Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-06-2009, 09:39 PM #11
SandyS SandyS is offline
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Pete,

It is a beautiful thing to have such great faith. I know sometimes I wonder why God gave my daughter this path in life. I often ask him why, because she's just a kid. Keep your faith, I couldn't imagine my life without it.

Sandy

Quote:
Originally Posted by AintSoBad View Post
GoJo,

No reason to feel badly for me! I'm alive.
I'm not doing what I'd like to be doing, or what I planned for my life, but, You know how to make God laugh, right?
Make plans.

So, I got into some deep prayer last night, (didn't sleep a wink), and, asked forgiveness, for where I haven't lived up to his word, and asked for guidance on the rest of my life.
I'm 53 now. Got the injury @ 27.
After that, I ran two business's, but more with a "Think Hard" aim, rather than work hard as much.
Invested in lots of education. I really enjoyed marketing (which is, afterall, EVERYTHING that you do in business).
In 98' another accident, which really bumped up the RSD and TOS, but, herniated four discs, but mostly, a tbi, brain hemorrhage.

I was very well insured, and besides this head injury giving wife #2 her chance to rob me and my family blind, my attorneys screwed up, and missed a filing date.
Now, my life is filled with Legal Malpractice (Nice switch, huh?), and a dirty divorce.

So, God will give me some direction. I have all the faith in the world.

Nice to meetcha, GoJo.

(Nice truck in your Avatar)!

Pete
asb
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AintSoBad (10-07-2009)

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Old 10-07-2009, 11:51 AM #12
SBOWLING SBOWLING is offline
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Quote:
Originally Posted by SandyS View Post
Pete,

It is a beautiful thing to have such great faith. I know sometimes I wonder why God gave my daughter this path in life. I often ask him why, because she's just a kid. Keep your faith, I couldn't imagine my life without it.

Sandy
Hi Sandy,

I can understand as a parent why you would question why God allows your daughter to deal with RSD. As christians we will still face difficult times in our lives our faith is tested and God wants us to lean on him. I believe we learn something from every situationin in our life. Your daughter and you are a wittness for Christ through how you deal with the complications in your life from RSD. You both are touching lives in ways you may never know. God promises us in Philippians 4:4 - 7 he will supply our needs.

I know this sounds crazy I believe my RSD is an answer to prayer. My prayer was Lord slow my life down so I can work for you. RSD put the breaks on my life (it's full body) I was a busy mom with my kids and husband, worked full time, took care of my house and was in a second 4 year term as a school board member. I woke up one night from a sound sleep (it was rare to sleep in the beginning of this journey) and the Holy Spirit reminded me if God brings you to it he will see you through it. I have awful days and it's during these times I lean on my Lord and Saviour more than I do on the good days.

Remember if he brings us to it he will see us through. He promisies a peace of mind that passes all understanding and he has never failed me.
PM me if you need to talk.

Take care,
Sherrie
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AintSoBad (10-07-2009), cindi1965 (10-07-2009)
Old 10-07-2009, 12:14 PM #13
SBOWLING SBOWLING is offline
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Hi Cindi,

For me good stress and bad stress have the same affect for my flairs. I Just returned from a trip to the Shenandoah Mountains. I had a wonderful time just me and my husband. The change in altitude bothered me but my body adjusted (I live in OH GO BUCKS!!). My RSD is fullbody with some organ involment. My burning skin loved the cold air in the mornings. The pain in my arms and legs at night reminded me of my RSD. The mountain views were calming and peaceful.

When I am going to do something that causes what I call good stress. Example: I am the ninth child of 10 I have the most room at my house for Thanksgiving. I use skelaxin, I will start taking it twice a day for about 5 days before turkey day. I will clean a little each day leading up to the big turkey day my family members will all bring a side dish. Last year I had 47 people for dinner. What I'm trying to say is I have learned to plan. I know I have RSD and I know I want to have my family for Thanksgiving. What can I do to lessen the chances of an awful flair.

Just like for my trip to VA I took skelaxin 2 days before we started the 9 hour car ride to keep my muscles from getting too tight from sitting in the car. Last night on they way home we stopped in downtown Morganstown W VA for dinner.

As people who live with RSD when we do certain things in life we need to ask ourself how much pain are we willing to live with as a result of our choice. However, sometimes my pain will flair for no reason at all. Sometimes we can control what makes it flair and sometimes we can't. Feel free to PM me if you want to talk.

Take care,
Sherrie
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AintSoBad (10-07-2009)
Old 10-07-2009, 01:52 PM #14
AintSoBad AintSoBad is offline
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AintSoBad AintSoBad is offline
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Sherrie, from when I first arrived here,
You have been one of my Champions!

Keep on, Keepin' on!

love to ya,

Pete
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SBOWLING (10-08-2009)
Old 10-07-2009, 08:49 PM #15
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Miss Sherrie,
You weren't very far from where I live in WV. I am 2 hours from Washington DC and 2 hours from Pittsburgh. We have season tickets to WVU football games so I plan my week according to what time the game is, the weather, what friends are going to be in town. I am learning to manage it a lot better, but I truly crash on Monday and Tuesday. I do have one mor thing to say:

I'm Gold and Blue all the way,
But I'm Scarlet and Gray,
For just one day!

Go Bucks!! Beat Michigan!!!
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