I have found the most remarkable doc I've ever come across. He is a physiotrist and also an anesthesiologist/pain management specialist. He also runs/owns a N.E. Florida HBOT facility. It is so refreshing to talk to this very intellegent man that combines this knowledge from many fields including non traditional therapies.

To make this short, he prescribed a combination pharmacutical lotion that works so well on the skin pain I have. I thought you all might like the formula.
Here goes: KETO10/FLEX1/LIDO10/KETAMIN2.5. The pharmacist mixed it into an approx 8 oz container. Maybe your doc will write you a Rx. If he does, be sure to wear a rubber glove and apply it very sparingly on the HOT zone. Mine has lasted me about 4 months because I just use it for acute pain breakthroughs only. I don't have regular insurance, so my cost was $55.00. A bargin considering the fact that within one minute after I rub a little on my toes, foot and leg, the breakthrough doesn't exist; it is GONE. On top of that, it has lasted for over 24 hrs on several ocassions.

Anyone else had any success with a similar lotion?

Michael

Yes -I have tried similar lotions on my hands for RSD as well as my legs for Meralgia Paresthetica. My Dr. made up several combinations - hoping the one combo would finally work. Unfortunately - none helped. In fact just rubbing the lotion into my hand made me worse. I have extreme allodynia (sensitivity to touch).
I am so happy this has helped you. I know others who reported success with these formulas.
I am considering HBOT. I'd be intrerested in knowing more about this very good Dr. you saw in FL. You mentioned he diod HBOT. I am at my wit's end with constant pain of both FM and RSD. No pain meds for me. NOne work at all. Severe full body pain 24/7.
Sydney

Hi Michael,

That was very thoughtful of you to post that information, thanks!!
all the best

Hi Sydney. Here is the info. Go to www.floridahyperbaricoxygen.com [/URL].
Dr. Murray is great! He told me that he uses several "formulas" of lotion.

If you plan to see him be aware that he rushes no one. He takes all of the time he needs with every patient. He only schedules a few consults a day because of this but, you may still run two of three hours late for your visit. But if that happens, he will not rush you. Several have told me that he is sometimes still with a patient at 8:00 pm.

Please ask if there is any thing else I can help you with.

Michael

Michael,
I checed out the website for the HBOT. Unfortunately it didn'T list Fibromyagia as a condition that they treat. They mentioned RSD on the Home Page but then did not list it on the page where it indicated conditions they treat. Have you had HBOT or no anyone who was sucessful with it?
I am so glad the cream is helping you. I would have to but a huge tub if it helped me as my condition is so widespread.
Well.I may give a call to FL and ask about their tretment.
Thanks for the info
Sydney

Hi Sydney, do give them a call because I know he treats Fibrom. He is a pain doc. By the way, my RSD is systemic, but it is controlled over most of my body with a regiment of Pain drugs. Do you have flair-ups over a particular part of your body, or does it hit you all at once, all over?

Hope you find some help somewhere Sydney!

Michael

Michael,

First let me say Hello, and Welcome you to our family. I'm not sure when you joined us, but I don't think I have had the pleasure of welcoming you.

About the lotion that your Dr prescribed you, is it mixed equal parts? I may see if I can get my Dr to give me a script for it.

Thank you so much for sharing this helpful info. If it helps at least one person then it is a great thing. a lot of people use the Lidocaine patches and since this has lidocaine in it then they might benefit from it as well. I used the patches for a long time and then after my divorce I lost my insurance I had so I stopped most of my meds, including the patches. I am now on Methadone which has helped me more than anything and has allowed me to wear a shoe again, and that it great to me.

I look forward to getting to know more about you. Have a good weekend.

(((((((HUGS)))))))
Janet

I know 2 people who did great with the HBOT therapy- It didnt work for me but I think its worth a try!

I'm glad it worked for you

I wish I could have said the same for me. I was on 2 different ones at 2 different times. They were both similar to the cream you have, in fact, I think one was the exact same as yours. The first one wasn't doing anything so my doctor told me to stop. Then I was put on another one which ended up making my foot swell up really big because of a severe allergic reaction.

Glad the creams worked for you though.

i know lots of people HBOT has helped...

just not me.. (well.. it healed my skin but not the RSD).

Rxxxxxxxxxxxxxxxxx