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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   No sense of time. (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/10626-sense-time.html)

dreambeliever128 01-09-2007 02:43 PM

They have a new pillbox that has an alarm that goes off when it's time to take the meds. My best friend has it and it goes off everytime we are on the phone. She hates it and actually went back to the other type but it might be something you guys might want to get.

Hubby with RSD. I know what you mean about worrying about your husband. When Bill was living, our daughter would do his meds in one of those month boxes but he still would forget to take them. I would ask him if he took them but at times I couldn't even remember to ask him if he took them. At the end it was getting really hard because he was having more trouble remembering to take them. We were trying to figure out how to make sure he took them around the time he passed away. He was on so damn many that I couldn't even keep up with all he was on. I felt guilty because I couldn't help him more then I did. We were both trying to take care of each other and it was hard.

I would say maybe check in on getting one of those pill boxes that has an alarm. My friend got hers through her social worker.

I'm only on a couple of meds and I forget to take them until my stomach is messed up and I'm in a lot of pain at times.

I think the memory loss actually comes from the RSD but some of the meds do add on to the problem.

I have tried to get my memory better but for some reason I just can't get there. I do now put a paper on the phone at night to remind me of calls I have to make the next day. I am constantly looking for things though that I have missed placed and it drives me nuts. I usually find what I was looking for a week ago when I start looking for something I'm looking for at the present time.

When I was at my worst I actually journaled for about 3 years. I filled up a journal and a half and now I can't even remember where I put the journal.

Thanks Artist for your good thoughts. I am having a hard time. It seems to get worse instead of better. It's like starting all over again and not knowing how to start.

Ada

LisaM 01-09-2007 03:01 PM

HwRSD...how about timers? I used to have to do that when I took care of my grandmother for a few days. I'd have to go to work, so I'd set the kitchen timer for one time, and a bedroom alarm clock for another, and a clock in the living room for another time. At each of the alarms, I'd have a bottle with the pills she was supposed to take, so when the alarm went off, she knew to take the pills in the bottle by that particular alarm.

I also used to take my meds 4 x's a day, but I would forget, too....so I adjusted them to 3 x's a day....when I wake up, after lunch, then before bed. Can't forget that too easily.

As for appointments, I set my cell phone to beep and I put it in TWICE. Once the day before, and once the day OF the appointment. That way I'm reminded the prior day, and the day I have to go as well.

Another thing that's huge...HABIT! If you have a habit NOW, incorporate memory tips into those habits. For example, if you put your keys in a certain place when you wak in the door, put your notes there. If you write a grocery list out consistently add to it, write your notes THERE, etc. So incorporate things into already established habits.

Look whose talking. me....the one who forgets something the minute you tell me! Now, if I could just take my own advice and apply it to myself, I may get somewhere!

HubbyWithRSD 01-09-2007 03:07 PM

What Memory?
 
Gee Ada how familiar all that sounds....I tried putting a list of "to do's" (to keep him busy, before he got this bad) and putting the list in front of the computer, then next to him and his recliner. He'd forget to read them! AARRGGHHH!!!

It's frustrating - For him as a sufferer and for me as a care-giver. I constantly worry too about the meds. I'm gone like I said for most of the day and I dont want to see him double dosing or missing a dose. Very scary.

I'm definately going to look into the alarm pillbox. Something has to work either that or I'm going to have to quit working just to make sure he gets the meds he needs.


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