Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-09-2007, 10:05 PM #1
Sheri Sheri is offline
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Sheri Sheri is offline
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Thumbs up A Question from a newbie

What is the usual protocol for someone who has had the blocks, cocktails of meds, physio and infusions? Thank you for the warm invite you two!
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Old 01-10-2007, 09:58 AM #2
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Hi Sheri,

Getting the blocks within the first 6 months gives you a huge advantage; if they helped, continuing with them is the best option for starters.

As I'm sure you know by now, there is no "one size fits all" way of dealing with RSD; it certainly seems that there is no magic solution for anyone, we all do it by trial and error and because we all react so differently, there are no rules of thumb, sad to say.

Perhaps if you can tell us a little more about the start of all this for you - whether it was set in motion by injury, injection, sugery, whatever - people who may have had a similar experience can tell you how they have managed their pain so far.

You set me thinking, though, I don't think that anyone has done a general study yet into whether one set of treatments - say, for example, blocks pus lidocaine infusion - suits people better with CRPS type 1 rather than 2, or vice versa. It would be an interesting exercise.

But there are still options for you...don't get downhearted; I expect you've already looked through the old posts, there is a wealth of information in them - although I take the point that you are limited by the options in your area. But you're definitely doing the right thing by trying to find out as much as possible to begin with, I reckon,

all the best
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Old 01-14-2007, 12:47 AM #3
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Sheri,
I started a thread with listings of pain management clinics/ centers/ residential programs so you might want to look through those.
There might be something mentioned that you haven't tried yet.

Or if anyone knows or comes across any clinics or centers
-please add it to that thread.

It will be a work in progress..
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