Thank you Denise,
 

Denise, thank you for such a kind post. I really appreciate it. I am really frightened for you having had the melanoma surgery. It is certainly something to take seriously and stay on top of from here on out. My husband had two removed from his arm last year. I think you post idea is a great one. I believe in the puzzles that it mentions in stage 4 cancer is not uncommon. i think it is something many of us worry about along with stroke and heart attacks with rsd but dont like to talk about. I would be very interseted to see the response, thank you again Denise from the bottom of my heart for your empathy.. Sincerely, cz

Sandy, thank you so much.
 

Sandy, thank you so much for the support I did need it , im been having a really rough time. How nice of yur to remember that I was in Germany for the Coma treatment.
I appreciate the nice note so much and the well wishes, It means alot. i guess with things progressing steadily Im just getting a bit too down. this type of support helps alot and I sincerly appreciate it. I'm not really a whinner, i was just having a particuarly bad day. I hope things are going well for you. Please let me know if your up to it. My very best to you , God bless, cz.

Dear CZ,

I honestly felt very badly that I had missed your post and I must have been having a bad day myself because I when I read back what I wrote I did not mean for it to come out that way. I was wrong in how I worded my reply to you and I hope you will forgive me.

MsL

You surprised me and I do understand,
 

Msl, thank you so much, I am so sorry to hear you are having a bad day too. I know it seems like the anguish we have will never end sometimes. I understand it did not come out the way you meant it- happens to me all the time, thank you for straigtening it out for me- I really appreciate it. I hope your day and week gets so much better, thank you for everything, sincerely, cZ

Bad days and feeling unheard...
 

HI there, CZ. I can so relate to your post of dismay and hurt. It is hard to expose our vulnerability to "thundering silence". I likely was baffeled by your symptoms or diagnosis and simply skipped over it. Now I am reminded that I too have a complicated disease which is truly a rare disorder. I feel lonely and unseen here quite often, some posts exploring my options are too unknown for any responses.

I believe it is not due to any lack of great, compassionate, wise folks on site. Just my luck of the draw in this life. Thank you for verifying that for every post I thank, or send a validating message, there are possibly grateful, warm hearted appreciative folks, (hopefully anyway).

Conversely it is likely I often add unwittingly to the burden of lonely folks who often feel isolated and hurt, by offering only silence. I will continue to try and reach out when I am able. I hope others will do the same for me.

I know there are no guarantees. I cannot expect to "derive" compassion by giving it to others. But it is important to give it anyway. For myself, to offer without expectation, is the least harmful to my own self esteem. I hope you do feel heard and understood by the many responses here
We never really know how we affect others in sometimes amazing ways. So again Thank you for expressing what many often feel , but may not always share. A chance for all of us to check in with ourselves. Are we giving what we would like for ourselves with realistic integrity?

I often have to remind myself that holidays are often especially challenging and triggering for many stuck in the "chronic condition caravan" and the slow lane of life. Including myself...
Best wishes TT :hug::)

Dear CZ,

I so happy you understand and forgive me. Honestly I felt horrified when I realized that I came across the way I did and especially how it made you feel. I sincerely want to thank you for being so thoughtful and supportive.

I hope you have a good day and week too.
MsL

Thank you TT for sharing your thoughts
 

Thank you so much for sharing your thoughts, some very thoughtful messages and so beautifully written, I am hoping you are a writer or are considering it. Id love to be a writer but you definitley have a gift, you did state every message in your post with such integrity, Thank you so much for the encouragement and I will definitely continue to be part of giving on the board. thank you again, cz

[QUOTE=Mslday;599384]Dear CZ,

I so happy you understand and forgive me. Honestly I felt horrified when I realized that I came across the way I did and especially how it made you feel. I sincerely want to thank you for being so thoughtful and supportive.



I hope you have a good day and week too.
Please dont think of it again, Im thinking nothing but good thoughts towards you especially and all others . Happy Holidays MsL, I can not belieive they are almost here already my very best, cz

Czz74
 

You are entitled!! We all have those days..why I am having one of those right now... It is always nice to get sincere support..I believe we all need it.. RSD has no sense of humor and we certainly need to feel loved..Well, you are loved on this site..we pull for each other and care... No worries, as you had a bad day..Next time it will be me!! Take care and we have your back.. :hug:

keepsmilin, you made me smile!
 

keepsmilin, you made me smile! what a great message for me to start the day with . thank you so so much for your kindness and understanding, I love that you said "RSD Has no Humor",, so true and you remind me how important humor is if you can get to it through a day with this. thanks again for the warm support, i hope you will have a good day to day. sincerely, cz