NeuroTalk Support Groups - Is RSD the cause of not being able to

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- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Is RSD the cause of not being able to (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/110887-rsd-cause-able.html)

Quote:

Originally Posted by dreambeliever128 (Post 602539)

function like a human being?

I have had some bad days here lately. First due to my depression and I believe it's made worse by the Holidays, then pelvic pain and leg pain. I get one place calmed down and another starts.

My daughter is my caregiver. She helps me with housework, runs to get my meds and groceries on her days here.

I feel like I donot function like a normal human being. I can't invite people over for a meal because I don't feel I can cook for them. I am a good cook, that's not the problem. I really don't know how to describe the problem. It's just that I don't feel capable of doing the things I use to do, even the simplelist things.

Some of my Drs. have described me as being different from normal people and I really don't know if it's the RSD or something else that I have. My PCP wanted me to go to a Dr. in California that he thinks is good to see if they could figure things out but money is a problem for me and just traveling is. He has also mentioned the Mayo Clinic but I haven't heard good about them from people around here that have went there. He thinks this Dr. would be best and I can't remember his name either right now.

I'm just wondering, how any of you feel about doing simple task. I'm not saying due to the pain but due to the mental.

Thanks for any replies,
Ada

Hi Ada,

I was at my parents' for a few days, so I am responding late to your posting.

What I hate most of all is the feeling of being overwhelmed by things that used to be so simple. I had several house parties to attend, my ordinary shopping, our household to decorate and organize, and then a long trip with a big 50th anniversary party for my parents to attend over the weekend. A few years ago it would have been a piece of cake, I have always excelled at organization and loved the holidays with my friends and family. I could handle it all no problem and do it well, too. My baking is usually the best!!

This year I HATED it. It was just too much with my RSD. My husband and daughter had to help me keep it all together. I got done what needed to get done, but it sucked - it was such a struggle and my head hurt so badly I often broke down in tears. I am so glad that Christmas is over and I can finally take it easy.

I thought maybe my organization disabilities and depression were due to the Fentanyl or the Oxycodone. Of course the timing of certain problems with WC didn't help things.

So Ada you are not alone in this...thanks Mike for the scientific stuff, appreciate it....

XOXOX Sandy

You do get overwhelmed over things that should be simple but what I am learning to do is to simplify things.

I didn't do any baking this year for Christmas. The only decorating I did was the tree. I use to decorate all over the house and outside.

Travis did the cooking, I didn't even make macroni salad for him this time. I just couldn't get in the swing of Christmas. We forgot to even bake the pies for Christmas. We had them but we had all gotten full on cheeseballs and then dinner that we all forgot the desert.

We do need help in keeping it all together and pulling it together. We don't even have to get started doing things to get overwhelmed, we just think of it and we get overwhelmed.

Thanks Mike for the info you posted on the memory and cognitive issues.

Ada

Quote:

Originally Posted by dreambeliever128 (Post 604525)

We do need help in keeping it all together and pulling it together. We don't even have to get started doing things to get overwhelmed, we just think of it and we get overwhelmed.

Ada

That was the problem all along!! Not to mention that when I was using my arms to try to bake it was making my head hurt the next day.

And when I tried to explain how I felt to my mother she advised me to make a "list" - that it would help me keep track of things. Little does she know how that would how just served to put me completely over the deep end...

Your understanding is awesome! Hope your right side is settling down!

XOXOX Sandy

I was looking at my Christmas tree and thinking about taking it down and it totally overwhelmed me. Just the thought of it. My Dr. said to wait until I am ready to do it. It might be up next year at this time. LOL

Now I know that overwhelmed is the perfect word for what goes on with people with RSD and trying to function like normal people.

I also want to declutter my home and that's overwhelming me. When I think of it, I look at things that Bill got me and can't part with them but yet I know I want to thin things out around here. I also have 2 storage sheds full and thinking I need to get rid of this stuff so if anything ever happens to me, the kids won't have to do it. I have seen several of my friends go through this lately and it's very hard on them to clean out a home of a loved one. That's what makes me think I want to get this done.

Sandy, I do make a list at times of things I need to do and mark them off as I get them done but that's for small things to do like shopping, making certain phone calls. The bigger time consuming things though seems impossible to do.

Ada