Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 01-04-2010, 01:48 AM #1
msdrea83's Avatar
msdrea83 msdrea83 is offline
Member
 
Join Date: Oct 2006
Location: Santa Cruz, CA
Posts: 252
15 yr Member
msdrea83 msdrea83 is offline
Member
msdrea83's Avatar
 
Join Date: Oct 2006
Location: Santa Cruz, CA
Posts: 252
15 yr Member
Default Update

I had my 3rd ketamine infusion in LA on the 29th, my doc went with a dose in between the 1st two that I got, yet started it at a higher rate than before. The details I'm not sure of just yet, I haven't asked... but before I went under he said we'd go for 1200 mg of k over the 4 hours. When I came to I was pain free once again, yet although I had Ativan to push out the hallucinations I was still seeing some crazy ****!!!! Nothing bad or scary, just weird..... but I knew that it was a hallucination so i wasn't like freaking out or anything. So he had to call in another medication to eliminate my odd visions of mythical creatures and form phasing rooms...

But ya, so far so good!!!!
__________________
~*Andrea*~
msdrea83 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dubious (01-05-2010), Sandel (01-08-2010)

advertisement
Old 01-04-2010, 02:22 AM #2
Cake Cake is offline
Member
 
Join Date: Sep 2006
Location: Australia
Posts: 148
15 yr Member
Cake Cake is offline
Member
 
Join Date: Sep 2006
Location: Australia
Posts: 148
15 yr Member
Default

Hey Subby!

I'm so glad to hear it's going well so far! (I'm So jealous, lol. I could do with a ketamine infusion right now!) Anyway, I hope it continues to work wonders for you with minimal side effects. You really deserve this one to have long lasting effects.

x Kate
__________________
RSD in right arm for 13 years, right leg for 8 years, left arm since May 2013, with full body symptoms and CNS.
Cake is offline   Reply With QuoteReply With Quote
Old 01-04-2010, 09:42 AM #3
gabbycakes gabbycakes is offline
Member
 
Join Date: Oct 2008
Posts: 518
15 yr Member
gabbycakes gabbycakes is offline
Member
 
Join Date: Oct 2008
Posts: 518
15 yr Member
Default Just a short question...

First, let me say I am very happy that the ketamine infusions have worked so well for you. I have read you posts very often and don't understand why the doctor your working with has such a different protocol.

I have done the 5 day in-patient 3 times, working with a very prominent doctor in NYC and Dr. Schwartzman. I learned quite a bit about the procedure and the doses that are given and why. When you say 1200 MG that confuses me because during a 5 day procedure they slowly up your dose to a target rate of 35 - 45 mg an hour infusing for 24 hours a day, depending what each person can tolerate, and from what I understand they are beginning to give patients a break from the ketamine during each day just so the body can rejuvenate. And when it comes to the boosters I have seen other patients take in as high as 75mg an hour. As for myself I don't react to the ketamine very well so they always take it slow in my case. So here's the question what does 1200 mg represent I really would like to understand?

Thanks for the help and again congratulations.

Gabbycakes

QUOTE=msdrea83;606496]I had my 3rd ketamine infusion in LA on the 29th, my doc went with a dose in between the 1st two that I got, yet started it at a higher rate than before. The details I'm not sure of just yet, I haven't asked... but before I went under he said we'd go for 1200 mg of k over the 4 hours. When I came to I was pain free once again, yet although I had Ativan to push out the hallucinations I was still seeing some crazy ****!!!! Nothing bad or scary, just weird..... but I knew that it was a hallucination so i wasn't like freaking out or anything. So he had to call in another medication to eliminate my odd visions of mythical creatures and form phasing rooms...

But ya, so far so good!!!![/QUOTE]
gabbycakes is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SandyRI (01-04-2010)
Old 01-05-2010, 12:42 PM #4
msdrea83's Avatar
msdrea83 msdrea83 is offline
Member
 
Join Date: Oct 2006
Location: Santa Cruz, CA
Posts: 252
15 yr Member
msdrea83 msdrea83 is offline
Member
msdrea83's Avatar
 
Join Date: Oct 2006
Location: Santa Cruz, CA
Posts: 252
15 yr Member
Default

gabby,

i'm not really sure how to answer your question... but if you'd like i can give you my doc's email and you can ask him.
__________________
~*Andrea*~
msdrea83 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Update... charliebubs Occipital Neuralgia and other Cranial Neuralgias 8 12-13-2008 02:53 PM
Update Iffynah Reflex Sympathetic Dystrophy (RSD and CRPS) 2 11-07-2008 10:04 AM
Update on Mom and Jim SandyC The Stumble Inn 20 03-08-2008 03:50 PM
update LizaJane Peripheral Neuropathy 3 12-31-2006 02:24 AM


All times are GMT -5. The time now is 07:41 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.