Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-22-2009, 10:56 PM #1
Cake Cake is offline
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Join Date: Sep 2006
Location: Australia
Posts: 148
15 yr Member
Cake Cake is offline
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Join Date: Sep 2006
Location: Australia
Posts: 148
15 yr Member
Default Sleepwalking Anyone?

This has become a bit of a worrying habit for me and I wondering if it may be related/caused by either my CRPS or by the MS Contin I take (which is 60mg a day at the moment). The first instance of sleepwalking happened when I was at 30mg a day and that was around 3 weeks ago. It may have happened between then and now but these ones I know about for sure, as there was proof of them the next mornings.

Each time it has happened I did three or four worrying things in that night, not just one. For instance, on the first night,I turned the air-conditioning on in the middle of the night when the temperature was already really cold; I boiled the jug numerous times to make 6 cups of coffee; and I woke up wearing clothes that not only did I NOT go to sleep wearing, but they had been in a huge pile of clothes in the laundry room and it would have been almost impossible for me to find them without being awake.

The second time, last night, I boiled the jug twice and poured all the boiling hot water into a bowl of popcorn; my daughter came out of her room in the night to find me holding a box of chocolates and then hiding them from her, like I had been sneaking them even though I know for a fact the box of chocolates was already empty (Matt ate the last chocolate the night before); and when she told me she was going to chuck and needed a chuck bucket, I mumbled something then went back to bed, leaving her in the lounge on her own.

The full details are on this page of my blog: http://thesixofus.wordpress.com/2009...alking-antics/ and there's a link on that page to the first time it happened.

The worrying things with last night's situation is that I boiled the kettle/jug two times and poured it all into a big bowl and I could have easily poured it onto my feet instead and suffered major burns, plus I ignored my daughter when she told me she was going to chuck- which is something I never do, normally if the kids wake me up in the night I'm 100% awake straight away.

The meds I'm on are MS Contin, baclofen and endep. I've been on the baclofen and endep pretty much straight for years. I've been at this dose of MS Contin for about a week, and before that I was on the dose of 30mg for about 3 weeks. But I've been on MS Contin a few times over the years, at varying doses for over 6 months each time, and have never had this happen.

I've lived with insomnia as a part of my RSD for years, averaging between 3-5hours sleep most nights, and I know that's a "symptom" of my RSD, but the sleepwalking is a new thing.

Does anyone else sleepwalk? Does anyone have any insight as to why this keeps happening?

I see my doctor next Thursday and will discuss it with her then but I'm feeling very worried about this as I don't know why it's happening and whether it'll happen again.

Any thoughts on this would be great

x Kate
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RSD in right arm for 13 years, right leg for 8 years, left arm since May 2013, with full body symptoms and CNS.
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