I have had CRPS for 3 years in April and lately I have been experiencing an issue with sweating. For the last month I have been experiencing sweating epsiodes where I will be fine one minute and than the next I start sweating profusely. Over the years I have experienced many night sweats (almost everynight) but this has never happened in the day time. At first I thought it was my medicine so I adjusted it but that didnt help. I use to never sweat and now it seems that these episodes are happening all the time and at the worse possible time. Does anyone else have any issues like this? I dont want to blame it on the CRPS but I'm starting to wonder if this is just something else I will have to get use too. I almost feel embarrassed to bring it up but I thought I would check with you guys before jumping to conclusions and calling my doctor. I hope everyone is having a happy holiday and please remember to not over do it on the holidays. I know i did and I paid for it dearly all last week.
Take Care,
Sarah

Hi Sarah,

Here is a personal question, how old are you???

Sandy

Sarah, I can't help you but may I ask you? I have had RSD over a year and its in my arm and now my feet. I have recently been waking up sweating profusely(full body) but only at night. I also thought it must be meds because my Dr. recently changed them but it still happening. So you would only sweat at night too? Did you sweat all over or just the area of your RSD? I have looked it up but never have found an answer. Sorry I am no help but thanks for your info. momof4

Hi Sarah, I'm sorry for your RSD. It is an autonomic disorder, which means involuntary organs are affected. The sympathetic nervous system effects body temperature, circulation, and the immune system. We can have high blood pressure and low blood pressure. we can be sweating and then ice cold. Sweating is awful-we can be red hot and then bone chilling cold. We should never use ice on our condition. Hope this helps answer some questions. your friend, loretta with soft hugs

Oh yes, I'm in the same boat. Ppl look at me and want to know if I'm ok..and if I need a dr. Not only do I sweat the anything, but I turn beet red and will have rivers of sweat rolling down my face. I hate going out. In the winter I wear a tshirt and a hoodie when I go shopping. That way I take the hoodie off and just have the jeans and tshirt. I have also started taking one of the small ice packs that you use in lunch pails. I also carry a small pocket fan. Yes, peiple look at me funny, but I do what I have to do. My dr. has told me that it was just part of rsd. I had forgotten to ask him if the pain pump that I'm having placed Jan 19 will help it. I know the pump will not, but maybe there are meds that he can put in my cocktail that will help. I really think, as so many of us have this symptom, that it is something we have to learn to live with.

Hugs
Mary

Sarah....

Yes, you can count me in on the devestating sweating...I have never been a person to "sweat" nor mind the heat.... but I do go thru blocks of time ie.. months of profuse untimeable sweating...Just as I woke up from having my SCS implant put in I began sweating and at that time it lasted for a few months on and off. I asked my doctor many times if possibly it be my age... I'll tell you..I am 47 yrs. old... she said it is the RSD without a doubt.. as I had a hysterectomy years ago. Iam not having this issue of sweating at this time but I have had it come and go several times having it last for manoths at a time...Hang in there.. I know it is troublesome.. but just another bonus of having RSD.

KS

I think, if you have rsd, you have by definition, sweating issues. "Changes" are what seem to set it off. Change in your mood, the temperature, the wind, the humidity, the barometric pressure, your blood pressure, someone looks at you funny, someone says somethiing that annoys you, someone says something that delights you.

Anything that "changes" something that your body or, SNS, responds to, seems to set it off. It's like the odd hair / nail changes, just more instantaneous.

As I'm getting more severe, I find great difficulty drying off after a shower.
I hafto take a real cool shower at least at the end, to try to close up my pores, sometimes it works, sometimes no luck.

I'm sure there's another prescription that can be tried, I'm just so sick of pills....

One trick I do use, is I spray myself with anti perspirant, on places where it gets bad, for me.

Good luck,

Pete

Hi Sarah,

You're not alone!! I had a horrible time with sweating for a few months, especially round my head and face, but it's gone again. It seems to come and go. We're not known for our hot weather in Scotland, so I can't blame it on that.

I also get the nail changes which Pete mentioned, rapid growth for a few weeks, then nothing. I don't mind that so much, I've always had short nails so it's nice to have them long for a change. Unfortunately, it's only on my RSD hand so I look a bit odd.

Hope you're ok, I'm sorry that doesn't help much. Take care.

Oh man! I've felt like I've been going through "the changes" for the last ten years. I cannot regulate my body temperature. I get all hot and sweaty out of nowhere. When I'm like this I can't stand being touched. Normally I love curling up with my boyfriend, and at first he used to take it personally that I didn't want to be touched. Now he knows that it has nothing to do with him, and we have a little code. If he goes to grab my hand or hug me and I am too hot, I just say "I'm icky" and he leaves me alone. And then when I cool down I make sure that I am affectionate toward him, because I really don't want his feelings hurt.

It's hard sometimes navigating a relationship with this stuff. I am just very very thankful that my boy is so kind and patient. I think it makes me be kinder to myself sometimes.

Pete- I totally get the shower thing! Sometimes I have to go lay down after showering because I get so overheated and sweaty after a hot shower. Just imagine if you had really long hair and then had to go blow dry it! I usually shower at night to avoid that quandary. The blow dryer can turn me into a little inferno!

Lynns

Hiya Lynns,
I DID have long hair, ( I sent 3 pony tails to locks of love ), no more of that!

Still, even with it short, I can get completely dry, and I'll get sweaty from ear to ear around the bottom of my hair. So, as soon as I get dry, I spray with anti perspirant there.
(Ever see those AXE kids commercials for applying the stuff on a skateboard?) I feel like that sometimes, quick get it on while I'm dry!~

But besides that, you raised a new issue for a new thread. Dealing with Relationships, with rsd!

We all have little tricks, and, need some new ones!

Be well, and try to stay dry!
(I just came in from 20 degree weather, and I'm sweating.) Figure?

Pete