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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Our Stories & Introductions (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/10725-stories-introductions.html)

alt1268 07-05-2012 08:55 PM

Welcome to the group. Sorry to hear your recent diagnosis of RSD. But glad to have you here.

There has been people here who have gotten relief from SGB. Personally I had an LSB, because mine is in the foot.

Quote:

Originally Posted by MommadukesCRPS (Post 894683)
Pamela 36 Diognosed June 27,2012.... Im blessed with hope today. First SGB in a week and half and wondered if anyone has experienced relief from the block?


RSDcandice 07-06-2012 12:24 AM

Quote:

Originally Posted by MommadukesCRPS (Post 894683)
Pamela 36 Diognosed June 27,2012.... Im blessed with hope today. First SGB in a week and half and wondered if anyone has experienced relief from the block?

You werediagnosed right at the same time as me I was diagnosed finally the 26th. I've at a sgb recently and it helped for a day 1/2 , I had a lot of pain in my neck from the injection. But I have neck and spine issues already.. I hope you get some good relief!

alt1268 07-06-2012 06:11 AM

I found that I didn't get any long term relief from my lsb. (lumbar sympathic block) (more then a day) when the dr. did injections every 3 weeks. But when they did 3, one a week for 3 weeks. I got relief for 6 months. (it was great) I recomend that you ask your dr. to be aggressive as possible.

MommadukesCRPS 07-06-2012 07:09 AM

Good morning.......My plan is to speak with her (dr) and be aggressive. Thank u. The relief will be a blessing. My family thinks this is the cure and I keep trying to tell them it may to be, but they don't understand. Sometimes I feel like they think this all I Can talk to them about but don't realize it is Always present and any moment rearing it's ugly head.What am I suppose to do? I'm so happy to meet you both and hope I can get this under control soon or bearable.

ginnie 07-06-2012 08:46 AM

Hi Alt
 
Can you tell me what LSB is. I only recently have been told I have RSD like symptoms in my foot. I thought it was just PN. Sorry I don't know this term, but I am seeking relief other than pain killers. I read where RSD doesn't like narcotics. thanks for helping. ginnie

Nikki1234 07-11-2012 03:12 AM

Lsb..
 
Quote:

Originally Posted by ginnie (Post 894897)
Can you tell me what LSB is. I only recently have been told I have RSD like symptoms in my foot. I thought it was just PN. Sorry I don't know this term, but I am seeking relief other than pain killers. I read where RSD doesn't like narcotics. thanks for helping. ginnie

Lumbar Sympathtic block, usually for lower back. I had a SGB, Stellate ganglion block which is injected in your neck for arm/shoulder RSD. Personally, the block seemed to produce a reaction to me. Stiff neck, swollen jaw, swollen gums and tongue and a horrific headache and low grade fever. It was not a good experience! I would certainly give the injection a try after speaking with your dr. Seems they do help some patients. I feel after mine, my neck still bothers me even though before the block my neck was never an issue. I also feel it heightened other symptoms that were gone and now they are back. I feel it spread to my neck, chest and my lower back too. This past week or so, my knees are so painful it's unbearable. Pain meds are not good to take everyday but something like Lyrica etc to try to ease the pain so we can kind of feel normal. I hope it helps you!

Christine716 07-14-2012 05:37 PM

Im really not sure if Im doing this right but I wont know till I try. Im very sorry for all of you who have RSD. I really dont know what to say or how to Im at a very low right now with it. I dont even know how to use these forums so this is my test post. Its hard for me to sit here so Im not going to get into my long drawn out story till I know I can even post right. But Ive been suffering from RSD since june 8 2012.

alt1268 07-16-2012 03:46 PM

christine,

welcome to the forum. this is a great place to learn and share information on our disease. You did great on posting so go for it.

:hug:
Quote:

Originally Posted by Christine716 (Post 897518)
Im really not sure if Im doing this right but I wont know till I try. Im very sorry for all of you who have RSD. I really dont know what to say or how to Im at a very low right now with it. I dont even know how to use these forums so this is my test post. Its hard for me to sit here so Im not going to get into my long drawn out story till I know I can even post right. But Ive been suffering from RSD since june 8 2012.


ginnie 07-16-2012 04:21 PM

Hi Christine
 
Welcome to Neuro Talk. You posted just fine. You will get alot of others stopping by to say hello to you. This site has lots of compassion. I also have RSD in my left foot and ankle which is new to me too. I most certainly understand what has happened. I will pray it does not spead. Hope you can find the very best doctors to help you through this. I go see my own pain specialist tomorrow. She is also a Physiosist, which is a branch of medicine, that deals with issues at a cellular level. I take B12 shots and some other suppliments. I will be here to talk to. I found NT about two years ago, and never wanted to leave because of the good friends I made. You will make some friend here too, and get support while you deal with the condition. Again welcome to NT. keep posting just like you did. ginnie:hug:

Pidge_Jen 07-24-2012 04:00 PM

Hi, I'm Jen,
I got CRPS in my left foot six years ago after fracturing a small bone in my foot. It wasn't diagnosed for five years, and it has now spread up my leg, to halfway up my thigh and is starting to spread to the other foot. I work in the medical profession and I've yet to meet a single colleague in General Practice that has heard of CRPS/RSD.


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