Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-09-2009, 08:52 PM #1
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Smile It official, ;pain pump here we come

I saw the dr. for the final interview for the pain pump trail. He said it was a good. all the paper work from the other drs are in. He thinks I'll be a good candidate for it. Postive attitude, ready to go. He was talking about some of the differences between the scs and pump. Of course, with the scs you must be so careful as to what you can do after you get it. With the pump, you need to be careful, but not as careful. things like horseback riding, etc are all acceptable activities. I should know either tomorrow or the next day when I go into the hospital for the trial. I should be in there about 4 days. then it will come out, and if it worked, then they wait 2 wks then put the perm unit in. Because I throw infections so easily, he wants me to stay in the hospital after the perm pump, just to make sure everything is ok. so I may be in a couple of days more. with the pump, he wants me up the next day, maybe going to the cafateria to eat, walking around the hospital, almost anything I want to try to do that can be done at the hopsital. down to the gift shop, etc. I'm beyond excited. and you know what.....he understands pain. OMG...can you believe it. He was shocked that I'm only on extender release without something for BT pain. he TOLD me that pain isn't constant, things effect it. weather, stress, doing to much. He said that pain control has to change with each day. that you should have a base med, but also have the ability to add or subtract some meds depending on how you are feeling.. I looked at him and wanted to pinch him...was he real. he was...he's wonderful...no sense of umor, but his compassion and understanding is amazing. anyone in Md, Va, Washington dc. needs to see thises PMs iff they aren't happy with their. they are amazing. even the nurses specialzie in PM. I think I 've died and gone to heaven..

Happy Happy Hugs
Mary
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AintSoBad (11-10-2009), SandyRI (11-09-2009)
Old 11-09-2009, 09:08 PM #2
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I am so happy for you Mary, I will keep you in my prayers for pain free days.

Sandy

Quote:
Originally Posted by lostmary View Post
I saw the dr. for the final interview for the pain pump trail. He said it was a good. all the paper work from the other drs are in. He thinks I'll be a good candidate for it. Postive attitude, ready to go. He was talking about some of the differences between the scs and pump. Of course, with the scs you must be so careful as to what you can do after you get it. With the pump, you need to be careful, but not as careful. things like horseback riding, etc are all acceptable activities. I should know either tomorrow or the next day when I go into the hospital for the trial. I should be in there about 4 days. then it will come out, and if it worked, then they wait 2 wks then put the perm unit in. Because I throw infections so easily, he wants me to stay in the hospital after the perm pump, just to make sure everything is ok. so I may be in a couple of days more. with the pump, he wants me up the next day, maybe going to the cafateria to eat, walking around the hospital, almost anything I want to try to do that can be done at the hopsital. down to the gift shop, etc. I'm beyond excited. and you know what.....he understands pain. OMG...can you believe it. He was shocked that I'm only on extender release without something for BT pain. he TOLD me that pain isn't constant, things effect it. weather, stress, doing to much. He said that pain control has to change with each day. that you should have a base med, but also have the ability to add or subtract some meds depending on how you are feeling.. I looked at him and wanted to pinch him...was he real. he was...he's wonderful...no sense of umor, but his compassion and understanding is amazing. anyone in Md, Va, Washington dc. needs to see thises PMs iff they aren't happy with their. they are amazing. even the nurses specialzie in PM. I think I 've died and gone to heaven..

Happy Happy Hugs
Mary
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AintSoBad (11-10-2009)
Old 11-10-2009, 12:44 AM #3
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Mary,
Thanks for updating us! You will be in my prayers. Please let us know how your trial go and the perm go.
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AintSoBad (11-10-2009)
Old 11-10-2009, 12:59 AM #4
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I wish you the best of luck,,,,
there is always a future. It is what you want it to be. The present only exists
one day at a time. The future has vision and it is in your mind. A powerful tool. be safe.
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AintSoBad (11-10-2009)
Old 11-10-2009, 02:52 AM #5
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AintSoBad AintSoBad is offline
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Yes, Mary,
Be safe, and be,
"Lost No More"!

This may, or may not be what you've prayed for..
I pray that it is..!

Be careful, and take it a day at a time, yea?

And, be sure to let us all know how you do!

Our Prayers are with you!!!!

Pete
asb
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