Thanks for the warm welcome, and while I feel remorse for anyone feeling what I feel I can't deny wishing others existed that know my hell. Maybe it has more to do with feeling alone with a foot on fire but no smoke or perhaps it is a resentful response to suffering and being told "deal with it or we'll cut it off" but either route still leaves the guilt of hoping to talk to others that know.
I obviously have pain from the original injury but have never wanted sympathy or even for others to know I had been injured and so never had a team for the pain, only surgeons that performed a half dozen fruitless surgeries. Wincing in mid conversation makes it impossible to hide at times, as well as the stumbles and trouble with hiding a limp so I've mentioned the problem far more than I've wanted. Especially to myself. Told myself I deserve the pain, that I'm weak for it to bother me so much, that I'd be better off amputating it, and eventually got to a place where I was able to decide that feelings do not matter.
I hid the injury from myself and the world until a couple years ago when I was forced to admit to myself that it is getting worse. Now it seems it's all I can think about or talk about so I am sorry to go on and on but be assured I am trying to keep things concise. I am just really happy to finally be among people that carry the same burden or support others that do. I appreciate your care for one another immensely.

Hello to new folks/new med for RSD
 

I just wanted to say hello. I do have RSD in ankle and got a new lotion from my physiosist. This has reduced the need for medication to where I can cut down. I never thought there was something that would work. It is a mix from a pharmacy that origionally an orthopedic surgeon wanted me to try. Hurts to rub it in, but afterwards the burning eases up. If anyone wants to know what it is:KETAMINE/CLONID/GABAP/MIPR./MEFEN/ACID/TETRACAINE (5) 2/6/3/3/2%CREAM I was very happy to find that this helps alot. It may be worth it to ask your doctors. I wish the best for all of you. ginnie

Hello. I have had RSD for about 9 years now...and after diagnosis I have tried every medication and hospital treatment available to me with little or no result. It's been difficult not knowing anyone else going through this and dealing with all of the losses that come with this disease alone.
Sometimes I feel like I can't handle living like this for the rest of my life...it keeps getting worse and doctors keep giving up on me...now I am on nothing for pain...and the level of it makes me feel ill and weak most of the time. Just talking about what I have been though would help me but it's been 9 years of struggling to find that. I am young but maybe my medical experiences would be of use to someone who is wondering about treatments.

Right now the biggest struggles for me are coping with the pain...the loss of enjoyment in life and being denied real friendships...I really have no one left to talk to about this and in 9 years I have never really spoken to anyone else with RSD. I can't talk to people my own age because they don't understand me and my walking and memory problems scare them away. Is anyone listening?

Hello Elsie, & all new members posting on this intro thread.
Please be sure to also post on the main RSD thread list section, members might not notice posts in this section.

We would hate to have you think no one cares. :grouphug:

On the main RSD/CRPS section you can have your own thread for hello's and sharing.

Here is the link to the main RSD/CRPS threads list -
http://neurotalk.psychcentral.com/forum21.html

and to make a new thread here is the link for that-
http://neurotalk.psychcentral.com/ne...newthread&f=21

Thank you very much, I wasn't sure where to start.

Hi Elsie
 

Glad you found Neruo Talk. A warm welcome to you. I have been here for about two years, and have met some really great people. I also have RSD in my foot, ankle, and calf. I have a lotion that really works, has five different compounds in it. It may be worth your time to ask your doctors about it. First ingrediant is Katemine. This blocks neuro pain. I cannot compair our different types of pain, I only know for my RSD this truely works, and has allowed me to drop some of my medications. It hurts to rub the stuff in for a minute, but it is worth the discomfort to have the relief afterwards. I can write out the total script and all ingredients if you are interested. I hope Neuro Talk and all the folks here make you feel at ease and welcome. ginnie

Yep Ginnie
 

I have that same cream, and it is good for the nerve pain aches which come from overdoing....... Glad it came into being!

Caring and caring,
Mark56:grouphug:

Hi Mark
 

So glad you have that cream too. For me it has been a real blessing. I have been sending the ingrediant list to others also. I don't care for rubbing it in, but it is worth the discomfort for the time it does some real good. I sure hope it works for you and for others. ginnie asap

New to the Group!
 

Hey, I have been diagnosed with RSD for one and a half years and I am 17 years old. I use to soccer and run for my track team. But in 2007 I broke the growth plate in my ankle, that was just the beginning of many casts , doctors, and pills to dull the pain. In 2010 I had my 1st ankle reconstruction surgery to take out bone what grew back in the wrong area, and to clean out the sinus tarsal, they put an implement in my joint so it wouldn't collapse. I was able to throw discus for one year but it was very difficult and I, honestly, sucked. At practice one day I twisted and the implement twisted as well, so 364 days after the 1st surgery I had my 2nd surgery, they took out the screw and cleaned out inflammation and anything in the way. I was casted, yet again and my hope by then was long gone. I was finally diagnosed with RSD when I got out of the cast and still had the issues, the pain, burning, sensitivity to the littlest thing and more pain. Every day was the same for the 2 years, now I am a senior and throwing through the pain, I have came to the conclusion that I am going to hurt even if I sit at home so why not do something I love. I can only do things for so long but I am proud to be able to do what I can. I lettered in track last year, a major accomplishment for me, i fought through so much pain. I am now using acupuncture and medicine, which only take the edge away if they even work. I have had many spinal blocks but they haven't helped like my pm hoped. I am in need of support and ideas for where and what to do. Noone around me knows what I am going through and I can't handle not talking about it anymore, it is difficult for me to talk about the issues that come with the RSD because, to people that don't have it, I feel like I just am a bother and they get tired of me complaining. Well, sorry for the extremely long post but I wanted to let everyone know about me some.

Welcome to Neurotalk. Inparticular, the rsd forum. I am sorry that you are going through this at such a young age. I to fell and crushed my ankle. I have had 2 surgeries and many lsb's.

Here you will meet lots of people and make new friends. We learn from one another. So I hope you enjoy your experiences here.