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marybrown5057@yahoo · 04-29-2013, 06:26 AM

Quote:

Originally Posted by AZ-Di

Hi Colin,
I'm so sorry for your suffering with this CRPS! I feel so upset for you at how far it spread! It can be hard for others to understand the range of pains with this. At least you will get good support and advice here. Glad you found this site

I too have CRPS in my left hand and arm after broken wrist and surgery in December '12. I started having terrible "complications" within 2 weeks and luckily my Physical therapist knew what it was and reported it to my Doc about a week later.
In addition to the RX meds. I heard Vitamin C helps prevent spread so I started at least 500 mg. a day, Magnesium 500 mg. (helps inflamation and constipation from opiates) and vitamin D3. Most of all DO NOT PUT ICE OR COLD on CRPS limb, you probably already know that.
How many nerve blocks have you had? Have they helped and how long do they last? I've had 5 with various results.
Keep us posted, good people here.

I was diagnosed with fibromyalgia and RSD, my pain is constant. I am seeing a pain management doctor as well as an orthopedic and neurologist. I got hurt on my job in 2009 and has had multiple surgeries on my knees. Resulting in a total knee replacement on one side with possibilities on the same on the other side. After surgery did I develop the RSD. I am on pain meds but that doesn't work very well along with my other meds for the condition. Can anyone give me some advise on what really works for these conditions?

Djhasty · 05-02-2013, 04:05 AM

marybrown5057
You have been fighting this thing for quite some time. 2009. Sorry to say, there is really no cut-n-dry answer or drug therapy. There are many drugs, but they seem to be different for each person. As far as 'really working,' they help but not completely. The only drug that has shown a glimmer of hope is Ketamine. Even that though does not work for everybody. There are some people that have achieved remission. I believe that is largely attributed to a combination of therapies including much physical therapy. The key though seems to be catching the CRPS/RSD in its early stages. What has your pain management Doctor prescribed for you?

I hope you find relief from your pain soon.

Quote:

Originally Posted by marybrown5057@yahoo

I was diagnosed with fibromyalgia and RSD, my pain is constant. I am seeing a pain management doctor as well as an orthopedic and neurologist. I got hurt on my job in 2009 and has had multiple surgeries on my knees. Resulting in a total knee replacement on one side with possibilities on the same on the other side. After surgery did I develop the RSD. I am on pain meds but that doesn't work very well along with my other meds for the condition. Can anyone give me some advise on what really works for these conditions?

ginnie · 05-02-2013, 07:43 AM

DJhasty is correct. About the most promising of medications for CRPS is Ketamine infusions. Our wounded soldiers from the recent wars were the first the get this treatment. JAMA the journal of Medicine has alot of articles about this medication. I had an infusion of it in my Neck before I had cervial fusion.
It worked for about 4 months. In some of the articles, remission has been achieved. I don't know if it is available in your area, but maybe it would be worth a shot to ask your neurologist about it, and if it would be possible for you. I really hope that effective treatments can happen for all those that suffer with this CRPS. I wish you all the best. ginnie

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