Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-17-2009, 11:47 AM #11
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Heart Awweee sweeet Ali....

How are you hunny? I have worried about you hun! How r u? How is your recovery been this last year?

Thanks for your delicate and kind words. They are taken kindly! I hope you are doing well and now I am back to KIT with you again....

Love and ,
H



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Hi Heather,

It's SO good to see you back here! Congratulations on the birth of your beautiful daughter, Starr!!

I am SO sorry to hear about how you are being treated by the staff at the hospital - that is just horrible and no one should be treated like that! I really wish people would stop judging us just because we are on certain medications without understanding what is wrong with us.

I know it's extremely hard, but try and not let the Doctors get to you too much. YOU, your husband, us and your family and friends know that you are a good mother and did nothing wrong and that is all that matters!!

I'm SO sorry to hear about the loss of your mother - I can't imagine how hard that must have been for you all! I'm sure she is looking down on you all and is extremely proud of you for going through everything that you have and still continuing to fight on!

You, Starr and your family are in my thoughts and prayers! I can't wait to see the pictures of Starr when you are able to upload them - i'm sure she is gorgeous!

Take care of yourself and give Starr a gentle kiss from my mum and I!

Alison
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ali12 (10-17-2009)

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Old 10-17-2009, 03:22 PM #12
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Originally Posted by nopainever View Post
How are you hunny? I have worried about you hun! How r u? How is your recovery been this last year?

Thanks for your delicate and kind words. They are taken kindly! I hope you are doing well and now I am back to KIT with you again....

Love and ,
H
Hi Heather,

Thank you for asking how I am doing despite everything you are going through right now!

I started a College course at the beginning of October in Health and Social Care so that's been tiering me out quite a bit! I have to go to College 3 days a week and then School the other days so of course, the RSD doesn't like it unfortunatley lol! All I ever seem to do now on a weekend is collapse - it's sort of like my body says it's can't take anymore and kinda shuts down!

The Course at College lasts 2 years til i'm 16 so i'm hopefully that i'll be able to cope with it and be able to do all of my placements. We have to do 50 days of placements during the course. My first ones in a caring home at the end of November for 2 weeks. Thankfully, we aren't able to do a lot of the physical stuff because of our age and the teachers have been really supportive and said I can sit down whenever I have to.

The RSD and Dystonia is still basically the same. My Doctors and PTs are wanting to try Botox to see if that will help with the Dystonia but i'm not sure if I want to at the moment especially seeing as though I didn't react well to the blocks - guess we'll have to weigh up the pro's and con's!

How are you and Starr doing today? Hope things are better! Is that Starr in your profile pic? If so, she's gorgeous!

Take care,
Ali
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nopainever (10-20-2009)
Old 10-20-2009, 01:46 PM #13
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Heart Ali...

Yes, That is our miss Starr below! Thatnks for the compliment. We think she is beautiful also!

I am sorry about the pain, of course, but it sounds like you are really moving ahead in your life and thats very important for us RSD'ers to do. You know that! So keep going to to school it so important sweetie.

I am so happy for you! I love hearing how well things are going!

Love ya,
H


Quote:
Originally Posted by ali12 View Post
Hi Heather,

Thank you for asking how I am doing despite everything you are going through right now!

I started a College course at the beginning of October in Health and Social Care so that's been tiering me out quite a bit! I have to go to College 3 days a week and then School the other days so of course, the RSD doesn't like it unfortunatley lol! All I ever seem to do now on a weekend is collapse - it's sort of like my body says it's can't take anymore and kinda shuts down!

The Course at College lasts 2 years til i'm 16 so i'm hopefully that i'll be able to cope with it and be able to do all of my placements. We have to do 50 days of placements during the course. My first ones in a caring home at the end of November for 2 weeks. Thankfully, we aren't able to do a lot of the physical stuff because of our age and the teachers have been really supportive and said I can sit down whenever I have to.

The RSD and Dystonia is still basically the same. My Doctors and PTs are wanting to try Botox to see if that will help with the Dystonia but i'm not sure if I want to at the moment especially seeing as though I didn't react well to the blocks - guess we'll have to weigh up the pro's and con's!

How are you and Starr doing today? Hope things are better! Is that Starr in your profile pic? If so, she's gorgeous!

Take care,
Ali
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