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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Hi everyone,
It's been a while since I posted. I've been having a bad few weeks. the jerks and twitches have really increased, and it's hard to sleep at night. I finally decided to have all my info sent to a dr who does the pump. the office called yesterday, and I've got an appt for tomorrow. I'm hoping withing the next week or so that I can go into the hospital for the trial. the trial takes aboutg 4 days in hospital. I've heard good things about the pump. As you may remember, I've had 2 SCSs implanted and then removes. I'm hopefull for the pump. If it works, then (after it settles in and heals, and they get the meds regulated to work), I'll be back to being able to drive, and ride my horses, and get around without the effects of the oral meds that I'm on now. I'll let you all know how it goes tomorrow. hugs mary
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There is no future, there is no past, we must make each moment last |
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"Thanks for this!" says: | AintSoBad (10-27-2009), ALASKA MIKE (10-30-2009), cindi1965 (10-27-2009), loretta (10-27-2009), SandyS (10-27-2009) |
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#2 | ||
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The best of luck to you. Please keep us posted.
I will be keeping you in my prayers. XOXOX, Sandy |
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#3 | ||
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In Remembrance
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What Sandy said!
Hope this is the answer you've been looking for! Pete |
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#4 | ||
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I will keep you in my prayers, Mary. I hope you get the pain relief that you deserve...
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#6 | |||
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mary i hope that this works for you. just make sure they explain how this surgery is a HUGE surgery as having a pump for 5 yrs.. the intial surgery is awful ..
i really hope that this works out let us know carrie
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hope this finds all in less pain . rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,, please check out our website to help bring awareness to RSD! . |
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#7 | |||
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Magnate
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Good Luck with your appointment today, Mary! I hope you'll be able to get the help and treatment you need soon and get to feeling better!
![]() Please let us know how you get on - you're in my thoughts!
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To the World you may be one person, but to one person, you may be the World. |
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#8 | ||
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Good luck to you Mary. I hope this works for you.
![]() = = = = = On a related note = = = = = Can someone please post a brief explanation of what the "pain pump" is, how it works, etc. Is this the same as they put in for cardiac patients when they need a drug to regulate the heart beat? What type of "med" is being pumped, and where does it pump it to? Carrie, you have had one for five years? Can you give me a "layman's" description of what this is? Thanks, Mike |
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#9 | |||
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Good luck with everything, Mary. Keep us posted!
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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#10 | ||
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Quote:
Mike |
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