Hey all!

I don't know if it's a result of my TOS or RSD (all 4 limbs are affected), but lately my left hand will feel warm (not burning) and clammy while my right hand is dry and freezing cold! It even feels so to others that touch me. For the past couple of months, the uneven, opposite temperature in my extremities have been like this for about 80% of my day.

Anyone experiencing similar symptoms??

Thanks!! Vanna

Hi Vanna, I also have various temps. Do you have an actual temp gauge?
I think I've heard of 'tape temp. for topical skin temp. Do you know where to get it? or whatever you use.
On the TOS, do you have body heat in the neck,chest area? I've never been diagnosed with TOS. Hope all goes well with you, loretta with soft hugs

Due to a car accident..20 odd yrs. ago I had to have my first rib bilaterially removed.. due to TOS... that was a surgery..now 20 od yrs. later..on comes RSD... humm.. but one neuro i saw not related cuz if it was it would have been immediate.. anyway..yes, I have terrible temperature changes in my limbs..esp. feet...blocks of ice with the rt. RSD worse leg being the worst!!! Once again...were on to somethin....

KS

I've had a "Thermography" done, long ago. I have rsd and tos.
They set you up in a COLD room, with fans blowing on you, this was only done to the upper torso.
The pictures are multi colored, according to the temp.
Of course, I had different colors (temperatures) bilaterally, and front to rear.

As I recall, it was all blamed on the rsd, nothing much to do with the tos.

Hope this maybe helps.

Pete

Hi Vanna,
Yes, I have had the different temps in different limbs of my body too. It has always been from the initial site (my right foot) of injury compared to the left foot. About a month ago, I tested the temp gauge on my feet and the right foot was barely 80 degrees and the left foot was 85 degrees. However, at 1 AM (since we turned back the clocks here in PA) I get burning hot pain that starts in my right big toe and goes down each toe and up the leg into my entire body. I wake each night on fire. I have to wear layers of clothes to bed since about 2 hours after I wake each morning the heat then turns to cold so that by evening time it is so cold it burns and hurts badly. Nothing will get it to warm up.

Lately I have noticed this lovely scenario happening in my hands. My right hand will be freezing while the left one is very warm. It can drive you batty trying to figure out if you are hot or cold that is why layering is the best method I can come up with. The temps with my foot have happened for over 4 years now and I can tell you what time it is by how my foot changes. Crazy huh? Well, hang in there.
kathy d

yes, i have different temps for mine too. My right hand is ALWAYS clammy and sweaty. And my left hand dry and cold. Its like make up your decision already :P My dr says, desensitization can help. In the shower if you alternate from warm to cooler water to get your nerves to come back to normal temp. He only treats people with RSD and he requires ALL of us to do that. Being that my rsd is in my right arm too, I have to get buckets of cool and warm water, NOT ICE COLD... just to get the arm back to somewhat normal. Our bodies remember what its supposed to be, we just have to give it a kick in the pants. argh!! good luck!

Thanks so much for mentioning about the showering to kick the body temp back into gear. I will try to take notice of that, next time the uneven temps are wildly acting up!



Vanna

My right hand and right foot is always colder then the left.

I do have to layer up and then come out of clothes as I get too hot. I can't stand to wear a long sleeve top or pull over sweater. In the winter, I still wear short sleeve tops and just put long sleeve over so I can take them off.

KS, I thought it was interesting that you mentioned the TOS surgery 20 years ago. A friend of mine had TOS surgery about 30 years ago and didn't get RSD. She did years later get it in her right foot though. She gets blocks and works in the surgery unit at the hospital. I wonder if something is different in the surgeries today.

Ada

Ada..

I have thought more than once that my TOS and RSD may be connected after all of this time..But one Neuro, after many I saw.. when I asked he said no not related as if it were related I would have had RSD happen immediately.... just seems aweful coincidental ..what are the chances both happening to someone during one's life time?? Even one of those illnesses is enough in my opinion...hummm both neurologic..sympathetic nerve involvment..

nice to hear from you.....

The showering thing regularly though I know it sounds like a pain, but it prevents it from happening so often!! It helped mine ALOT!! just dont do EXTREME hot/cold... Just start with cool and warm and you slowly work your way up to more when your body tells you My Dr is Dr. Joshua Prager, I have seen people post videos on him alot lately talking about RSD. I also will try to look for the link that he emailed me that has the complete set of videos