Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 12-05-2009, 06:28 AM #1
gitte74 gitte74 is offline
Junior Member
 
Join Date: Oct 2009
Location: denmark
Posts: 19
10 yr Member
gitte74 gitte74 is offline
Junior Member
 
Join Date: Oct 2009
Location: denmark
Posts: 19
10 yr Member
Default Ice treatment

I cant seem to find a answer myself. Does anyone know if ice treatment could make any permanent damage on RSD. I know that most cant tolerate the cold, but can it make any difference in the future painfelling, where iced earlier.

Gitte
gitte74 is offline   Reply With QuoteReply With Quote

advertisement
Old 12-05-2009, 08:22 AM #2
SBOWLING SBOWLING is offline
Member
 
Join Date: Mar 2009
Location: Ohio
Posts: 310
15 yr Member
SBOWLING SBOWLING is offline
Member
 
Join Date: Mar 2009
Location: Ohio
Posts: 310
15 yr Member
Default

Hi Gitte,

I have full body RSD/CRPS 9 years now. I use ice and have no damage. It helps with the deep pain and the burning. I bought the ice packs from my Chiropractor after I had my stimulator implanted to help with the pain from surgery. I use them for 15 minuets every hour if needed. They are suppose to last for an hour out of the freezer my RSD heat melts them pretty fast.
Take care,
Sherrie
SBOWLING is offline   Reply With QuoteReply With Quote
Old 12-05-2009, 08:04 PM #3
Imahotep Imahotep is offline
Member
 
Join Date: Feb 2007
Posts: 606
15 yr Member
Imahotep Imahotep is offline
Member
 
Join Date: Feb 2007
Posts: 606
15 yr Member
Default

Ice is associated with the cause of RSD.

Iniatially ice seemed to be beneficial for my pain but over time it has simply delayed and amplified the pain. I'm not sure I could even try ice any more but the last time I did it put out the pain like a bucket of water on a blowtorch. It just doesn't last and when it warms back up it's worse than it had been. Warm water usually works well for me.
Imahotep is offline   Reply With QuoteReply With Quote
Old 12-06-2009, 12:18 AM #4
Mslday's Avatar
Mslday Mslday is offline
Member
 
Join Date: Aug 2008
Posts: 409
15 yr Member
Mslday Mslday is offline
Member
Mslday's Avatar
 
Join Date: Aug 2008
Posts: 409
15 yr Member
Default

Have a look at this link.

http://www.rsdhope.org/Showpage.asp?...3&PGCT_ID=1910


Although the information is dated from a doctor now retired it makes sense to me. I could never could stand ice, made my pain much much worse despite being sternly lectured by my orthopedic surgeon about how bad a patient I was for non-compliance to his instructions about icing my foot.

When something like ice makes my skin turn purple, shiny and swollen I listen to my body, not the doctor.

MsL
Mslday is offline   Reply With QuoteReply With Quote
Old 12-06-2009, 02:29 AM #5
Dubious Dubious is offline
Member
 
Join Date: Jan 2009
Location: Paradise
Posts: 855
15 yr Member
Dubious Dubious is offline
Member
 
Join Date: Jan 2009
Location: Paradise
Posts: 855
15 yr Member
Default

Technically, ice could cause significant worsening of symptomatology, according to some literature, due to sympathetic dysregulation and vasomotor changes. Personally, my PT used ice on my shoulder (surgery "gone wild" caused the CRPS) for 1 year without issue, providing mild but only very temporary post-PT pain attenuation without apparent ill effect.

I have not used ice in awhile but the way my arm hurts with a cool breeze, I am not sure I could tolerate it at all now! Hurts to hold a can/bottle of soda at his point.

Last edited by Dubious; 12-06-2009 at 02:31 AM. Reason: sp
Dubious is offline   Reply With QuoteReply With Quote
Old 12-06-2009, 05:15 AM #6
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
Default

I could not live without icepacks.

I've read how it makes rsd pain worse. I've wondered if my use of ice is what caused my rsd to develop. The thing is, my pain meds are insufficient to manage my pain, so I really have no choice.
finz is offline   Reply With QuoteReply With Quote
Old 12-06-2009, 06:27 PM #7
WolfLarsen WolfLarsen is offline
Junior Member
 
Join Date: Oct 2009
Posts: 25
10 yr Member
WolfLarsen WolfLarsen is offline
Junior Member
 
Join Date: Oct 2009
Posts: 25
10 yr Member
Default

I have read that ice may reduce pain by numbing the nerves, but may also worsen it beyond the immediate effect by damaging the nerves and also constricting the veins and reducing blood circulation. I know Dr Hooshmand's website is very vocal about this, but I seem to recall reading it elsewhere.

In my case cold water (not actual ice) *seemed* helpful when my RSD was not so bad, but harmful when it was more advanced (dramatically increasing stiffness and etc.)
WolfLarsen is offline   Reply With QuoteReply With Quote
Old 12-07-2009, 03:59 AM #8
gitte74 gitte74 is offline
Junior Member
 
Join Date: Oct 2009
Location: denmark
Posts: 19
10 yr Member
gitte74 gitte74 is offline
Junior Member
 
Join Date: Oct 2009
Location: denmark
Posts: 19
10 yr Member
Default

Quote:
Originally Posted by WolfLarsen View Post
I have read that ice may reduce pain by numbing the nerves, but may also worsen it beyond the immediate effect by damaging the nerves and also constricting the veins and reducing blood circulation. I know Dr Hooshmand's website is very vocal about this, but I seem to recall reading it elsewhere.

In my case cold water (not actual ice) *seemed* helpful when my RSD was not so bad, but harmful when it was more advanced (dramatically increasing stiffness and etc.)
Hi WolfLarsen
And by that, do you mean a permanent damage or what? By the way, where are you from: Larsen is a danish name...

Thank you from gitte
gitte74 is offline   Reply With QuoteReply With Quote
Old 12-07-2009, 09:56 AM #9
ali12's Avatar
ali12 ali12 is offline
Magnate
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
ali12 ali12 is offline
Magnate
ali12's Avatar
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
Default

I was told to use ice before I was diagnosed with having RSD and it made me a lot worse. We used the spray ice cans that you can get (like an ice cold mist) and even that, caused my leg to hurt a lot more. Each time I used it, I got more pain and more spasms and colour changes so I had to stop using it. It was only when I was diagnosed with RSD when we found out that you shouldn't use it - my PM Doctor said he knew as soon as I was diagnosed that ice had had to have been involved and that you shouldn't use it as it can aggrivate the nerves even more.

Here's a link that we were given about the use of ice in RSD that you may find useful:

http://www.rsdrx.com/rsdpuz4.0/puz_102.htm

I guess everyone is different though and no two people react the same. For me though, it was a bad decision.

Best wishes!
__________________
To the World you may be one person, but to one person, you may be the World.
ali12 is offline   Reply With QuoteReply With Quote
Old 12-07-2009, 10:38 AM #10
gitte74 gitte74 is offline
Junior Member
 
Join Date: Oct 2009
Location: denmark
Posts: 19
10 yr Member
gitte74 gitte74 is offline
Junior Member
 
Join Date: Oct 2009
Location: denmark
Posts: 19
10 yr Member
Default

Thank you so much, that was a great link i havent actually read that. I hope you are doing ok - i have read some of your post with interest

hopes for the best - Gitte
gitte74 is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Who to go to for RSD treatment? WolfLarsen Reflex Sympathetic Dystrophy (RSD and CRPS) 10 11-25-2014 07:45 PM
Little known RSD treatment rmdkmd Reflex Sympathetic Dystrophy (RSD and CRPS) 7 03-21-2009 10:18 AM
Treatment with 5-HTP? Fiona Parkinson's Disease 5 01-16-2009 08:22 PM
Iv-Ig treatment MbGuy Myasthenia Gravis 7 07-10-2008 10:49 AM


All times are GMT -5. The time now is 03:03 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.