Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-09-2010, 07:11 PM #1
rainhill rainhill is offline
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Default Need opinions

Ok my father in law had cardiac stents put in nov. 17, nove 21 his foot starts hurting, swells up and he cannot walk on it.. It has turned different colors, breaks out under the skin.. He has been told it could be RSD, but no one knows for sure.. He has been in the hospital and multiple doctors have looked at it.. NONE of them know what is wrong.. He is a very active man..farms for a living.. The past 6-7 weeks he cannot even get up to go to the bathroom by himself much less work. Does anybody know if stents and RSD go hand in hand..?? He is a Veteran with no other health insurance so he has got the run around.. Tests show nothing much, MRI did show some bone problem but he has never injured the foot.. Now he cannot use it at all.
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Old 01-09-2010, 07:15 PM #2
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Is this the same side, same leg as the work done for the stents?

If so it might be a blood clot. Did he have a Doppler test to look for blood clots in that leg?
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Old 01-09-2010, 07:18 PM #3
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No I thought the same thing, blood clot.. but actually its the other leg.. and yes they have checked for blood clot... so frustrating for entire family


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Originally Posted by mrsD View Post
Is this the same side, same leg as the work done for the stents?

If so it might be a blood clot. Did he have a Doppler test to look for blood clots in that leg?
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Old 01-09-2010, 09:31 PM #4
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Originally Posted by rainhill View Post
Ok my father in law had cardiac stents put in nov. 17, nove 21 his foot starts hurting, swells up and he cannot walk on it.. It has turned different colors, breaks out under the skin.. He has been told it could be RSD, but no one knows for sure.. He has been in the hospital and multiple doctors have looked at it.. NONE of them know what is wrong.. He is a very active man..farms for a living.. The past 6-7 weeks he cannot even get up to go to the bathroom by himself much less work. Does anybody know if stents and RSD go hand in hand..?? He is a Veteran with no other health insurance so he has got the run around.. Tests show nothing much, MRI did show some bone problem but he has never injured the foot.. Now he cannot use it at all.
Hi rainhill, I'm sorry about your father in law. Yes, a person can get RSD following a heart attack, or following a stroke, or any surgical procedure. Even a slight injury can bring on RSD. I suffered from RSD, now full body, from a breast biopsy 15 years ago, was benign tumor. Immediately following the procedure, got swollen arm, then frozen shoulder. I was sent immediately to physical therapy to get use of shoulder back. Went to remission, then rsd in opposite shoulder, then another remission. It was 4 years before diagnosis was made, which really started following the breast surgery.
It is normal for the majority of drs. to NOT recognize RSD. I flew to Oregon to a well know group of sports injury drs. and was diagnosed in 1 minute. sent over to nuclear medicine department and had a dye test that showed bone deterioration from rsd. Got started on therapy next day, then came back to Arizona and got a good neuro and hand orthopedic Dr. who had a phsyical therapy group experienced with rsd.
I saw my rsd Dr. Monday and he told me Tampa Florida at the VA Hospital they just put in 16 HBOT units. Hyperbaric Oxygen Treatment is a treatment that works for some RSD patients. My Dr. who is a neurologist, psychiatiatrist, and pharmacologist just built two clinics in Scottsdale and Paradise Valley, AZ each with a HBOT in them. I'm going to go thru the treatment. It promotes oxygen circulation. RSD is a autonomic disorder, which means it affects the involuntary organs-heart, lungs, circulation,
I would encourage you to read as much as possible. This site has a wealth of knowledge-full of loving, caring, empathetic friends, that are very willing to be of assistance. The best chance of remission is EARLY treatment by an experienced RSD Dr. There are some good Drs. in the country. The Cleveland Clinic is one source. This VA Hospital in Tampa, sounds goodl. My Dr. said the HBOT was organized by a RSD Dr. from New Orleans or Houston, I forget, but can find out for you.
A good foot ortho, neurologist, pain management group, may recognize it.
Therapy should be by someone familiar with RSD. NO ICE Desensitization is very important, which is done in therapy and I did it 7 days a week at home. Got 6--7 plastic bowls. Filled them with cotton balls, rice, beans, coffee grounds, sand. run fingers, feet thru the bowls. It's so important because RSD brings sensitivity that can be so bad, we don't want to be touched, clothing is an issue, even sheets on the bed can be bothersome.
Before any invasive treatment, check it out. Some treatments can cause spread of RSD, and you don't want your Dad to go thru that. I now have high blood pressure because of RSD. The sympathetic nervous system raises blood pressure, the para sympathetic nervous system lowers it. RSD also affects the brain. Actually 5 places on the brain. The Limbic part of the brain affects our short term memory, we can be talking and forget what we were saying, we grope for words in completing a sentence. If you go to a site on this forum about a Drs. research-it's really good. After you listen to his video-there is another site that is excellent with the background music of Sarah McGloughlin singing Angels.
I hope the best for your Dad. The thing that has kept me mobile is the swimming pool.I live in Arizona. But the YMCA or GYM has pools-need to be 86 degrees. and exercise. My toes started to curl up off the floor and my Dr. had me in the water everyday counter exercising. After 4 months, my toes were touching the floor again. So important to keep moving. I am completely mobile except one hand-before I was diagnosed with RSD-was misdiagnosed in my left hand as rheumatoid arthritis and got a late start in therapy. It is50% crippled. Please get your Dad to a RSD Dr. RSDSA is the national organization for RSD. Jim Broach is the Pres. go to their website and you can pput in your zip code and get the closest support group or closest RSD Dr.
Another website that is full of good information is rsdrx.com Dr. Hooshmand is a retired Dr. from Florida that still has his website still up. There is a part called puzzles-146 questions with his answers- really good. There is another Dr. that Dr. H turned his patients over to.
Please know we care and let us know how your Dad is doing. Your friend, loretta with soft hugs for your Dad
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Old 01-09-2010, 09:54 PM #5
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Originally Posted by loretta View Post
Hi rainhill, I'm sorry about your father in law. Yes, a person can get RSD following a heart attack, or following a stroke, or any surgical procedure. Even a slight injury can bring on RSD. I suffered from RSD, now full body, from a breast biopsy 15 years ago, was benign tumor. Immediately following the procedure, got swollen arm, then frozen shoulder. I was sent immediately to physical therapy to get use of shoulder back. Went to remission, then rsd in opposite shoulder, then another remission. It was 4 years before diagnosis was made, which really started following the breast surgery.
It is normal for the majority of drs. to NOT recognize RSD. I flew to Oregon to a well know group of sports injury drs. and was diagnosed in 1 minute. sent over to nuclear medicine department and had a dye test that showed bone deterioration from rsd. Got started on therapy next day, then came back to Arizona and got a good neuro and hand orthopedic Dr. who had a phsyical therapy group experienced with rsd.
I saw my rsd Dr. Monday and he told me Tampa Florida at the VA Hospital they just put in 16 HBOT units. Hyperbaric Oxygen Treatment is a treatment that works for some RSD patients. My Dr. who is a neurologist, psychiatiatrist, and pharmacologist just built two clinics in Scottsdale and Paradise Valley, AZ each with a HBOT in them. I'm going to go thru the treatment. It promotes oxygen circulation. RSD is a autonomic disorder, which means it affects the involuntary organs-heart, lungs, circulation,
I would encourage you to read as much as possible. This site has a wealth of knowledge-full of loving, caring, empathetic friends, that are very willing to be of assistance. The best chance of remission is EARLY treatment by an experienced RSD Dr. There are some good Drs. in the country. The Cleveland Clinic is one source. This VA Hospital in Tampa, sounds goodl. My Dr. said the HBOT was organized by a RSD Dr. from New Orleans or Houston, I forget, but can find out for you.
A good foot ortho, neurologist, pain management group, may recognize it.
Therapy should be by someone familiar with RSD. NO ICE Desensitization is very important, which is done in therapy and I did it 7 days a week at home. Got 6--7 plastic bowls. Filled them with cotton balls, rice, beans, coffee grounds, sand. run fingers, feet thru the bowls. It's so important because RSD brings sensitivity that can be so bad, we don't want to be touched, clothing is an issue, even sheets on the bed can be bothersome.
Before any invasive treatment, check it out. Some treatments can cause spread of RSD, and you don't want your Dad to go thru that. I now have high blood pressure because of RSD. The sympathetic nervous system raises blood pressure, the para sympathetic nervous system lowers it. RSD also affects the brain. Actually 5 places on the brain. The Limbic part of the brain affects our short term memory, we can be talking and forget what we were saying, we grope for words in completing a sentence. If you go to a site on this forum about a Drs. research-it's really good. After you listen to his video-there is another site that is excellent with the background music of Sarah McGloughlin singing Angels.
I hope the best for your Dad. The thing that has kept me mobile is the swimming pool.I live in Arizona. But the YMCA or GYM has pools-need to be 86 degrees. and exercise. My toes started to curl up off the floor and my Dr. had me in the water everyday counter exercising. After 4 months, my toes were touching the floor again. So important to keep moving. I am completely mobile except one hand-before I was diagnosed with RSD-was misdiagnosed in my left hand as rheumatoid arthritis and got a late start in therapy. It is50% crippled. Please get your Dad to a RSD Dr. RSDSA is the national organization for RSD. Jim Broach is the Pres. go to their website and you can pput in your zip code and get the closest support group or closest RSD Dr.
Another website that is full of good information is rsdrx.com Dr. Hooshmand is a retired Dr. from Florida that still has his website still up. There is a part called puzzles-146 questions with his answers- really good. There is another Dr. that Dr. H turned his patients over to.
Please know we care and let us know how your Dad is doing. Your friend, loretta with soft hugs for your Dad
Hi rainhill, I just looked up the medical Dr. Praguer-it's on page 2 of this forum. After you listen to his short video about brain involvement of RSD there comes on the same page a short video of 4 minutes by melgus99 and it is really moving. Hope this helps. RSD is really a complicated disorder. I'm grateful to have such an accomplished Dr. with 3 degrees that truly understands. He is also involved in pharmaceutical studies - I've gotten off several meds and don't have some severe symptoms any longer. Take care, loretta
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Old 01-10-2010, 09:36 AM #6
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Is he taking Plavix after the stents? (this is typically done).
I wonder if he had a blood vessel break in that foot?

Has he had the foot X-rayed for Charcot foot (this may come
from a cracked or broken metatarsal bone).

Also checked for gout?

It would be really nice to NOT have RSD.... I'll look around for Plavix reports, just in case. If I find some I'll put them up here.

Also there is another possibility...if he had treatment with these antibiotics recently (within 6- 12 months)....Cipro, Levaquin or Avelox? They cause tendon ruptures which are very painful.
The ankle has several tendons holding it together, and if one of them blows out...it is complex to diagnose or fix.
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Old 01-10-2010, 10:05 AM #7
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Here is the link to side effects with Plavix reported:

http://patientsville.com/medication/...de_effects.htm

Scroll down to individual accounts. But thrombosis in limb is reported. So is hematomas in various parts of the body.

I think something along this order is the problem. Since it occurred so quickly after the stent.
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