoms are gone but the gabipentin is what causes the mental confusion because it got worse as the dose was increased.. then was on the max dose and a walking zombie, but like you said it does help. I would sugest lyrica but beware of your moods like with gabipentin they both can cause suicidal depression, lyrica does not cause so much mental muck and topirimate. Actualy all of the this class of antidepressant drugs have a new black box warning of possible sudden onset of suicidal depression recently put out by FDA so be aware and monitor yourself. I do admire you for being in college with a gabrain too lol.. how are your eyes? mine were and are realy bad I think from the gab. Sandra be well, Sandra |
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"Thanks for this!" says: | Mslday (10-11-2009) |
10-11-2009, 01:33 PM | #6 | ||
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Hi Sandra,
I'm glad (in a good way) that someone else has these symptoms and I'm not going mad. I can't believe the changes in myself, and I've decided now that enough's enough. I want to try something else for the sake of my sanity. I did know about the suicidal thoughts which can be brought on by Gabapentin etc and thankfully I've never been there. It makes me wonder, if these are the visible side effects of drugs like these, then what's going on in the inside that we don't know about?!! Hope you're having a good day. Take care. |
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"Thanks for this!" says: | Sandel (10-11-2009) |
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