I haven't taken Ambien in months. Lyrica and Neurontin were taken off the table very early on due to severe negative side effects. At the direction of my doctor, I am currently reducing the cymbalta by 1/3, but that will take a couple of weeks to take effect. Other meds include Fentanyl, oxycodone, hydrocodone.

I don't have any problems falling asleep (as I'm always tired), but it is not restful sleep. I can transition from full consciousness to REM sleep in a few seconds, coming out of it just as quickly. The symptoms are classic narcolepsy, but so far none of the doctors have mentioned anything about a correlation between narcolepsy and CRPS. I have heard of a link between RLS (restless leg syndrome) and narcolepsy, and with CRPS in both feet and both hands, it certainly makes sense that the two are related.

Lanie

Hi Kate, That is scary-sleepwalking, my little girl did it when she was 3-4. Found her going out the front door one night. We safety proofed the house and she grew out of it. I know she was a very sound sleeper.
I'm sure you know RSD is an autonomic condition. Perhaps that is the link. I'm glad you are getting to Dr. They may put you in sleep disorder clinic overnight and check it out.
Let us know what you find out. That was what I was afraid of, burning yourself or someone. And your daughter being sick-I'm sure you'll be given good direction to keep you and your family safe.
Your friend, loretta with big hugs

OK Kate,
I'll own up.
This does happen to me, and seems to be getting worse. I thought I could ignore it, but I suppose I shouldn't.

I have no memory of it in the AM, except for the 'evidence'.
Since I live alone.... I can't suspect anyone else.

I think I can get up and cook, then, I had a bad time with email during the night, (and when taking 'Keppra', I could get short, or curt in these emails.) Thank God for understanding people!!
Ali here, gave me that tip on the 'Keppra'.

My doctor has me dx's as 'transomnnia'.
I've been sleep studied,
got a CPap machine, and and Oxygen concentrator.

I think I've tied this into it, If I forget and fall asleep w/o the CPap, that is when I'm more likely to do this sleep walking / cooking / typing....

While I believe it's due to the RSD somewhat, I also have a brain injury. That's when the real trouble started.
Stress, is a detriment again, with this.

Kate, you're in my thoughts, and prayers, along with your family...


Pete
asb

I was taken off Ambien completely last week due to sleep walking. Was taking 5mg for about 6 months then psychiatrist upped it to 10mg about a month ago. I was tired at night but was always getting up to do something. I took our dog for a walk in the middle of the night, trimmed some trees and did yard work - activities I normally do not do at 11PM. When I finally figured out something was wrong was when I thanked my husband for taking down some vines that had been growing wildly. He said he didn't do it. I do not remember doing it. I guess I could call it sleep landscaping.

Have been on sleeping pills (Lunesta and Ambien) for about 7 years. Needless to say I'm having a heck of a time getting any sleep now. Fortunately I see the psychiatrist tomorrow.