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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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10-19-2009, 09:01 PM | #1 | ||
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In Remembrance
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Hi all, I am sooooooo tired it is not funny. I am sleeping great at night which is a miracle. (also have MG/MS and the prednisone wouldn't let me sleep for several years) However, I am totally snowed all day long too!! I started on 50 at hs and added another 50 in the AM the following week. But I was sleeping prob 20 hours a day. I'd sit still and wake up hours later. So I have held the AM dose and seen some improvement. Has anyone else dealt with this?? Of course the pain and burning are returning. sigh. But still nothing like it was without any lyrica at all. Without any i had spasms/cramps/pain that I have never had before!! So am glad it is not there. I can live with what I have now. I have a good pain tolerance, so that helps. How many choose to accept some pain as opposed to being slammed with side effects?? As I said the night time sleep has been great, but hte day time I can't do!! Go back to see the doc in a week or so.
Thanks in advance Deb DX less than a month now. |
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10-21-2009, 12:30 PM | #2 | |||
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Hi,
I just have to say that I had the same symptoms when I took Lyrica and then I started to hallucinate.... BIG TIME. I didn't know what I had done during the day until my husband came home. It is the the devil to me. I went off of it as soon as I could. Good luck. |
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10-21-2009, 03:57 PM | #3 | |||
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Hi justdeb,
I might be wrong but I seem to recall that Lyrica should not be stopped suddenly, it's something that one should tapered off. Perhaps that is why you had such a horrible pain flair? I couldn't tolerate Lyrica at all because of the side effects so I was only on it for a short time. Yes I do go with out medications because of side effects. Sometimes I will wait until I have all my daily stuff done before I will take my stronger meds. I definitely won't drive if I have to take oxycodone. I'm returning to my TENS machine to try to keep the pain gate closed. MsL |
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10-22-2009, 07:45 PM | #4 | ||
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Member
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I tried Lyrica once and it almost was OK despite the fact that most drugs of this type cause me a lot of gastro intestinal and other problems. But I was greatly confused and discombobulated. Perhaps I should try it again in a lower dose.
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10-22-2009, 08:57 PM | #5 | ||
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Senior Member
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Quote:
I was on 3200 mg of neurotin to keep from have involuntary jerks, electric jolts, spasms, gain weight, switched to lyrica 400 mg. it worked better for nerve pain, but still weight gain. Dr. let me slowly go off it, and didn't get jolts, jerks, spasms back and lost 30 lbs. gain a little back with another drug. But glad I'm off. I seemed to be somewhat brain fogged. Take care, loretta |
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10-23-2009, 10:47 AM | #6 | ||
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Member
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Deb,
I am taking 150 mg twice daily and, yes, I am finding myself in a fog much of the time. I need to fight to stay awake and to focus. I have only started this about a month ago, so I am still trying to decide if the relief is worth the side effect. Mike |
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10-23-2009, 10:46 AM | #7 | |||
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Junior Member
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I have to thank this site for everyone's posts about Lyrica and its side effects, that I refused to go on it when the doctor suggested it. So he put me on something else (Topomax) in July. Topomax didn't work at all for me, so now I'm on a different class of medicines.
Because I have a special needs daughter, I choose to live with a lot of pain and refuse many medications that interupt my ability to care for her. For me, epileptic class of medications do not provide effective relief even at the highest dose, and cardiac medications (Tambocor or Mexilitene) work better-this is just my case, because everyone is different. Aikane (friend in hawaiian) |
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10-23-2009, 09:53 PM | #8 | |||
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Junior Member
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I have been on Lyrica for over 9 months and YES it is rough. Started on 200mg and they have now bumped it up to 600mg. It has helped with the burning and bone pain but I live in a fog. I can't drive due to the dosage. My husband has banned me from any cooking when he is not home and I sometimes can't remember things. When I first started on Lyrica, all I did was sleep. Now I am able to fight the drowsiness and try not to nap all day. I have begged both my Ortho and PM docs to take me off and they refuse. So now I am just along for the ride. Oh, and the weight gain is unbelievable... went from 115 lbs to 136 lbs in 6 months. The hunger pains are crazy!!!!
Lyrica can be a wild ride. Good Luck!
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AJ ** W/C injury...Diagnosed with CRPS w/ nerve damage in Apr '09, after a long 2 ½ yr battle with a knee injury. RSD has now spread to entire body. Last edited by aj822; 10-23-2009 at 10:28 PM. Reason: Weight Gain |
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10-24-2009, 01:39 PM | #9 | ||
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Junior Member
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Did anyone else feel as though they had been dosed on acid for two days on Lyrica? Had to stop it because I went down the rabbit hole-full psychedlic experience. Is Neurontin any easier?
Thank you! MDH |
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10-24-2009, 01:45 PM | #10 | |||
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Member
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Quote:
Are you being serious?
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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