Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-10-2009, 09:24 AM #11
AintSoBad AintSoBad is offline
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Originally Posted by Sandel View Post
Hi,
I wear soft soft fuzzy things, and I have the softest sheets (they are fuzzy too), loose fuzy socks, and crocks in the summer (with bling on em) and extra loose boots that open right up in the winter.
It is a challenge every winter for boots because I always seem to trash them somehow.. and there arent many boots that work for me because my right foot dosnt tollerate a anything much on the heel since a car's tire sat on it, damn car.

Ohh and I have a heated matress pad to keep me warm, I have a single now for my hospital bed but 5 years ago I bought a queen one for my big bed that had duo controlls so as to not broil my partner lol.

Sandra.

Pete Hi, I went into that link you posted for clothes and it asked me what country I was from and then it did not even have my country (Canada) listed.

Hello Sandra,
I went and checked for you, it seems you can use U.S< but to be sure,
I typed Canada into their little "search" box.
The phone # is the same for Canada as for the U.S.

It's 1.800.638.6464

Hope that helps!

Pete
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loretta (10-12-2009)
Old 10-12-2009, 12:47 AM #12
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I do love Egyptian cotton. Wonder if I could make some great pants from the sheets? I have had a really rough time this weekend as the temps have dropped at night here in WV. I've been wearing the PJ bottoms a lot.
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Old 10-12-2009, 01:50 AM #13
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I have had RSD for 10+ years. I never new it was RSD until 2 years ago when I finally went to a knowledgable physician in pain management. Found here on NT by other's recommendations. Due to the fact that I used ice & the cool pool for years when injured my inner thermometer is unlike others with RSD. My RSD responds well to cold. Heat flares me. Therefore, heating pads, comforters, blankets, clothing feel like prickly hot sandpaper. I even have to have the air conditioning on me 24/7 or wear ice packs. However, when I went thru cancer a couple of years ago my best friend got me the sofest blanket & socks at Nordstroms. They also carry at Nordstrom rack. Shoes: all I can wear is flip flops or tennis shoes. My arms cannot tolerate sleeves, I cannot wear a bra so I hang loose wear cami's.

You will find after so many tries what your skin can tolerate. My closet used to be full of career clothing & shoes. Now its just active wear, yoga pants & cami's.



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Originally Posted by cindi1965 View Post
I am wondering for those of you that have the sensitive skin, what can you wear or sleep on with out irritation? I have a great pair of old flannel PJ bottoms that I wear around the house and I have a soft down blanket that I use at night. What's your preference?
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Old 10-12-2009, 11:46 PM #14
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Warm, Loving, ladies skin against my back....ahhh!

Besides that,
Like you Cindi, (of course you know that couldn't possibly right, so I must be teasin') I REALLY like this stuff that a company called Patagonia (Patagonia.com) makes called "Capilene".
It comes in different "weights", silk weight is great to sleep in, no matter what weight, it ALL won't hold any moisture, if you get a sweat, it wicks it right away, so it's great to layer with. (Put Cotton over top of it). if you need it warmer...
It's a great under layer for going outside, too!
Not cheap stuff, but, it'll last you 10 years, easy! I've been wearing this stuff for thirty years... (although I've changed, and washed it occasional).

Seriously, of all the clothes and things I have for 26 years of RSD, this is the best thing I've EVER discovered!
You can get everything from Tops, Bottoms, socks, like that....

www.patagonia.com

I just got my requested catalogue in the mail today!
So, I'm happy, I used to buy myself something every year, maybe more, but well, I'm gonna start again!

Here;s the deal on how it works:
It's completely non absorbant. It Wicks ALL moisture away from your skin, and it fits, like a super comfy second skin. So, no air will get against your skin, you stay dry, and comfy, with NO DRAFTS!
I cannot say enough about this product.
I've bought less expensive things that were made by other companies, say at Macy's, (Like Jockey, or some other name brand unmentionables for men

Always come back to Capilene!
Always!

If anything (zipper for the zip necks, a seam, whatever if it breaks, even after ten years, you mail it back with a note, they fix it!).
It's simply:
The Best!

So really,
got to
www.patagonia.com
request a catalogue, and that'll give you a general idea, and you can order online, for a bigger variety.
When you go online, someone will pop up to help you.
They're the greatest company I've ever shopped with, and their product, is the best!!!!

Pete
asb
I found a soft blanket at Nordstroms a couple years ago. Maybe it's the soft one you are speaking about. It's called Barefoot Dreams-it's 100% microfiber. A single blanket is $200 Shoes- I love the italian shoe-called Mephisto. It's in independent type store like was mentioned. I like the microfiber softie socks too. I'm more comfortable in sundress than shorts or t's with built in bra or dress with built in bra. Thank you all 'above' for all the ideas. I'm grateful I had desensitization early on, I still continue to do dailey stretching, stairs, exercising, etc.
Hope all have a good week. Thank you all for your friendship and kindness. I'm so sorry you have this too, but I know you truly understand what RSD does to us and how importantant to have support. loretta soft hugs
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Old 10-13-2009, 12:36 AM #15
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O yeah, how could have I forgotten HUGGS... my fav in the 10 cool days we have in SO Cal. Wish they had a little more support though. Hope these suggestions by ALL help you get a start on ur new wardrobe.
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