Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-23-2009, 11:12 PM #1
Jennelle Jennelle is offline
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Location: Washington
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Jennelle Jennelle is offline
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Join Date: Mar 2009
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Default There is hope!

I have had my ups and downs like I am sure all have had....but I want to give out some hope for any who need it!! I have written a little about a program I went to that was extensive physical and occupational therapy along with classes about pain,diet,sleep... At first I was angry that workers comp was making me go....I was afraid that they wouldn't care if I was in pain and that I was going to be in pain all the time. I was at first, and they didn't always listen...but the people (the other patients) that were there were awesome.
I think one of the biggest things that helped me continue in the program (6hrs a day for 1 1/2 months) and be able to be cleared to go back to my nursing job was the support.
So I think it is awesome that you all are here for each other....and I am so thankful that this site and the people on it have gotten me through such hard times!!! I want to thank you all again for that!
I want to give anyone out there some hope that we may not ever be perfect again or have the "normal" lives that we had before BUT that it is possible to get improvement. I have rsd in all 4 limbs....some days suck others are good. One of the biggest things that helped me (I know we all look for different treatments that help) was moving every day! Even if I hurt I made sure to move...even at therapy if I was really flared up I couldn't lift things and barely walk but I did what I could. Even if it meant I just walked slowly around the treatment room...I didn't stop. I would take a little break and get myself mentally on board for a crappy time---then I would just slowly walk. If that was all I could do that day I still did it....I didn't want to live my life on the couch. I am not saying I am perfect or that there is one solution for everyone but what I want to stress is that there is hope for at least getting a little better than what we are today. Thank you all for your support over the time I have been apart of this site!
Positive thoughts to you all!
Jennelle
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AintSoBad (10-24-2009), bobber (10-24-2009), fmichael (10-25-2009), loretta (10-24-2009), Sandel (10-24-2009), SandyRI (10-24-2009), stressedout (10-24-2009)

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Old 10-24-2009, 04:16 PM #2
SandyRI SandyRI is offline
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SandyRI SandyRI is offline
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Dear Jenelle,

I am really glad that things worked out so well for you, such that you were able to return to work. Can you tell us whether you are working PT or FT and whether you returned to your old position? Also - are you taking any meds or using any MBSR methods to reduce your pain? Just curious. I have been home now on WC for a little over 4 mths and I know that this is NOT what I want forever. I need to find a way to get better and back to work!

Thanks so much for any information you can share with us.

XOXOX Sandy
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AintSoBad (10-25-2009)
Old 10-25-2009, 12:54 AM #3
AintSoBad AintSoBad is offline
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AintSoBad AintSoBad is offline
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Jenelle,
I'm so happy to hear your story as well!
Can you tell us a little bit more, as we ALL would like to know a little bit of what you know?
Again, SO HAPPY for you!
If you could just give us a little insight....???
Thanks sweet one! You've been blessed!

Pete
asb
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Old 10-25-2009, 07:33 AM #4
SandyS SandyS is offline
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Hi Jenelle,

My daughter did the Cleveland Clinic Chlidrens pain Rehab program, and yes it was a great program, she actually went twice. The best part is that there were other kids there going through the same obstacles that she is going through. The program taught her coping skills, which I think is one of the best parts of the program. I am so happy that this is working for you. Have a beautiful day and pain free day, My prayers are with you.

Sandy



Quote:
Originally Posted by AintSoBad View Post
Jenelle,
I'm so happy to hear your story as well!
Can you tell us a little bit more, as we ALL would like to know a little bit of what you know?
Again, SO HAPPY for you!
If you could just give us a little insight....???
Thanks sweet one! You've been blessed!

Pete
asb
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