Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-19-2009, 09:08 AM #21
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Dew,

Time is of the essence when treating RSD, that's true, 3 months to be able to maybe still beat it without it becoming for ever disabling or chronic, but that doesn't mean there aren't ANY treatment options at all for patients who have been diagnosed too late. That doesn't mean you don't deserve care! I was diagnosed and treated for the first time when I had RSD for 2 years and 7 months, or 31 months! The doctors tried EVERYTHING. They didn't just say, it's too late anyway: buhbye and now go rot in hell. I don't get the reluctance to treat you or to keep looking for good treatment options at all! It's as if they have written you off and that's a COMPLETE DISGRACE!!! You have to keep trying, doctors can't give up. I mean who here is happy or content being an RSD patient? No one! We are ALL on the lookout for better options!
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 11-01-2009, 03:44 PM #22
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Heart Thanks :)

It has to do with WC law in the state of OK. I have been going through PT, land and water for over 1 1/2 year, and I wasn't getting better. WC only has to keep doing "improvement" therapy as long as I am showing improvement. The water therapy was the best therapy;however, I wasn't being healed. I was just maintaining the muscles I have in my legs. Important, but not written into WC law. See how it works?

It is not right, and I have been written off. I will be going to court soon. I just want it all over.

Each of you have been great, and I appreciate you all.

love, Dew
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 11-01-2009, 05:18 PM #23
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Hey Dew,

Sandel is right, that medical report is going to help your legal case. The other side's doc probably won't even touch you at all because he will be trying NOT to find things.

Still, please don't come away from this thinking you are a person of no value. That's not true - and I don't even think the doctor thought that. Your lawyer picked him because they both know, that short of a brutally frank assessment, WC will declare you fit for the Olympics.

There's no humanity in this system, but it's the one you're stuck with. This nonsense won't last forever.
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Old 11-02-2009, 01:43 PM #24
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Dew,I am so sorry to hear the way that you were treated! Tear's are just a part of the human experience if there were no limitations to overcome. I felt the same way that you did when I was just in the hospital for the last 3 weeks. Every time I woud start to cry there was this nurse that would come into my room. Instead of being understanding she would just look at me and say(You know the more you cry the more your pain is going to go up) Then she would just walk out and not look back! This world is filled with people that just don't understand what we are dealing with! At times they sure can be quite cold hearted.We are all here for you! I also know that you have a loving husband that is there fighting for you also! I know that this dx is not fair! Please hang in there,we are all here for you! Take Care My Friend! Breezy
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