Sorry haven't been here lately! New develop.in W.C. case! Back track - my employment had been paying the difference that W.C. did not pay (W.C. 2/3 of salary; employer 1/3).... well, didn't know employer was taking my sick days, vacation days, 90 supplemental sick days, etc. 4 me 2 receive full salary. OK, done, i count it as a blessing that i received full salary for 18 mos. In order 4 me 2 receive any kind of check from employer, (& i do need that $$ also), i'm having 2 wk 2 hrs/day - started back last Tues. I'll b able 2 retire in Feb. trying 2 make it.....

My problem is - my eyes have been REALLY bothering me. They ache behind my eyballs! & my facial bones ache. don't think i have a sinus infection. haven't had any sinus symptoms..... my RSD has gone up my left arm, shoulder...... can it get 2 my face & eyes?? does anyone have research on that?? pls help! thks

Hi,
I can't say for sure or not about the eye symptoms and such.

But I would really get it checked out - maybe with your reg medical ins first and then if they feel it is related to the RSD & wc it will have to be added on to your claim.
But be sure if it is related - that it gets added on so when the final wc claim stuff comes all is covered.


Plus you would want to be sure it isn't something else causing this new trouble.

Hello Nancy,

I am glad you have money coming in. It's not such good news that they have been using your sick days, vacation days and supplemental days to make up the difference from WC. Time goes way too fast so it will be Feb. before you know it.

I have full body RSD and it's in my face, eyes, mouth, throat and back of my head. Good news is those areas only show signs of RSD when I am in a major full flair. I have burning and sensativity to touch on my face, pins and needles and sensativity to food and beverages in my mouth. No hot sauce or peppers for me and I love hot foods (those really aggrivate the pain). I need to eat yogurt or soft ice cream and drink room temprature water when my mouth and throat are flaired. My face turns bright red like I have been in the sun too long. I don't wear much makeup anymore it hurts to put it on. My vision is blurred when my pain is flaired and the bottom of my eyelids are sensative to touch and itch and water like they do during allergy season in OH. The back of my head is where the the deep pain is. Like a baseball bat hitting me in the head. That just covers my pain from the neck up.

The is an awful condition we live with and it feels like our bodies have a war going on inside them and we are losing. It is sooooo important for us to keep our anxiety level down. Our pain is worse when we allow our anxiety level to get out of control. I use two things prayer (God doesn't want us to be anxious he wants us to go to him in prayer and he will give us a peace that passes all understanding) He also uses doctors to help us and mine gives me ativan to control my anxiety.

Take care and PM me if you want to talk.
Sherrie

Hi Nancy, So sorry you have face involvement. Good suggestion to have eye exam and face. Do you have lumps under the skin that are sore when you press on them? Do you have matted eyes in the a.m.? Does your vision get worse by evening time. Mine do. I have trigeminal nerve disorder, though I don't know if is as a result of rsd or separate. The lumps I feel is rsd and vision and numbness down the left side of face. The temple pain is like an ice pick stuck in my temple. There is a Trigeminal Nerve site on this forum. Have numbness down left side of face. It usually affects one side of face.
I have had lymph nodes become involved with RSD. They become hard, sore, warm and painful. They are throughout our bodies. Does anyone know how they are connected with RSD.??? I know RSD affects our immune system.
Nancy, I'm so sorry you are going thru all this, but am grateful you will get assistance thru WC.
I turn 62 next year, so I should get a little help, though I qualify now.
I'm happy for you retiring in Feb. Hopefully your affairs are in order, that you have enough income. Nance, I haven't forgotten to get you a copy of a paper to send you. I just got my copier two days ago.
Take care, and please get your eyes checked out and add them to your WC if they are involved. Take care, loretta soft hugs

Sherrie and Nancy, I totally agree with controlling our anxiety, naturally and anti-anxiety-I use lorazepam. Prayer, meditation, Visualization, exercise, journaling, counseling,music, candles, lavender baths, etc. Keeping our pain under control, thru exercise, deep breathing, swimming, stretching and I am on vicodin. In 14 years, I've gone from 6 pills per day down to 3. I was on 3200 mg neurotin to nothing. I had dailey electric jerks, jolts, etc and gradually got off this drug and don't have spasms any longer. My diet is high in anti-oxidants and superfoods, so trying to help myself thru healthy eating.
Take care, loretta soft hugs

I agree with ur regimine. Alternative medicine, lots of water, eating healthy when my tummy allows me to eat, guided imagery, meditation, candles, soothing music, curbing the stress (haha), floor exercises, bike & movement with cardio for the chronic pain is so me. Journaling used to be a daily exercise...no longer. Cant write due to the TOS or is it the RSD? I have a high sensitivity to drugs but still have to use them on a daily basis.

Diet and exercise were important before RSD and now it is more important. My full body RSD doesn't allow for the work outs I did before RSD. However, I do go to the Y and water walk, swim and I take an arthritis class (keep the joints moving).
When I am flaired and I really don't feel like eating. I pay special attention to my diet. To keep my emotional state in check I watch or read enough news to know what is going on. I like music, funny programs, the history or food network on TV and spending time with God in prayer.
I think writing in a journal helped me.

Sorry I got off topic of the original thread.

Take care,
Sherrie