Can anyone help me find an RSD doctor in NY?


I have had RSD since I was 15. I am now 18. Ive had many treatments, most more than once.
Its nice to have others on this forum to speak to. Everyone I talk to has never even heard of this disease.

On the 17th I will be starting my first day of college classes, and Im nervous that Im going to be missing classes due to treatments.


Also out of curiousity, has anyone ever gone to Germany for the 'ketamine coma' treatment?

Any responses/answers would be greatly appreciated

Thank you,
Emily

Hi Emily,

Where abouts in NY are you?? I have a great Doc that is in Syracuse NY and would gladly give you his name!! Let me know!!

) Amber

hi emily! where in ny do you live?
i have a doc iv'e been seeing for 13 years now.he's good,but a bit conservative.
let me know.
debbie

I am going to see a new doctor next week, I am in Western New York. This doctor is supposed to be the cats meow when it comes to alternative treatments. I am unsure at this point, and his qualifications for RSD treatment. He is a neurologist, though. I will let you know how it all turns out.

I saw your post on a doctor in syracuse. I am in need of a GOOD neurologist
that specializes in RSD.
I had a diagnosis earlier by a physical doctor and have been suffering for over 8 years-can not take it anymore!
Need a good doc to maybe get better treatment than I am getting at the pain clinic.
Can you forward me the name?
Thanks so much

I am sorry, I can't help you find a doctor in New York as I live in the UK.
I just wanted to introduce myself:
My name is Alison, I am 12 years old (nearly 13) and I suffer from RSD in my left leg and right arm. I first developed RSD in my leg on the 16th March 2007 after an ankle sprain, I was diagnosed with RSD/CRPS type 1 4 months later. I was later prescribed "Amitriptyline" to try and help me sleep, but I suffered from a nasty side effect of "blurred vision", this resulted in a knock to my right arm ... I was diagnosed with RSD 2 weeks later. The RSD in my arm as been in remission but the RSD keeps flaring up.
I am currently off school (I can't go due to pain and mobility issues), but I am starting home and online tuition in the near future.

I have not had the ketamine coma treatment, but I know of some people who have had it.
I hope these website helps you:
http://www.webmd.com/video/ketamine-chronic-pain
http://www.mapinc.org/tlcnews/v05/n1371/a03.htm?158
http://www.reachforrecovery.net/ketamine.html

If you need anything just ask. I will be happy to help you, If I can
Take care

Hi Amber! I am looking for a doc in Syracuse to treat my RSD, and saw your earlier post. Can you PLEASE let me know the name of your doc? I would be sooooo grateful, thank you!!!!

I hope you're all recovered now and doing great.

Susan

I havent posted in a long long time, but i caught this one. I am in Western New York and i can let you know my doctor he is wonderful and is very knowledgeable about rsd. Just let me know.

Jo

Also need a good neurologist in upstate NY for RSD. Have not had luck finding one at Strong Memorial/ University of Rochester Medical Center.

Hey everyone.. sorry took me so long to get back.. havent really be on much.. its just been freekin nuts here..

My docs name is Dr. James Kowalczyk. and he is on erie blvd in syracuse and number is 13153715888. He did both my PNS and SCS and has done everything and willing to try anything and listens too!!

)