Home Menu

Site Navigation



Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
NeuroTalk Support Groups > > >

WOW....This is wonderful

Reply
Page 2 of 2 1 2
 
Thread Tools Display Modes
Old 12-03-2009, 02:45 PM #11
Mslday's Avatar
Mslday Mslday is offline
Member
  
Join Date: Aug 2008
Posts: 409
15 yr Member
Mslday Mslday is offline
Member
Mslday's Avatar
 
Join Date: Aug 2008
Posts: 409
15 yr Member
Default
Hi Mary,

Sorry to hear of your troubles with the morphine, that sucks. I know you have been through so much so I'm crossing my fingers for you that this will work.

I wish you much peace and pain relief.

MsL
Mslday is offline   Reply With QuoteReply With Quote

advertisement
Old 12-08-2009, 08:51 PM #12
ALASKA MIKE ALASKA MIKE is offline
Member
  
Join Date: Apr 2009
Location: Alaska
Posts: 158
15 yr Member
ALASKA MIKE ALASKA MIKE is offline
Member
 
Join Date: Apr 2009
Location: Alaska
Posts: 158
15 yr Member
Default
good luck,

what othermeds did they want to try?

i am waiting for my trial right now, but they mentioned several medsto try and they said i would be on less than 10% of my current meds. that would be awesome....

i cant remember right now what those meds were, but i remember prialt being discussed.

hoping this works for you,
__________________
Hoping you feel better,

ALASKA MIKE
ARACHNOIDITIS,CRPStype2/CAUSALGIA since 2004
ALASKA MIKE is offline   Reply With QuoteReply With Quote
Old 12-08-2009, 11:05 PM #13
Cake Cake is offline
Member
  
Join Date: Sep 2006
Location: Australia
Posts: 148
15 yr Member
Cake Cake is offline
Member
 
Join Date: Sep 2006
Location: Australia
Posts: 148
15 yr Member
Default
Hi Mary

I really hope you do well on the Dilaudid and you get the pain relief you need and deserve! Please keep updating us on your progress. A pump is something that is lurking on the horizon for me so I love success stories!


Kate
__________________
RSD in right arm for 13 years, right leg for 8 years, left arm since May 2013, with full body symptoms and CNS.
Cake is offline   Reply With QuoteReply With Quote
Old 12-09-2009, 08:45 AM #14
lostmary's Avatar
lostmary lostmary is offline
Member
  
Join Date: Apr 2007
Location: fredericksburg, Virginia
Posts: 459
15 yr Member
lostmary lostmary is offline
Member
lostmary's Avatar
 
Join Date: Apr 2007
Location: fredericksburg, Virginia
Posts: 459
15 yr Member
Default
Hi everyone, please forgive my typing, but it still hurst to open my eyes ad move my heads.The diluid really workded well, orphie is the most common med gien, but as it almost killed me, I don't think I'll ever have it again. My PB was 205/140. can we say PAIN...then to end up with a spinal headache. I was ready to quit. I a going to go thru it tho. it really worked and worked well. THe only was to know if tigs workis the trial. I just diddn't expect so much pain. I figured I would be in and then out Oh well. I'm never one to quit.

hugs
Mary
__________________
There is no future, there is no past, we must make each moment last
lostmary is offline   Reply With QuoteReply With Quote
Old 12-09-2009, 01:11 PM #15
SandyRI SandyRI is offline
Senior Member
  
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
Default
Hang in there....we are all routing for you.

XOXOX Sandy

Quote:
Originally Posted by lostmary View Post
Hi everyone, please forgive my typing, but it still hurst to open my eyes ad move my heads.The diluid really workded well, orphie is the most common med gien, but as it almost killed me, I don't think I'll ever have it again. My PB was 205/140. can we say PAIN...then to end up with a spinal headache. I was ready to quit. I a going to go thru it tho. it really worked and worked well. THe only was to know if tigs workis the trial. I just diddn't expect so much pain. I figured I would be in and then out Oh well. I'm never one to quit.

hugs
Mary
SandyRI is offline   Reply With QuoteReply With Quote
Old 12-13-2009, 11:40 AM #16
CZZ74 CZZ74 is offline
Member
  
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
CZZ74 CZZ74 is offline
Member
 
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
Default Mary that is so so so cool!!!!
Quote:
Originally Posted by lostmary View Post
Hi all,
I'm in my room in the hospital after having the pump trial implanted. I feel great. there isn't even any surgical site pain. Before surgery, pain was a 9, right now, maybe a 4. I can[t believe it. I can even touch my foot. If I had know it was this easy and this great, I would never have wasted time with the scs or anything else. No wonder it's hard to find a dr. that will do it. They will lose their patients except for emergencies and pump refills. I'll keep you posted tomorrow as to how it's going. I could be numb from the meds, but all I know is that I feel wonderful

Hugs
Mary
jMary this is such great news!!! You are so brave. I cant belieive you can already feel a difference. Oh I hope so much this is your answer, Please post as oftern as you can. I am still considering. thanks so mcuh, CZ
CZZ74 is offline   Reply With QuoteReply With Quote
Reply
Page 2 of 2 1 2

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Wonderful Wonder #203 ;) tamiloo Survivors of Suicide 29 11-11-2009 05:14 PM
Wonderful Wonder #181 tamiloo Survivors of Suicide 26 04-20-2009 08:21 AM
Wonderful 157 tovaxin_lab_rat Survivors of Suicide 25 12-16-2008 08:36 AM
Wonder 139 of Wonderful.... tamiloo Survivors of Suicide 22 09-28-2008 06:35 AM
Wonderful Wonder #76 tamiloo Survivors of Suicide 22 03-29-2008 10:37 PM


All times are GMT -5. The time now is 01:57 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home