Originally Posted by RNcrps2

Have i missed my window of opportunity? I started with RSD in entire arm-had scs trial but even though it helped i was afraid of making the wrong decision. I would ask what if it caused it to spread or that i couldn't run or that I couldnt take any more pain than i already was having. Fear. Fear of making the wrong choice- i am waiting on a list for possible ketamine. Now RSD has spread to my feet,lower leg and other hand. SCS only works on sympathetic mediated pain(smp) and not on symp. indep.pain(sip). My Dr. still says it will help lessen the pain but not to the extent that it would have before spreading. I have read dont do surgery once it is sip because it can cause spread-but it already has spread. Now my meds have been changed again and i wait. momof4

Originally Posted by keep smilin

momof4...

Sister..it is never too late!!!!!! One of our biggest battles with RSD is to keep moving forward with options..keep exploring.. it's so normal to wonder if spread will occur and even now that it has..don't weaken!! RSD is such a gamble..spread with surgery..possibly but it may anyway!!! By the time we get to Ketamine, I read the list is long... they may have other interventions to try..Guess want I am saying is..keep moving forward staying open to other interventions..most of all don't be afraid to try em as one just may help you with your pain levels and spreading...everyone reacts differently..one thing for sure..we are all sitting ducks!!! Hope I helped you and know that I care..I am so sorry for your delimea....

Soft hugs..KS

Originally Posted by RNcrps2

KS, Thanks so much for this. I really needed to hear this. To know I do have to take chances and stop worrying. Your right I didnt get the scs and it spread anyway. To hear everyone is different and things do work for some and not for others I have to just try what i can. Thanks for your kind inspiring words. momof4