Hello out there! I was just diagnosed with CRPS a week and a half ago. I live in the great Pacific NW also!! So thankful to find an active site. I am sort of going crazy trying to find out everything I can and mostly what is normal and what isn't.
I also have fibromyalgia and systemic lupus, but the lupus has been quiet lately (thankfully).
I fell off my bicycle last September and hurt my foot. It just never got better and in fact is worse. Had multiple MRI's and x-rays but they couldn't find anything broken, just soft tissue swelling and inflammation. I'm relieved to have a diagnosis, but not necessarily happy with it ;)
The area is my left foot/ankle, but it seems to be spreading up my leg. The swelling is awful and the tenderness is exquisite. My doc put me on Celebrex which is helping with the pain, but still get shooters and lots of burning, aching type pain. I go back to the doc tomorrow to see what is next. This is not fun and I'm ready to quit playing.
Miz Lizzie aka Queen Foothurtsalot

lizzie

wanted to welcome you and come down and join any time you feel like it. ask away.. i ahev had full body RSd for 11 yrs..
im sorry that we had to meet this way..

come down and join the crowd.
ask anything and everything.. there are alot of great people here

welcome again

carrie

Welcome Lizzie!

Thank you! Was wondering if anyone has experienced a light rash that hurts like a horrible bruise. Pain and swelling seem to be moving up my leg also. This sucks - sorry, had a fitful night without much sleep. I can't even imagine having this full body. You must be very strong.
Lizzie

New in Baltimore
 

Hi,
My name is Jeannine...Im 51 and was injured at work on June 24th 2008...I was diagnosed in November with RSD...Right now I am home again after a nasty flare up...ugh.. This whole experience started when I was coming down the steps after punching in and somehow, God knows, I missed a step and landed on my left foot and ankle, twisting the ankle inward and landing on it....As time goes on Ill tell more about my experence so far with this crappy thing that ruined my life ...I am on Lyrica...300 mg 2xdaily and right now on another Predisone pack and hydrocodone with Apap..I have been on Lexapro for quite awhile, so no other antidepressents were needed...anyhow, if you all would not mind me looking around this site for awhile, Im learning so much, Ill leave more messages...sorry for rambling and any typos, as either the Lyrica or the RSD has left me a bit scatter brained ...
Thanks,
Jeannine

Welcome Jeannine!

Be sure to post on the main RSD forum also - sometimes a single post here may not get noticed right away.

Main RSD forum -
http://neurotalk.psychcentral.com/forum21.html

Juliette
 

Hi all
I have recentley been told I have RSD due to either Radiation treatment I had in 04 or carpol tunnel in both wrists,I have pain in my kneck shoulder arms and fingers, both hot and cold sensation in hands and fingers/arm and stiffness in my fingers. The Neuroligyst started me on low dosage of Gabapentin four days ago I am to call his office in two weeks to see how this is helping then see him two weeks later.
I am noticing a few strange things going on the other day I tried to shut a door but kept missing it eventually I shut it it took five attempts I kept miss judging were the door was, has anyone else had these experences, and when e-mailing I am missing some letters in the words I type I have to keep going over it I never had this problem the same is happening with my speach not getting words out the way they should be I hear my self saing the word wrong but to late gone and said it I asked my son if he wanted some peckers instead of peppers that kind of thing not all the time just some.
Thanks for any help you all can give to me.

julette
 

Hi Angie
Yes I too have this happen and then somtimes forget what the word is for something I asked my son to get his wash basket but got as far as wash in the end I just pointed to it and he said wash basket its very frustrating and then I dont say the word right like saying pecker for peppers that kind of thing. I have only recentley been told I have RSD so very knew to me. Like you I have pain and stiffness in my fingers and it must seem to my husband that Im going on a bit about this that and trying to find out what its all about and how it affects me, it seems like everytime he walks past Im on the computer doing research I just hope he doesnt get fed-up with me talking about it. I also have the pain in shoulder and arm hands/fingers with both heat and cold and tinling in hands I drop things alot and loss of strengh in arms and hands for me this could have been caused with having Radiation treatment for Cancer in 04 or that I have carpul tunnel in both wrists not sure which. I have not had anything go purple in colour but have read that this can happen its really frightning to know some of the terrible affects this can have on your body.

doctors
 

Hi Diane,

I am newly diagnosed with RSD and new the the area where I live in NJ. I have had NO luck finding a primary care Dr. who will listen and is interested in helping me piece this together. I have been to neurologists, neuro-surgeous, pyschiatrists, pain management, ............. I leave their offices in pain, begging for help, to no avail. I can't find a single Dr. lead alone a team to work with me. It's been 11 months, I have had no therapy, I feel like I am being lead in circles and I am afraid the longer I wait the more progressive my pain/damage will get.

What types of Dr.s do you see? What are their philosophies? My current pain management guy takes an "anesthesia-based approach." He does nerve blocks, epidorals...but that seems to be about it. I have exhausted my brain to find help. I feel so desperate and I haven't a clue how to begin to find someone I trust that can help lead me in the right direction.

I would appreciate any ideas about types pf Dr.s, their philosophies, drugs, therapies, etc...

I have RSD in my foot/calf/lef from herniated disks/back surgeries.

Thank you!

welcome to this site!
 

I have only been dx'd about 7 months ago, so feel free to ask anything and If we know or think we may know< we will answer u!! Have a good day!1:eek::hug:

Jacqueline, We have some thngs in common. I had tos surgery w/ sympanthectomy 20 yrs. ago , for 15 yrs I called the rsd "my nerve damage" The surgery gave me back the use of my arm and alot of the pain was gone. I had other injuries that kept me "couch ridden" for several yrs. I have dealt with alot of your symptoms and have gotten relief with some and learned to live with others. Did you have surgery under both arms? Do you sweat at all? Do you do any jerking?I also had problems with PT and different exercises I've tried over the years. Scar tissue can be a huge side effect that effects everyone different and cause it's own problems. The best thing I did was see a massage therapist. She was very experienced and had a school. She taught me more about my body than anyone. We end up with scar tissue simular to someone who has had a mastectomy. between the frozen muscles(neck back right leg) and s car tissue I had alot of spasms, pain, jerking, toxin build up. you also get referred pain ( a tight muscle pinches a nerve causing something else to hurt) I saw her 3 times aweek for several years. It was painful and I was nauseated afterwards( release of toxins) i even drained thru a place in my back and one in my arm. My body couldn't get rid of all the toxins. It was months before I would let her touch my arm and I cried alot but I got better. The other thing I did was see a chiropractor she recommended .Someone on here spoke about using an applicator or what they call the "grostic technique". I was shocked the jerking I had done for 4 yrs almost completely stopped, my colon , interstitual cytistist( i didn't know alot of people had problems with this) back spasms were greatly improved. I have run out of room. email me Would love to talk of skins problelms Denise

New to the site
 

Hello all,

Here is a short version of my story. I had knee surgery 10/07, long painful recovery not going as well as anyone had hoped finally diagnosed with CRPS 01/09. Have been going for treatment since then hoping for the best also learning as much as I can. One of the most difficult part for me thus far is family who do not comprehend my pain therefore are not very supportive. Luckily my Mother and Step Father have been amazingly supportive to me. My Mother is who actually found this site for me! I have already read through the survival kit thread, found it very helpful. Wish you all a pain free holiday weekend! :hug:

Welcome crpslouisa! You are not alone in dealing with family who doesn't understand. My wife has RSD and it the oldest of 8 siblings. Only one out of the bunch keeps in contact with my wife. All I can say is flood them with as much information about RSD as you can.

I'm new here....on my birthday last summer I was holding a ladder for my hubby to trim a split tree limb hanging over our power lines...bad idea. He fell off the ladder and as I worried about him getting hurt, I held the ladder as long as I could...it finally came down and with a crack it hit my anke knocking me to the ground. I knew I was hurt badly...and on my birthday. This wasnt an regular ladder, it's one of those metal extension ladders. So, I got up and hobble into the house, knowing it was bad. I refused treamtent that day and went out for lunch carrying an icepack with me. The next morning I couldnt stand. Went to the urgicare, they took an xray and put me in a aircast. It wasnt better in the week they said it would be, went back they knew something was differant. Send me to an ortho and he said it looked terrible...nice hu? He sat over me, pulled off the air cast and said. THAT'S NOT GOOD...just what you want to hear. He couldnt touch the bruised area it was like he was ripping my skin off. He mentioned RSD and said to goto PT...went to PT and for a week and a half was in horrible pain at the hands of the therapist. She knew something was wrong, sent me back to the doctor and they ordered an MRI, it showed a torn tendon...great. This time it's now about 3 months after the injury. Went to a new foot surgeon, he was nice. He first thought RSD but said he needed to fix the tendon, I had a special brace made to get me through the holidays and then have surgery. I did, woke up in the recovery room in horrible pain. the nurse said it wasnt possible he injected my ankle with something to block the pain...I ended up getting morphine and was still in pain...well got sent home. This was just a surgery center and not a hosptial. I got home with my cast on and was just feeling like I wanted to die. Hubby couldnt understand why i hurt so much, why the pain meds didnt help...I couldnt put my foot down without crying. Well came time to cut my cast off and I told the doc it felt like my skin was tearing off my ankle...it wasnt the tendon, it was RSD. So, I rehab from that, in a wheel chair since I cant walk. Finally i was sent to see a nureologist who did a nerve test to diagnos RSD, great. HE refers me to the Cleveland Clinic Pain center...now I am currently having these nerve blocks that seem to basically do nothing....I am at the end of my line. I just dont know how much more I can take.

thanks for listening.

Hang in there heartbeatmom! The Cleveland clinic has a good reputation, I believe. If I were you I'd look into Ketamine infusions. Since you are in the early stages of RSD the infusions may help you and possibly put you into a remission. The earlier the better.

Welcome to the boards, heartbeatmom! I am so sorry that you went through this and are going through this, but please hang in there. We know what it is and we're all here for you if you need us!

thanks.:)

i have never heard of Ketamine infusions...what are those? I am having the lumar injections with no relief. I was injured last august and it's been a nightmare ever since.:(

heartbeatmom, here are several links that will explain. :)
http://www.rsdhope.org/ShowPage.asp?PAGE_ID=82
http://www.rsdhealthcare.org/index.html
http://www.rsdfoundation.org/en/Ketamine_Treatment.html
http://www.rsdhope.org/Showpage.asp?...1&PGCT_ID=4210
http://www.rsds.org/3/treatment/ketamine.html

Also new....
 

i, too, fell at wk in 4/08 & broke left wrist. came out of cast w/RSD. i see a PM dr, psychologist, OT ea. wk, orthoped. - & neurologist, as i have epilepsy, too! the "mess" has crept up my arm 2 shoulder 2 left should. blade! i take 1500mg neurontin, celebrex (hurts 2 type), & all my seizure meds. just saw my foot dr today as i thought my plantar fasc. was acting up...... oh no, he thinks it's worse than that! burning pain & knife pain in foot - all of the left foot. i know my worker's comp is gonna die! i've been blessed, tho. i've been home over yr & receive my salary. my family is great - my husb. is an angel! i know God has a plan 4 me..... i try 2 think every day: if i get up & have a pulse, God has a purpose 4 me that day! hope u hang in there!

Hello, my name is Steve and I have RSD from an ankle sprain a few years ago. I suffered the injury on the job, but my employer claimed they werent aware of this, so I was denied WC. I haven't worked since 11/2006, had to sell my home, and have spent nearly all my life savings. Worse yet, I have to live with my parents at 37 years of age.

Stories & Intros
 

i fell at wk in 4/08 & broke left wrist. came out of cast w/RSD. i see a PM dr, psychologist, OT ea. wk, orthoped. - & neurologist, as i have epilepsy, too! the "mess" has crept up my arm 2 shoulder 2 left should. blade! i take 1500mg neurontin, celebrex (hurts 2 type), & all my seizure meds. just saw my foot dr today as i thought my plantar fasc. was acting up...... oh no, he thinks it's worse than that! burning pain & knife pain in foot - all of the left foot. i know my worker's comp is gonna die! i've been blessed, tho. i've been home over yr & receive my salary. my family is great - my husb. is an angel! i know God has a plan 4 me..... i try 2 think every day: if i get up & have a pulse, God has a purpose 4 me that day! hope all of u hang in there!

On a reply to one of my threads, SBOWLING said that they went to Dr Schwartzman in Philly who is a RSD specialist. Don't know if that helps you, but there ya go. Take are and keep your chin up; we're here for you.

Hi, My daughter is seeing Dr. Kirkpatrick in Tampa Florida, I got an appointment right away within a week and Ketamine infusions with in two weeks. The cost was $7500.00. He is the RSD Research Institute. RSD Foundation. They are located on Busch Blvd. Tampa, Florida.



Good luck to you,

newbie to the forum
 

[FONT="Comic Sans MS"][/FONT
Hello,
I am new to the forum and am so happy that I have found it. I was diagnosed with RSD/CRPS a year ago after having a staph infection in my lower left leg. It is now spreading and I have been to doctor to doctor trying to get them to listen to me. I finally found a good pain management dr. and he doesn't take my insurance. There are very few doctors in my area that will honestly diagnose and treat this disorder. I don't know what to do.

I also was born with Cerebral Palsy that has effected both of my legs, so now I have a double whammy with the RSD. I just need someone who will listen and a place to sound off when I get down, because as a lot of sufferers know you can't always get the support of their families.

My family is suffering because I used to have 2 jobs and now I can barely take care of my house. My husband tries really hard to make it easier on me, but he misses the way I was before. He continues to be wonderful, but I would like to make friends on here who understand why I don't want certain material on my leg and arms, and why some days are good and some days are really bad.

Thanks for listening.:)

Welcome!
 

welcome to the forum! i've had this horrible mess 4 a yr now. i know how u feel & understand the good days & bad days!! r u on meds? i take 1500mg of neurontin/day plus meds 4 epilepsy. it's good 2 have so many friends that understand...... b strong - take care! :grouphug:

rsd
 

I am so sorry you are dealing with all that. I got rsd 2 yrs ago following surgery on my thumb. I could not believe how painful it was. I received nerve blocks for a few months and physical therapy. The blocks worked at first, then it stopped working. The pain doctor suggested a Vagus nerve stimulator but another doctor told me I was not a candidate for this. I continued physical therapy with great relief. It all but resolved. I had some residual stiffness, and could not quite close my right hand all the way---but was tolerable. I had surgery on my left hand in March, although I was very worried about rsd, I did fine. It is taking my left hand longer to recover then expected, for some reason. I have cervical dystonia and had my second treatment of botox on July 10th. During these injections he had doubled the botox amount because it wasn't enough last time. He puts most of my shots on my left side---(neck and upper back muscles). This last time he also gave me some shots in my right side of my neck. That evening My right hand started feeling like my rsd was coming back. It was better in a few days, but now hurts when I use it?? does it return? could it of been brought on by my botox shots?? I have it slightly in my left hand, and a get alot of burning in my feet, and a swollen feeling, which comes and goes??? Have you or anyone had a recurrence of symptoms like this?? I also have many other neuro problems, so I am not sure what is what. I have not seen a doctor about these new episodes and I am thinking that I should. I am just soooo tired of going to the doctors for another problem!?? If you or anyone has insight to any of this please let me know. I hope that your situation improves for you sooon. Take good care----hutch

i was diagnosed 2months ago i had surgery on my foot for servere tendinitis i agreed to have the surgery but i never thought it would turn out to be this way 3 days after surgery the doc said you have rsd and all he could say is he is sorry i really dont know when i will be able to wear a shoe again.my calf muscle has waisted away it very weak there are days when i cry myself to sleep at night i really dont know when i will be able to go back to work i really need to research more rsd from what i read on the internet there is no cure for rsd i dont believe i can live with this i hope and pray there is a cure :hug:

Welcome maryam, very sorry about the diagnoses. When you do your research look closely at ketamine infusions. This may be the way for you to go since you are in the early stages in which this procedure has had good results. Get as many friends and family to help you and move as fast as you can manage.
ttp://rsdhealthcare.org/Institute_Announcement.html

so sorry ur so miserable. u have joined a great support group! i've been diagn for 15 mos. now. i think there's control - maybe remission - & not complete cure! everyone has great advice...we've all "been there kinda thing"! my prayers r w/u. get a good dr., helpful meds & depend on God! :hug:

hi...new here and worried
 

i donated blood two days ago, and the tech/med assistant (positively) hit a nerve. :(the bag was filling up fine but by almost the end, she said that the it was running a little bit slow and decided to move the needle to somehow facilitate faster blood flow. as she moved the needle, i felt electricity running down my arm to my fingers,i said it hurt then she let go (with the needle still attached). she asked me if the pain is gone, i said somehow just dont touch it and just let the bag finish up. as soon as the bag got filled up, i guess, she was scared so another tech took her place removing the needle and bandaging me. anyway, i went home (sore with intermittent jolt depending on my arm positioning) but i ignored it. i just thought that it's no big deal and that it'll go away. the blood draw was done on my right arm, too, which makes it worse since now i can't even lift a spoon to eat with my right arm. well, it's been two days and the pain seemed to have increased. im sorry to sound a little too concerned being that it has only been almost 3 days and that i've read a number of posts here of people suffering for years. but i am really worried. i have no insurance at the moment. am still in school studying to be a nurse. i am afraid that this might be of a bigger problem to me later on. :confused:are there ways to help alleviate the pain? will movements on the affected right arm cause further damage (i am right handed)? any help is greatly appreciated...(especially cause just typing this took me about 20 minutes with my left hand):hug:

Hi. I am new to this site and was just diagnosed with rsd/crps. I was at work and went into a quick squat (and they always say exercise is good for u...hahaha) and tore my popliteus muscle (muscle behind the knee) and tore a ligament in my ankle (inside portion) which I didn't find until 3 months after the injury. My foot and leg filled with blood and fluid, which in turn damaged my nerves. Anyway, I came out of the fluid left with rsd/crps of my right foot. I have been going to therapy and now going on the 5th month, am not sure if this is going away. I've been reading eveything that I can read on this and it seems that no certain regimen is a protocol for everyone dealing with this horrible beast. I'm now starting to feel weakness and pain going up my leg, not sure if that is the symptom of spreading or not???? Not sure what to do or where to go from here. Trying to get some blocks and go do more therapy. Anyway, I'm trying to read all of ur stories (which give me some hope) but it's hard to retain all the information because I have so much on my mind....very nice to meet u all and hope all get a break from the pain. Thanks!

Hi! I'm so glad to find a place to communicate to other RSD Patients. I developed RSD after an elective foot surgery, & suffered thru bilateral pain, bur, crushing sensations for 5 yrs..always watching the internet, & chasing down the doctors working with the ketamine infusin treatments. I was treated at Drexel Univ by Dr Schwartzman in a 5 day in house infusion, with the pain disappearing after 6hr of the infusion starting. The pain was gone for 9 months, during which time I received the protocal for outpaient boosters from a San Diego MD,anesthesiologist, at his outpatient surgery unit. The good news is that I got him started on setting up this program here on the west coast, and he has set up the billing with insurance companies to have it covered. Yeah!!! I'm sure there are many patients that are ready to try this treatment instead of going on with their high doses of opiods, steroids, epidurals, morphine pumps, back pain stimulators etc...all of which end up failing & causing worse problems. I hope many of you will look into the ketamine infusion success stories..there are many good articles at RSDSA.org. Good luck..I hope I can help anyone!!!858-547-9991...Barb:grouphug:

Barb,

It's great you were able to do something for other patients. However... with RSD, you know it's not one size fits all. It's hard enough to find something that works for us as an individual, so I would certainly not generalize and say that Ketamine is THE one and only treatment and we should all try it. That's a very dangerous thing to say.

rsd and surgery
 

I was diagnosed with rsd 3 1/2 years ago in my left arm. After 2 very painful years I slowly went into remission and was feeling great. I just had very minor surgery on my foot and I have a feeling it came back. I have very painful burning on my foot, but the opposite side of where they operated on. I think my doctor thinks I am crazy because he says I am not suppose to have any pain. I am going to wait a few days but my foot is so sensitive that I can't even walk on it. Has this happened to anyone else? the pain is so intense.

My huband suffered a major chemical burn to his leg in 1995 - It was a work related injury. MSDS sheets were not available, he sat with this stuff on his leg for more then 24 hours. We watched the acid literally boil under his skin. It was a horrifying experience. We thought that was the worst of it until about a month later he was diagnosed with RSD. Then the real horror began. He fought for months and years through therapy, blocks, meds with horrible side effects....through lots of work and a pain clinic - a few years ago he was able to "control" the RSD. When I say "control" the RSD I mean he still delt with pain, but the RSD was not controlling him. We started to have a somewhat normal life again after years of suffering.


~ Our New Saga ~

Hubby found a job driving/transporting people (kind of like a taxi but for employees of a specific company) - Vehicle was set up decent for his leg (plus he now has brace) and driving did not effect his leg OVER ALL but there were days when he could not work and delt with pain, cramping and discomfort. He delt with it as best as he could as we have 3 children and he was always our primary wage earner, he felt if he did not do something he was not doing his job as a father and husband. (That male pride thing - Even though he suffered...)

After working this job for a year (some months putting on 10,000 miles or more) he developed ulnar nerve damage (your ulnar nerve is your "funny bone") in both arms. This vehicle he was working in did not have any ergo for his arms, thus the vibrations from the vehicle on roads and on "off road" areas like by railroad tracks and the long miles resting his arms on the side of the door and arm rest caused the casing around the nerve to be crushed around the nerve and there are also other areas of compression.

He was diagnosed with the Ulnar Nerve Damage in early April of this last year 2006 - They did physical therapy for months, tried braces, etc and finally had to resort to surgery (Ulnar Nerve Transposition)....They started with his right arm first.

We were told there was a 50/50 chance that he could develop RSD in his arm - But as hubby had another surgery (unrelated & approx 4 years ago) with great success we were looking forward to positive results and no RSD flare up.

We could not have been more wrong. Surgery took place in October and after a few weeks of therapy with little to no success - he was diagnosed with RSD in his right arm.

Needless to say all further surgeries have been put on hold (so he still has damage to his left elbow and both wrists...)

And here we go again...........

Hubby is currently on:

1.) Ibuproferen 800
2.) Hydrocodone 7.5 3x's daily
3.) Lyrica
4.) Cylexia
5.) Zanaflex (is that how it's spelled) for muscle spasms

He is in physical therapy 3 days a week too and we hope we can put this monster down again.

As far as our family goes, our oldest remembers the past RSD, and now hearing of a new "round", and also dealing with dads ulnar nerve damage has been hard on him - Our youngest 2 did not really experience the early RSD but are trying their best to cope through this new round of medical problems and now RSD. I personally find comfort here and through research. I work (although it scares me some days to leave my husband alone while the kids are in school) for sanity and financial reasons. I come online and here as often as possible. Knowledge is power I say, we WILL find something to tame this beast.[/QUOTE]

My wife received ketamine infusions with no relief. As stated it works for some not others. I do believe if one was to elect to receive infusions, earlier the better.
Kaybee, If I were you I'd would have your husband file for social security disability insurance ASAP. If he qualifies you'll have some income and medicare coverage and if he's able to work in the future either full or part time he can, with a reduction in his monthly check.

What is the deal with physicians in Texas?
 

I have suffered for 7 years with RSD. I have had numerous procedures, was in a Rehab Hospital for 3 months after a MVA that started this entire nightmare.

Here is my problem now: I have found a combination of medications that actually increases the quality of my life & makes life worth living. Problem is: The doctors (Pain Management, Neurologists, etc) are all afraid to write Rx for Morphine. My best pain relief and relief of the other irritating RSD symptoms comes from taking a maintenance dose of Morphine Sulfate EXTENDED RELEASE (MS CONTIN CR) The problem is, I can Not find a physician in the Houston, Texas area who is willing to at least see if this combination works.Here is the combination which MUST be kept to or you are wasting time:
Morphine Sulfate EXTENDED RELEASE (whatever dosage your MD wants to start you on - it can be changed easily enough)
Morphine Sulfate IMMEDIATE RELEASE (for Breakthrough Pain)
An Anti-Seizure Medication - I take Klonopin 1mg BID
An Anti-Spasmotic Medication - I take Flexeril - but you must build up a level & keep that level in your body or it will not work.
An Anti-Inflammatory Medication - I take Lodine 400mg. It is reasonably priced and works.
I also try to keep Phenergan tablets on hand. IF I let my pain get out of control, Phenergan is the only thing that will control my vomiting & prevent me from passing out.

This Works - or at least for me! BUT ... I CAN NOT FIND A DOCTOR IN THE HOUSTON / GALVESTON AREA WILLING TO WORK WITH ME IN WRITING THE SCRIPTS. AND MY DOSES ARE NOT EVEN LARGE!
ANY HELP???
DOES ANYONE KNOW OF A PAIN MANAGEMENT PHYSICIAN WHO WILL ACTUALLY LISTEN TO THEIR PATIENT & HELP THEM WITH RXs AND NOT JUST WANT TO IMPLANT PUMPS & NERVE STIMULATORS? iF SO, PLEASE ANSWER THIS. I AM AT MY WITS END. THANK YOU.

New to the Forum and New to RSD/ CRPS
 

I am so pleased to have found this forum. I was diagnosed by my GP after visiting 2 other GP's in the Practice and an A & E Dr. So 3 months after first seeking help, I'm eventually on my way with a brilliant GP who has a great sense of humour but cares about getting me the best treatment.

The CRPS started in left toes and foot and has now spread to the left knee. I went today and told the GP that my knee was now painful after walking leisurely for an hour the other day, she advised that it might just be that the CRPS spreading unfortunately. She referred me for an Xray straight away and booked me an appointment to see a consultant in a private hospital through the NHS, I had an appointment for 8 weeks and asked if I should cancel it and she said no as I might want to get a second opinion.

I had never heard of the syndrome before the diagosis and was actually quite pleased once the GP told me what I had as I had started thinking that it was all in my head! Now that I have read more about it, I am starting to worry. Not a lot of people know about it and I am really glad to have found fellow RSD/ CRPSers, thank you all,

Gerrimondo