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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Junior Member
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It's been awhile since I've posted anything. I had a Sympathetic Lumbar Spinal Block that lasted about 6 hours only, which was slightly devistating to me. My doc referred me to another pain management doc, who examined me, looked at her nurse and said" If you want to see a classic case of CRPS II look here" She then ordered a trial for a SCS. The friday before the procedure, she called and said due to the rapid spread of my crps, she is very reluctant to try it at this time. Within 2 months my crps has spread from my left foot to my hip. She referred me to a physical therapist and psycologist.
I have had two appointments with the psychologist. These appts have left me feeling even more depressed. The first visit he asked my pain level, I told him it was about a 35 and has been that way since Jan. He told me that I was not credible as this was not a correct way of saying I was in pain. No one would have that amount of pain since Jan with out relief, and 30 was not an acceptable way of gaging pain. I told him that with crps it is common to use the McKee pain scale instead of the other one used for regular pain patients. He asked me if I thought I was in more pain than others. I said yes and he chastised me for saying so. He told me that I have no knowledge of what kind of pain someone else suffers. This past Tuesday he asked what my plans where for Thanksgiving. I said I didn't have any, my mother whom lives with me will be dog sitting for her brother and my daughter will be spending it with her father. He asked me how I felt about it. I told him that I really didn't care as holiday's are just another day. I have grown up with my mother working 11-7 and I worked as a chef/Food and Beverage Director. He asked me if I could call on friends to spend the day with me. I told him that I hadn't and probably wouldn't because they have their own families to spend the day with. He told me that I was using my crps as an excuse not to have friends or family with me on a holiday. I was using my crps as an excuse not to live life. I told him that when I try and do normal things, I end up in more pain than I started with or I get nauseated. And again he chastized me. I left feeling more depressed than I went in. I don't understand how he could possibly understand the pain, the feelings that I am dealing with. I don't even want to tell him the despair I am feeling at loosing my career, my mobility, my hobbies, friends, you name it, whatever comes with this disgusting monster that we deal with. He told me to find other hobbies to occupy my time.How do I explain that I am lost not knowing what is going to come next...full body, mirror, etc. Monday is first day of hunting season and I am going to miss it because I am not walking and can't bear sitting in cooler weather. That was my relaxation, just to get out in the wilderness and hear the silence. Now what do I do? I'm sorry for venting, but apparently the one that I am paying to vent to has no clue as to what I am dealing with. Has anyone else dealt with this? Any help would be appreciated. Thanks Susan |
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"Thanks for this!" says: | loretta (11-27-2009) |
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