Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-29-2009, 06:05 PM #1
Kakimbo Kakimbo is offline
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Confused Meds and nausea. Any help?

Hi all!

I was just wondering if anyone has a hard time taking narcotics? Every time I take them, with or without food, I become extremely sick, to the point of vomiting.

I was taking Vicodin, and would become violently sick. Now I'm taking Percocet, but it is becoming harder for me to keep them down. I've been on them for over a year, as well as Baclofen 30mg and Neurontin 2400mg.

It's getting so bad that I don't like to leave the house for fear of becoming sick in public and I carry around Pepto and plastic bags. Sorry to be so graphic. I am desperate!!! Any help would be most appreciated.

Thanks!

Kim
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Old 10-29-2009, 08:23 PM #2
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Have you tried any antiemetics ? Compazine is the oldie but goodie, but Zofran often really helps N/V from drugs.

I can't type much today, but hope to 'see' you around here.

Take care
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Old 10-29-2009, 11:52 PM #3
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Kim,

CALL YOUR DOCTOR!

There is a super inexpensive, prescription which I take, let me get the bottle....

OK,
it's called 'promethazine' 25 mg.
(I do believe that I'm writing the generic for, Compazine. As Finz stated above).

I can take 1,- 4 times/day.
I've NEVER had to take more than one.
Matter of fact, I've never had this 'script refilled...since 5/07! I still have some left!

This is very normal, to take this, (well for me, it's because of my TBI, but, it's very inexpensive, and non-invasive...... ask your doctor).

I also take Diazepam (generic valium), if I feel "anxious, or excited" which will calm my stomach, yet sometimes I still need this.

It reminds me to have my Dr to re-write....

Thanks!

Pete
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Old 10-30-2009, 02:29 AM #4
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I take Promethazine 25 mg tablets works wonderfully for me... I love it... It always makes my stomach much better when i feel sick.. I strongly suggest it... Nothing like being nauses...
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Old 10-30-2009, 08:35 AM #5
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Quote:
Originally Posted by kim ames View Post
Hi all!

I was just wondering if anyone has a hard time taking narcotics? Every time I take them, with or without food, I become extremely sick, to the point of vomiting.

I was taking Vicodin, and would become violently sick. Now I'm taking Percocet, but it is becoming harder for me to keep them down. I've been on them for over a year, as well as Baclofen 30mg and Neurontin 2400mg.

It's getting so bad that I don't like to leave the house for fear of becoming sick in public and I carry around Pepto and plastic bags. Sorry to be so graphic. I am desperate!!! Any help would be most appreciated.

Thanks!

Kim

As for myself..I have a super sensitive belly.. pain meds and antibiotics.. I go cold turkey with my RSD... as I have been sick so many times, I am tired of the trial error with meds.. even wiery of trying anything new as it always ends up being to hard on my stomach and I get sick...Yrs. ago I had TOS as a result of a car accident..... I had bilaterial rib resection done with out meds.. due to being ill during chest surgery, both times.. cuz of illness from meds.. I understand how dishearting this can be..sorry I am not much help..just know you are not alone..what does not kill us makes us stronger!

keep smilin
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Old 10-30-2009, 05:45 PM #6
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Quote:
Originally Posted by kim ames View Post
Hi all!

I was just wondering if anyone has a hard time taking narcotics? Every time I take them, with or without food, I become extremely sick, to the point of vomiting.

I was taking Vicodin, and would become violently sick. Now I'm taking Percocet, but it is becoming harder for me to keep them down. I've been on them for over a year, as well as Baclofen 30mg and Neurontin 2400mg.

It's getting so bad that I don't like to leave the house for fear of becoming sick in public and I carry around Pepto and plastic bags. Sorry to be so graphic. I am desperate!!! Any help would be most appreciated.

Thanks!

Kim
Hi Kim,
I'm so sorry you are sick with pain meds. I also take vicodin. I take lorazepam-anti-anxiety med and all goes down well. I've only been sick, when in a flare. I know my mother was sick every day from cancer. Before the morphine, Dr. gave her valium to calm her stomach and that helped a lot. Have you asked your Dr. about pain patches? What does he suggest? Have you talked to a pharmacologist? My Dr. is a neuro, pharmacologist & psychiatrist, so trust my Dr.. Let us know what you find out -hope the stomach problems calm down SOON. Your friend, loretta soft hugs
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Old 10-30-2009, 06:01 PM #7
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Hi Kim,

Welcome to NT sorry you have a need for us.

First like Pete said call your doctor to talk this out.

It took a while to find the right pain killer for me. Like you most of them made me sick. I settled for percocet. I have been on it for a couple of years as needed for break through pain, not as a regular everyday med for my RSD.

However, I take protonix for acid reflux. I have noticed and discussed with my doctors. When I have gone several days with increased pain and increased pain medications (percocet) I may take an extra protonix to keep that feeling of my acid reflex under contol.

For me personally, I have learned that there are somedays I will feel sick to my stomach from the percocet and some days I will feel fine. Today is a perfect example. My pain has been elevated for a few weeks off and on. I had a good breakfast before we left the hotel this morning. I took a percocet after breakfast and during our 3 hour trip home I almost got car sick for the first time in my life. I was never so glad to get home.

Sometimes when I take percocet to help calm the pain so I can sleep at night it acts like a shot of caffiene and I am up all night. Sometimes it works great the pain is under contorl and I can sleep. I can only take it for about 3 days in a row. After that the side affects on me are like I'm walking on air and very hyper.

What I'm trying to say is I have taken percocet for a couple of years and I get varied reactions from the medication. One thing I always get is pain relief. It's a trade off for me how bad do I want the pain to go away and what kind of side effects do I want to deal with as a result of the pain being under control.

Do call your doctor. We all have lots of first hand experience and knowledge with RSD/CRPS but we can't replace your doctor.

I hope you find the right pain relief soon that works for you!
Sherrie

Last edited by SBOWLING; 10-30-2009 at 06:03 PM. Reason: spelling
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Old 10-30-2009, 08:50 PM #8
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Default ginger for nausea

I agree with everyone else, you should see your doctor.

I too am very sensitive to most drugs.

Have you tried ginger?

Ginger has been found effective in multiple studies for treating nausea caused by seasickness, morning sickness and chemotherapy. Ginger is a safe remedy for nausea relief during pregnancy.

Here is a link to info about it on the University of Maryland Medical center.

http://www.umm.edu/altmed/articles/ginger-000246.htm

Good luck and please let us know what your doctor has to say.

MsL
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Old 10-31-2009, 03:10 AM #9
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And another hello to Kim -

I absolutely concur with the comments expressed that you have got to get this checked out by a doctor, and preferably a gastroenterologist. Although no one ever said that endoscopies were cheap. And at least according to the BC Cancer Agency, "nausea and vomiting is not a manifestation of narcotic allergy." http://www.bccancer.bc.ca/HPI/Cancer...CancerPain.htm

Marinol (Unimed Pharmaceuticals, Inc.) also works very well for nausea, where it’s often prescribed to offset one of the principle side-effects of chemotherapy, and in my experience, is probably the best thing going for the CNS induced spasms of CRPS. Much more effective than my 50 mg./day of Baclofen. There’s just that little detail of its active ingredient (dronabinol) being a synthetic delta-9-THC, a naturally occurring component of Cannabis sativa L. So, unlike ginger, for instance, it would make getting through the day at work a challenge in altogether new ways, were you working, which I gather from your note you're not.

Mike
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Old 10-31-2009, 07:47 PM #10
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A year or so ago I tried a drug called Cesamet also known as Nabilone.

Quote:
It is a synthetic cannabinoid with therapeutic use as an antiemetic and as an adjunct analgesic for neuropathic pain. It is a synthetic cannabinoid, which mimics the main ingredient of marijuana (THC). Chemically, nabilone is similar to the active ingredient found in naturally occurring Cannabis sativa L. [1] Nabilone is not listed as a narcotic by WHO as it lacks the euphoric and recreational potential of other cannabinoids.

In Canada, the United States, the United Kingdom and Mexico, nabilone is marketed as Cesamet. It was approved in 1985 by the U.S. Food and Drug Administration (FDA) for treatment of chemotherapy-induced nausea and vomiting that has not responded to conventional antiemetics. Though it was approved by the FDA in 1985, the drug only began marketing in the United States in 2006. It is also approved for use in treatment of anorexia and weight loss in patients with AIDS.

Although it doesn't have the official indication (except in Mexico), nabilone is widely used as an adjunct therapy for chronic pain management. Numerous trials and case studies have demonstrated various benefits for condition such as fibromyalgia [2] and multiple sclerosis. [3]

Nabilone is a racemic mixture consisting of the (S,S) and the (R,R) isomers ("trans").
Here's the link to the info on wikipedia about it. http://en.wikipedia.org/wiki/Nabilone

I couldn't tolerate it because it totally spaced me out. I have a hard enough time keeping my mind clear and I need to be able to drive.

MsL
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