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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   RSD Doctors in NY (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/10559-rsd-doctors-ny.html)

Jodee 09-06-2008 02:19 AM

Hi my pain managment doctor i see now is dr waghamare i used to do to dr gossey of whom i was not happy with as a pm but as a neurologist i liked him. With dr Wags as i call him he spends alot of time with you, hes conservative likes to try alternative methods he has spoken here in buffalo at an rsd support group so hes pretty up to date on new treatments etc. He also has cold laser therapy another alternative and teaches on the scs. I just love him i switched to him six months ago, after my other pm didnt do a thing for me. I am currently not on pain meds. I use a tens unit of which no one else offered me. I havent heard anyone that wasnt satisfied with him. Heres the link to his office with other info as well. What i like the most is i see him and not an assistant. He spent about 45 minutes with me on my first appointment.

He has a couple locations
I cannot post links my post count isnt high.





Hopes this helps those who are looking in The buffalo western new york area.

AnnieLee 09-12-2008 02:52 PM

Hi i don't know if people are still looking for a good RSD doc in NYC but if so i might know someone. Annie

mollymcn 11-22-2008 07:59 PM

Dr Waghamare in upstate NY
 
[QUOTE=Jodee;362859]Hi my pain managment doctor i see now is dr waghamare i used to do to dr gossey of whom i was not happy with as a pm but as a neurologist i liked him. With dr Wags as i call him he spends alot of time with you, hes conservative likes to try alternative methods he has spoken here in buffalo at an rsd support group so hes pretty up to date on new treatments etc. QUOTE]

Thanks so much for recommending Dr Wags! I took my friend S (almost full body RSD; failed SCS & everything else) last week to see him. He is SO different from other docs! He was obviously willing to be an advocate for the patient, believed everything she said, didn't make her go through her whole history of symptoms and treatments (22 years worth, it would've taken the whole appointment). I told him we'd looked in Rochester NY and he just snorted and said, well! you won't find anyone in Rochester! willing to try new treatments.

So, now we can recommend him too! Thanks again.

loretta 11-23-2008 06:39 PM

Quote:

Originally Posted by Jodee (Post 362859)
Hi my pain managment doctor i see now is dr waghamare i used to do to dr gossey of whom i was not happy with as a pm but as a neurologist i liked him. With dr Wags as i call him he spends alot of time with you, hes conservative likes to try alternative methods he has spoken here in buffalo at an rsd support group so hes pretty up to date on new treatments etc. He also has cold laser therapy another alternative and teaches on the scs. I just love him i switched to him six months ago, after my other pm didnt do a thing for me. I am currently not on pain meds. I use a tens unit of which no one else offered me. I havent heard anyone that wasnt satisfied with him. Heres the link to his office with other info as well. What i like the most is i see him and not an assistant. He spent about 45 minutes with me on my first appointment.

He has a couple locations
I cannot post links my post count isnt high.





Hopes this helps those who are looking in The buffalo western new york area.

Hi Jodee,

Welcome to our groupl I'm sorry you have RSD. I had it for 4 years before I went to a new Dr. that diagnosed me on the spot. He also got me started in PT and a Tens Unit. for my left hand. My hand is not sensitive to touch anymore, but only got partial use of fingers, about half and that was 8 years ago.

I have a question, what is cold laser? and how does it work for RSD? Did you have it, and how was it.?

What I'm looking into right now and going to ask my Dr. about tomorrow is HBOT. Hyberbaric Oxygen Treatment. What I understand is, the reason we have the bluish, purple, red hands and feet is lack of oxygen to those areas. arms, legs, etc. This treatment that they use for deep sea divers, helps deliver oxygen thru the blood thru this pressure chamber. I'm just starting to do research on this. There are at least two people on this forum that have portable units at their home and gives them their life back. pain wise. Diana A and I forget the other lady. I did a google search on HBOT, shows a picture of it and lists RSD as a use of treatment. There is a Doc in Florida that does these treatments for RSD. I think Diana went to Canada for treatment and then bought her own.

Any, keep in touch, and I'm sure the others are grateful to know a name in your part of New York. Take care. Loretta

superduck95 12-29-2008 11:21 PM

Hi Jodee! I know this post is old but thought I would try and reply. I also live in Buffalo,NY and I also see Dr. Waghmere. I have RSD and have been looking for people to connect with especially in the Buffalo area.

Hope your doing well

Jen

llrn7470 12-30-2008 05:53 AM

NY MD with Ketamine?
 
Do any of you with a good doc in west NY know if anyone does initial Ketamine infusions there? I'm in west PA and would be willing to travel. Please, Please Please let me know!!:smileypray:

superduck95 12-30-2008 07:07 PM

I don't know off hand of a good doc in western ny who does ketamine infusions. I am only beginning to seek alternative treatments for my rsd as well as seeking out a 2nd opinion with a different pm. Is it yourself that has rsd or a loved one and if so where? Good Luck!

mollymcn 12-30-2008 09:28 PM

Quote:

Originally Posted by llrn7470 (Post 435876)
Do any of you with a good doc in west NY know if anyone does initial Ketamine infusions there? I'm in west PA and would be willing to travel. Please, Please Please let me know!!:smileypray:

Hi - we've been looking and had no luck with drs to do initial ketamine. Don't even bother with Strong/University of Rochester Medical Center. Dr Wags agreed to do the boosters but said none of the Buffalo hospitals would agree to initial ketamine (at least the high-dose type that Schwartzmann does/did).

Would love to find somebody in Western NY! Maybe we can start a petition to the NY Academy of Medicine. Looks like we'll have to travel & stay in New Jersey to get treatment... :(

mollymcn 12-30-2008 09:29 PM

Quote:

Originally Posted by RSD_Angel (Post 348534)
Hey everyone.. sorry took me so long to get back.. havent really be on much.. its just been freekin nuts here..

My docs name is Dr. James Kowalczyk. and he is on erie blvd in syracuse and number is 13153715888. He did both my PNS and SCS and has done everything and willing to try anything and listens too!!

:o)

Hi - would he be willing to do ketamine treatments?

Jodee 01-16-2009 02:48 PM

Havnent been hear for a bit
 
Hi everyone i havent had a chance to post back here. Im glad for the people who saw dr wags, hes wonderful. As far as ketamine im not sure. For anyone that doesnt know there is a support group here in buffalo for people with crps/rsd

Jolene


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