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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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01-17-2009, 09:18 AM | #21 | ||
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11-11-2009, 08:54 PM | #22 | ||
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I have a young nephew 13 yrs of age who has contracted RSD after surgery procedure on his feet. I am researching a specialist in NYC. If you can reccomend someone I would appreciate it. thank you
Sonny |
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11-12-2009, 10:25 AM | #23 | ||
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Hospital for Special Surgery - there are a few doctors. 212-606-1015
St. Luke's/Roosevelt - Dr. Ronny Hertz 212-523-6367 Also see the RSDSA.org website. There may be a link for more info. |
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02-09-2010, 11:04 PM | #24 | ||
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holy moly..I to am in Buffalo NY. I saw dr. wags a few years ago who di sympathetic nerve blocks for my CRPS. He was wonderful, The blocks had no effect on me. He was very dissapointed and saddened that it didn't work on me. He referred me to Dr Gosy who has his own pain management center on Youngs rd. He originaly came from Dent Neurological Institute on sheridan dr, He has always been good to me I have no complaints. He treats me with a variety of Pain meds and depression. Dr wags is also an anisthesiologist and was there for me when I had to have emergency appadectomy. (me appendix exploded perforating me colon). At one time he suggested to me that I go to Cleveland clinic for treatment but, now he offers some of the same procedures. He has a great sense of humor also. He made me laugh during the nerve blocks. I use a tens unit along with therapy in my hot tub and pain meds prescribed by dr. Gosy. I did some reasearch with the state medical board on Dr. Gosy's background and it is quite impressine to say the least. Dr Wags told me there was not anyhting more he could do for me. Ihave an appointment this month with Gosy to ask about the pain pump, I'm interested in seeing what he has to say. I know of a support group for patients like us that meets once a month at a church. I don't go because I get depressed when i hear a lot of others who are in so much pain.
I ho[pe you have great luck and a good outcome with your treatment. thanks for your post. I found it and was happy to see that someone from the forum is near me. mellowguy |
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02-14-2010, 09:29 PM | #25 | ||
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Looking for a good rsd doctor in Long Island
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02-15-2010, 11:53 PM | #26 | ||
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Hi Emily,
Nice to meet you. I am so sorry you are going through this monster at such a young age. I feel bad. I was thinking maybe if you cannot physically go to college that maybe you could take courses online. I did it for a few years to University of Phoenix. It was great for me as my son was a teen and I did not want to leave him at night. I had one class to go for my Bachelors Degree and this mess happened. I did finish it with a long leave of absence but going online was great a bit expensive for me but worth it since after 20 years of trying to get my degree I got it!!!!!!!!!! Also, where in NY are you looking for a doc because I am planning on moving to Binghamton, NY within the next six months and need a good RSD neurologist doc too. Best of luck with college. Hang in there you will get it done. take care, kathy d |
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02-16-2010, 09:23 AM | #27 | ||
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In Syosset, NY (Nassau County) Northshore Hospital 516-496-6506 is included on the RSDSA's latest ketamine doctor's list.
No doc is listed. Good luck, XOXO Sandy Last edited by SandyRI; 02-16-2010 at 09:24 AM. Reason: spelling |
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12-25-2011, 09:59 PM | #28 | ||
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Hi, I know this is an older post. I have been recently diagnosed with RSD. I live on Long Island and I am looking for a doctor who is knowledgeable on RSD. Thanks for your help.
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12-26-2011, 09:44 PM | #29 | ||
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I was diagnosed in October. I had shoulder surgery in April and the swelling and pain never went away. I don't know how you feel about going into the city but I am going to Columbia. I commute from the NY/NJ border into the city. My surgeon referred me after thinking there was some nerve related issue inspite of a negative EMG and when I went, I had my diagnosis pretty immediately along with my treatment. So far I have had 2 stellate ganglion blocks with a few hours of relief with the first one. I see Dr. Visco and Dr. Smith. I am happy with both so far. Great bedside manner!!!
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03-08-2012, 01:07 PM | #30 | ||
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