Originally Posted by Sheri (Post 57573)

Just diagnosed 6 months ago, not much support or experience for the medical community in the area where I live.

Originally Posted by nw31705 (Post 836864)

Hello Everyone,

I am new to the site, but definitely not new to the beast we all know as RSD/CRSP. My life changed a little over 3 years ago when I had a fall down a flight of stairs injuring my right great toe. Like most nurses I didn't seek medical attention right away; I thought it was just a stubbed toe. Six months into it I noticed I still could not wear any shoes other than my work shoes and only those I could slide my feet in; my foot also had this bone growth on top. I consulted one of the surgeons in my department (I am an operating room nurse); she told me she that I had turf toe. Turf toe is sprain of the joint in the right great toe usually in foot ball. I did indeed have this and had to wear a boot for some time. The however did not fix the problem, so I was placed in a short leg case for a month. After the month was over I was taken to the operating room to remove what was bone spurs and a bunion that had grown on the anterior portion of my foot from the joint being stiff. Now the fun begins; the surgery miraculously got rid of the pain I was feeling, but not oddly a few weeks post-op I begin to have numbness, swelling and sensitivity to touch. My foot just wasn't getting any better and it was getting close to time to go back to work. I had all the x-rays, EMG's, Lumbar studies to see if it was my back; you name it. I started noticing that my foot would change colors red then blue and the wind would even hurt; I begin to think something is really wrong here. Finally one afternoon while I painfully hopped along at work after being forced to come back or be fired one of the Anesthesiologist with a history of pain management asked to see my foot and I showed her; she then wrote three letters on a piece of paper and told me to go look this up and come back to me. All I can say am I sat in front of the computer screen that night crying because I said finally I have an answer. I took that piece of paper to my doctor and my RSD journey began. I must say it has not been fun now that I have a diagnosis in had how do we treat it. I have yet to find anything that helps me. I have done the blocks; they helped for a while. I can't take a whole lot of meds and work too. The work thing is a whole other story I am now down to 2 days a week and barely can stand a whole 8 hour shift. Oh did I mention the RSD is now in both my feet, legs, hands, right arm and scapula; yeah it’s moving fast. I don't know if it is because I refuse to take it easy or what. Well that's it for now if anyone can offer advice as for as it goes for treatment I would really appreciate it. Thanks in advance.

Originally Posted by Glademan (Post 840852)

My 37 year old daughter has severe RSD/CRPS. She has had it since fracturing her wrist about 18 months ago. It quickly spread through her body and she is now bedridden and uses a wheelchair. She participates in another group on the internet and would like to keep her privacy with her friends so I came here to search for friends and answers.

She has had quite a few Ketamine infusions. A few one day treatments at the Univ. of Miami, however they feel that she should have the Spinal Stimulator and we are totally against that. So they have basically told us that there is nothing left for them to do.

There is a Dr in Philadelphia who I called and the next appointment available is in 2014.

She has had two treatments in Tampa. One was a four day treatment which helped for about 2 weeks and then a 3 day booster two weeks later which didn't help at all.

Now we are looking for anything that we can afford. Tomorrow morning we are taking her to an MD who specializes in Hypnosis.

We have also heard about a Dr Cantu in Monterray, Mexico who does a five day in hospital infusion. Then we heard that Monterray in 2010 was one of the safest places in the world and in 2011 it is now very unsafe especially for American's.

We don't know where to turn. Any help would be appreciated.

Originally Posted by Glademan (Post 840852)

My 37 year old daughter has severe RSD/CRPS. She has had it since fracturing her wrist about 18 months ago. It quickly spread through her body and she is now bedridden and uses a wheelchair. She participates in another group on the internet and would like to keep her privacy with her friends so I came here to search for friends and answers.

She has had quite a few Ketamine infusions. A few one day treatments at the Univ. of Miami, however they feel that she should have the Spinal Stimulator and we are totally against that. So they have basically told us that there is nothing left for them to do.

There is a Dr in Philadelphia who I called and the next appointment available is in 2014.

She has had two treatments in Tampa. One was a four day treatment which helped for about 2 weeks and then a 3 day booster two weeks later which didn't help at all.

Now we are looking for anything that we can afford. Tomorrow morning we are taking her to an MD who specializes in Hypnosis.

We have also heard about a Dr Cantu in Monterray, Mexico who does a five day in hospital infusion. Then we heard that Monterray in 2010 was one of the safest places in the world and in 2011 it is now very unsafe especially for American's.

We don't know where to turn. Any help would be appreciated.