Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-17-2009, 05:06 PM #1
tmullen tmullen is offline
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Join Date: Oct 2009
Location: san diego
Posts: 57
10 yr Member
tmullen tmullen is offline
Junior Member
 
Join Date: Oct 2009
Location: san diego
Posts: 57
10 yr Member
Default need a little pick me up

just recently i found this website and i'm so happy! i've had rsd for six years. and i'm sixteen years old. i orignally hurt my right ankle january of 2002 with an orthopedic thinking i had hurt my achilles tendon he operated on it even though all mri's showed that my achilles was fine. prior to the surgery i was casted for ten months. which we all know makes the rsd even worse. after surgery my suregon was amazed at how much pain i was in, and said he'd never seen anybody in so much pain. i went to a orthopedic at children's in san diego with them pretty much telling me it was in my head, even though the did diagnosis me with cprs. they never told us anything about it. soon after that i couldn't even get out of my wheelchair, i tried sympathtic blocks which only made me senstivity worse. i've been on cymbalta, lyrica,naurontin, and amitriptalyne. i now only take amitriptalyne and a few tylenol pm's at night. i found a clinic opening at boston's childrens hospital last summer, which me and my family went to for a total of seven weeks. it was horrible! 8 hours a day five days a week. three hours of pt. and hour of ot. phycology. and group physc. it was worse then anything, i never thought my pain could get worse after being there. even though my pain increased they got me out of my wheelchair. now after being home for a year i'm worse then ever. my pains all over my both legs and up my back. the worst i've ever had. i'm just looking for a little pick me up. and any suggestions. i'm so happy i finally found a place where i can talk to people that know exactly how i feel. its hard to find that.
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