Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-23-2009, 11:45 AM #11
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HI Pete,
Thanks for this question. I am meeting with a doctor on Monday to discuss a possible nerve block and the information chain you started actually helps me a lot.
Try to have a good weekend!
hopeful
Quote:
Originally Posted by AintSoBad View Post
Hello Friends!

My question about blocks has a little background.
Dr S., dx'd me in about '90, injury= '83. He hospitalized me and put me through a barrage of tests. (I was the RSD/TOS patient on the floor, that twice a day, he came in with his troop of students, and I did the "TOS TEST" for them all. Hands up, shoulders back. Hands turn white and no pulse.)

I had a "block" that was diagnostic. It made the right side of my face numb, and I think my arm was too.
But, the pain was still there. Dam, said the Dr.! I knew it. It's too late. Dam, said the patient!

I was also sent for lumbar blocks.
They had the same outcome, except, I don't remember any numbness, so I think they were more for pain.

They just didn't work, and Dr S told me not to get any more, for fear of aggravating the rsd.

Now, I notice that lots of you get blocks, regularly.
Some of you like them, some of you don't.
Why?

And, another question, I don't quite get the difference, between type I /II RSD.
I've read it, but it's not sinking in, but does this have something to do with why blocks help some, and not others? (the real question). I know I've gone from Sympathetically maintained to, S. independent... is that it?

Thanks.

I want to express my concern for everyone in the NE, and elsewhere, who are suffering with this weather. Keep tight, say your prayers, and always know, that someone, many, have it Far Worse elsewhere!
We're lucky to be Americans!
(and if you think health care is expensive now, wait 'til it's free!) just a joke...for a lousy friday afternoon....
TGIF!

pete
asb
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Old 10-23-2009, 10:06 PM #12
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I too (because of Work Comp) had a series of 3 Sympathetic Nerve Blocks. Just like Karen they sent me into a state of complete pain - Injured Knee went crazy - had to have cortisone injection in my knee. It was awful. My pain doc said "Well, this confirms that your (SIP) Sympathetically-Independent Pain". So now I am trying a trial Spinal Stimulator to see if we can reach that SIP directly. Hope this helps.
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** W/C injury...Diagnosed with CRPS w/ nerve damage in Apr '09, after a long 2 ½ yr battle with a knee injury. RSD has now spread to entire body.
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