Hi All.

Went to my PM the other day and he told me that my RSD will "burn itself out". Has anyone ever experienced this? I hope it happens, but I'm afraid to become too hopeful. If so, if anyone has experienced this, about when did it happen? Did you get significant relief? Do you still need meds, etc.?

Any enlightment on this subject will be greatly appreciated!

Hope all is well!

delete as my words didn't sound right.

I got hurt in '98 and it seemed almost like it was burning itself out. I got off all the medication even the B/P medication. I was still suffering a lot but was getting so I could do more and more. Then I got hurt again and turned downhill pretty sharply.

Good article written by Schwartzman a few months back posted by fmichael. It can also be found on PubMed addressing (amongst others) this issue.

I can't find this article - can someone post a link to it when they get a chance?

Thanks, Sandy

Jim you bring up an interesting point. I think that part of the prevalence of RSD is a modern, first world lifestyle. Whenever I read a book or watch a history show on a different era, I always think "Man, I never would have survived during that time." But then I always remind myself that I wouldn't have been doing gymnastics all day every day in the 15th century. So the problem probably wouldn't have presented itself.

I just always think that this is an interesting question to ponder. And I wouldn't be surprised if the incidence of RSD is the same across all races. It's like any other condition- awareness levels predict diagnosis rates. People who do not have access to health care are not going to be diagnosed. You usually only see pronounced differences across races when the disease has a genetic origin- something like Tay-Sachs.

Lynn

Hi Kim, 15 years ago I got RSD following surgery. After a year of pt and massage therapy I had a year remission. then the RSD moved to the opposite shoulder. more therapy and another year of remission. Then injured my hand,water skiing and went full body after that. I wasn't diagnosed for 4 years, but my neuro said I've had it since that 'surgery' I did have jolts, jerks, spasms body wide for a long time. Went on 3200 mg neurotin to get rid of them. After gaining weight, I asked to gradually go off of neurotin-hated the weight gain and the feeling from the drug. I've been off a couple years and didn't get the symptoms back, so I'm very grataeful for that. I'm on less meds now than 5 years ago. I sleep 10 hrs. now verses not getting to sleep till 5-6 a.m. Have a very good Dr.. So in some ways I'm better now than 5 years ago.I'm completely mobile except one hand. So have a lot to be grateful for. Hope you have some improvements too. It's a tough thing to deal with day in and day out. As for pain meds, I'm on 4 vicodin a day instead of 6, and mentally better. My Dr. is neuro, pharmacologist, psychiatrist, so I've had good care. Hope the best for you, loretta with soft hugs

For my wifes sake I hope it burns out. That will be the happiest day in our lives.

I've read somewhere of a study done in Europe that concluded that many with RSD go into remission after middle age. I have no idea if there is merit to this or not.

Okay...I am middle aged. Does that mean now? Hahaha!

The age thing is interesting because it seems most people contract RSD mostly in their mid 30s, less younger less older. Very strange to me.