Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-10-2010, 04:56 PM #1
RNcrps2 RNcrps2 is offline
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Join Date: Nov 2009
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RNcrps2 RNcrps2 is offline
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Join Date: Nov 2009
Posts: 180
10 yr Member
Default Is it too late?

Have i missed my window of opportunity? I started with RSD in entire arm-had scs trial but even though it helped i was afraid of making the wrong decision. I would ask what if it caused it to spread or that i couldn't run or that I couldnt take any more pain than i already was having. Fear. Fear of making the wrong choice- i am waiting on a list for possible ketamine. Now RSD has spread to my feet,lower leg and other hand. SCS only works on sympathetic mediated pain(smp) and not on symp. indep.pain(sip). My Dr. still says it will help lessen the pain but not to the extent that it would have before spreading. I have read dont do surgery once it is sip because it can cause spread-but it already has spread. Now my meds have been changed again and i wait. momof4
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