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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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New Member
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Swatgen27,
I'm curious to know how things are going for you now. You should be about 6 weeks out from your RF, any relief? any spreading of RSD? Reason I am so curious, my doctor is wanting to do this procedure to me in a couple of weeks. I have researched and researched and I know the risks vs. the benefits very well now. The pain of the procedure itself is not what bothers me at all. And I know that the RF is only a temporary pain relief (but 6 months to 2 years is a long time) and the pain will come back if it goes away at all. The only thing that I am so worried about is the spreading. The last thing I want is to have this uncontrollable pain in another part of my body. Anyone's opinion or advice is welcome!!! |
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#2 | ||
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I had it done twice and it didn't work. When I had it done I had RSD in my right arm and shoulder. My RSD spread very quickly and now I wonder if the treatment helped the spread along. My RSD is full body.
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"Thanks for this!" says: | fmichael (10-22-2009) |
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#3 | ||
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New Member
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I am new on this site - not sure where to post, but I have questions on this procedure. My husband had radiofrequency ablitation done on his neck 2 weeks ago, C2 to C5. He has been in so much pain it has been a nightmare. The first 3 days he had spasms, those have subsided, but still his scalp and neck are so tender he can hardly sleep, and cannot fully turn his head because of the pain. Says his scalp feels as if it is on fire. Don't know what we will do if this continues. Anyone know of poor outcomes from this procedure. Dr.'s comments were ' ... he got a good burn... ' Nice comment from him.
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#4 | ||
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I had the Radio Frequency injection done at least two months ago and I also had the same issue with the RF causing even more pain. Turns out the RF procedure can be such a shock to the body that it can set off every nerve in your body and that is what happened to me. I was actually throwing up the pain got so bad. The Dr told me that in rare cases, the RF causes every nerve in the effrected area to become inflamed, which causes the extra pain. They said that to treat this issue, I should go on steriods but instead we increased my pain meds because the pain never went back down. My pain levels have remained increased, the procedure was extremely painful, and now I have back pain that wont seem to go away. My advice, DONT DO THIS PROCEDURE!!! PLEASE, DONT MAKE THE SAME MISTAKE I MADE. If we all learn from my mistake than maybe I wont regret getting the procedure done and Maria, I'm sorry to say that I think you two will have to do damage control.
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#5 | ||
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I really dont have anything else to say about this topic but I'm trying to upload my picture and i wanted to see if it worked so I'm doing a test posting. Sometimes I can be so weird...
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